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ERN-RND | European Reference Network on Rare Neurological Diseases

ERN-RND | European Reference Network on Rare Neurological Diseases

for rare or low prevalence complex diseases

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Domain: Diagnosis/Neurogenetics

Update in synuclein PET tracer development

6 Dec. 2022

Speaker: Johannes Levin
Ludwig Maximilian University Hospital, Munich, Germany

Recording

Slides

Use of Biomarkers to monitor the presymptomatic phase of Genetic FTD: research advances for clinical trial readiness

22 Nov. 2022

Speaker: Harro Seelaar & Dario Saracino
Erasmus University Medical Center, Rotterdam, Netherlands;
APHP – Pitié-Salpêtrière Hospital, Paris, France

Slides

When is it appropriate to suspect a metabolic disorder in a child with chorea?

8 Nov. 2022

Speaker: Juan Dario Ortigoza-Escobar
Sant Joan de Déu Hospital, Barcelona, Spain

Recording

Slides

VPS13A and XK bulk lipid transfer diseases (formerly the now obsolete Levine-Critchley syndrome)

25 Oct. 2022

Speaker: Adrian Danek
Ludwig Maximilian University Hospital, Munich, Germany

Recording

Slides

DBS in Dystonia – Targets, programming and therapeutic challenges

18 Oct. 2022

Speaker: Philipp Capetian
University Hospital Würzburg, Germany

Slides

Krabbe disease – natural history and treatment options

11 Oct. 2022

Speaker: Samuel Gröschel & Ingeborg Krägeloh
University Hospital Tübingen, Germany

Recording

Slides

CACNA1A-related disorders: clinical presentation and therapeutic options

4 Oct. 2022

Speaker: Elisbetta Indelicato
Medical University Innsbruck, Austria

Slides

Clinical and genetic predictors of subthalamic nucleus deep brain stimulation in Parkinson’s disease

27 Sep. 2022

Speaker: Daniel Weiß
Hertie Institute for Clinical Brain Research, University of Tübingen, Germany

Recording

Tau-targeting Therapies: Where are we heading to?

20 Sep. 2022

Speaker: Günter Höglinger
Medical Schhol Hannover, Germany

Recording

Vanishing white matter

13 Sep. 2022

Speaker: Marjo van der Knaap
VU University Medical Center Amsterdam, Netherlands

Recording

Young onset Parkinson’s disease – What is the difference?

5 Jul. 2022

Speaker: Bart Post
Radboud University Medical Centre, Nijmegen, Netherlands

Recording

Slides

Magnetic resonance imaging in the diagnostic assessment of cerebellar ataxias

28 Jun. 2022

Speaker: Jennifer Faber
German center for neurodegenerative disorders (DZNE), Bonn, Germany

Slides

Biofluid biomarkers in atypical parkinsonism

21 Jun. 2022

Speaker: Per Svenningsson
Karolinska University Hospital, Stockholm, Sweden

Recording

Basal ganglia diseases in childhood

12 Apr. 2022

Speaker: Belén Perez Dueñas
Vall d’Hebron University Hospital, Barcelona, Spain

Slides

The logopenic variant of primary progressive aphasia (lvPPA): language, cognitive, neuroradiological issues’

5 Apr. 2022

Speaker: Robert Rusina & Zsolt Cséfalvay
Thomayer Hospital, Prague, Czech Republic; Comenius University in Bratislava, Slovakia

Slides

Measuring disease severity in chronic progressive myelopathy

15 Mar. 2022

Speaker: Marc Engelen
VU University Medical Center Amsterdam, Netherlands

Recording

Slides

Brain Development in Huntington’s Disease

8 Mar. 2022

Speaker: Peggy Nopoulos
Carver College of Medicine, University of Iowa, USA

Recording

Slides

New MDS criteria for clinical diagnosis of MSA

15 Feb. 2022

Speaker: Gregor Wenning & Iva Stankovic
Medical University Innsbruck, Austria; University of Belgrade, Serbia

Recording

The overlap between the spectrum of frontotemporal dementias and atypical Parkinsonism

8 Feb. 2022

Speaker: Vasilios Constantinides
National and Kapodistrian University of Athens, Greece.

Recording

Slides

Pure autonomic failure

18 Nov. 2021

Speaker: Alessandra Fanciulli
Medical University Innsbruck, Austria

Recording

Slides

Clinical outcome assessments in Ataxias

9 Nov. 2021

Speaker: Thomas Klockgether
University Hospital Bonn, Germany

Slides

Pelizaeus-Merzbacher disease and related disorders (pediatric focus)

26 Oct. 2021

Speaker: Nicole Wolf
VU University Medical Center Amsterdam, Netherlands;
Emma Children’s Hospital, Amsterdam, Netherlands

Slides

Functional gait disorders: a sign-based approach

12 Oct. 2021

Speaker: Jorik Nonnekes
Radboud University Medical Centre, Nijmegen, Netherlands

Recording

Slides

X-Linked leukodystrophies – Update

7 Oct. 2021

Speaker: Caroline Sevin
Reference Center for Leukodystrophies, Hôpital de Bicêtre and ICM (institute of Brain and Spine), Paris, France

Recording

Slides

Adult leukodystrophies/early symptoms of late-onset Leukodystrophies

5 Oct. 2021

Speaker: Fanny Mochel
APHP – Pitié-Salpêtrière Hospital, Paris, France

Recording

Slides

Treatable dystonia &dystonia in inborn errors of metabolism

28 Sep. 2021

Speaker: Tom J. de Koning
University Medical Centre Groningen, Netherlands

Recording

Slides

Genetic forms of parkinson

14 Sep. 2021

Speaker: Thomas Gasser
University Hospital Tübingen, Germany

Recording

Slides

Speech as a biomarker in ataxia: What can it tell us and how should we use it?

6 Jul. 2021

Speaker: Adam Vogel
University of Melbourne, Australia

Recording

Metachromatic Leukodystrophy – update

15 Jun. 2021

Speaker: Samuel Gröschel & Ingeborg Krägeloh
University Hospital Tübingen, Germany

Slides

MRI pattern recognition in leukodystrophies

8 Jun. 2021

Speaker: Nicole Wolf
VU University Medical Center Amsterdam, Netherlands;
Emma Children’s Hospital, Amsterdam, Netherlands

Slides

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Webinar Schedule

Latest News

  • Clinical Practice for Primary Progressive Aphasia (PPA) – Interview with Robert Rusina

    May 5, 2025
    It takes „about one year from the first symptoms to the first consultation of a physician, and another one year …read more »
  • Survey on Myoclonus Dystonia Syndrome

    April 10, 2025
    Myoclonus-dystonia syndrome (MDS) is a genetic movement disorder with childhood-onset, most frequently caused by SGCE defects. For this survey two …read more »
  • The Importance of Newborn Screening for Metachromatic Leukodystrophy (MLD)

    April 7, 2025
    MLD is a neurodegenerative disorder, that affects children at a very young age, leading to a premature death. In a …read more »

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ERN-RND

@ern-rnd.bsky.social

129 Followers 80 Following 94 Posts

European Reference Network for Rare Neurological Diseases (ERN-RND) to improve diagnosis, care & treatment of RND patients.
Free webinars: https://www.ern-rnd.eu/education-training/webinars/

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    Der Code des Lebens @dercodedeslebens.bsky.social 4 days

    📣 Neue Folge: Von Basenpaaren und Bytes
    Das menschliche Genom hat 3 Milliarden Basenpaare – eine riesige Datenflut, die nur mit Bioinformatik zu bewältigen ist. Camill Kaipf erklärt, wie man in dieses Feld kommt und warum eine sichere IT-Infrastruktur so wichtig ist.
    🎧 t1p.de/xebt4
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    The German Human Genome-Phenome Archive @ghga.bsky.social 1 week

    🎬 In case you missed our webinar on Benchmarking and quality control for genomic variant calling with Johannes Köster., you can now watch the recordings on our Training Website: www.ghga.de/resources/tr...
    The slides are also available on GHGA GitHub: github.com/GHGA-Trainin...
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    ERKNet - European Reference Network for Rare Kidney Diseases @erknet.bsky.social 2 weeks

    Erksplain - Kidney Transplantation 🚨

    Kidney transplants save lives — but the average wait is 6–8 years.
    Deceased donors are matched by urgency and compatibility.
    Most people can donate — just register or tell your family! 💡

    Organ donation = a true gift of life. 🌍

    #KidneyTransplant #SaveLives
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    ERN-RND @ern-rnd.bsky.social 2 weeks

    💻 U#webinar#webinar on “Recent Advances in Clinical Trials in Multiple System Atrophy”
    📅 20th May, 3:00 CEST
    🗣️ David Bendetowicz, University Hospital Bordeaux, France
    Sign https://t1p.de/ri7k3de/ri7k3
    Joint with the European Reference Network for Rare Neuromuscular Diseases and
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    ERN-RND @ern-rnd.bsky.social 2 weeks

    💻 U#webinar#webinar on “Neurogeriatric Aspects in Rare Forms of Ataxia and HSP”
    📅 13th May, 3:00 CEST
    🗣️ Eleni Zamba-Papanicolaou, Cyprus Institute of Neurology and Genetics
    Sign https://t1p.de/v8r2hde/v8r2h
    Joint with the European Reference Network for Rare Neuromuscular Diseases and

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ERN-RND European Reference Network for Rare Neurological Diseases

Our mission

ERN-RND aims to support rare neurological patients in Europe in getting a timely and appropriate diagnosis, treatment and care.

ERNs

ERN-RND is one of the 24 European Reference Networks (ERNs) approved by the ERN Board of Member States. For more information about the ERNs and the EU Health strategy, please visit https://ec.europa.eu/health/ern_en

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