02 December 2025 | 3 – 4 pm CET
Zoom Registration
Speaker: Domenico Plantone
AOU – University Hospital Siena, Italy
Domain: General Aspects
Recent Advances in Episodic Ataxias
18 November 2025 | 3 – 4 pm CET
Zoom Registration
Speaker: Elisabetta Indelicato and David Pellerin
Medical University Innsbruck, Austria & Miller School of Medicine, Miami, USA
Social and Lifestyle Issues Related to FTD and PPA
30 Sep. 2025 | 3 – 4 pm CEST
Zoom Registration
Speaker: Alexa Häger
University Hospital Aachen, Germany
Patient Journeys: Reliable Comprehensive Documents which Summarise a Rare Disease
23 Sep. 2025 | 3 – 4 pm CEST
Zoom Registration
Speaker: Petya Mihaylova & Mary Kearney
Irish Consortium: Tallaght University Hospital and Children’s Health Ireland & FARA Ireland
Introduction – systematics of non-neurological aspects
Winter school 2025 “Challenges of treating rare neurological diseases”
14 Mar. 2025
Speaker: Michèl Willemsen
Radboudumc, Nijmegen, The Netherlands
Autoimmune parkinsonism
Dystonic Crisis and Reactions
Strategies of DBS Troubleshooting in Dystonia
Winter school 2024 “DBS in dystonia”
17-19 Apr. 2024
Speaker: Norbert Kovacs
Italy Azienda Ospedaliero-Universitaria Siena
MER and LFP Signals for Implantation and Programming in Dystonia Patients
Winter school 2024 “DBS in dystonia”
17-19 Apr. 2024
Speaker: Nicolo Pozzi
University of Würzburg, Germany
Combined and Complex Dystonias
The spectrum of genetic synucleinopathies
12 Mar. 2024
Speaker: Leonidas Stefanis
University of Athens Medical School, Athens, Greece
Huntington disease: new insights into molecular pathogenesis and therapeutic opportunities
Friedreich Ataxia
Dissecting Fahr’s disease
Frontotemporal dementia vs. primary psychiatric disorders
Use of Biomarkers to monitor the presymptomatic phase of Genetic FTD: research advances for clinical trial readiness
22 Nov. 2022
Speaker: Harro Seelaar & Dario Saracino
Erasmus University Medical Center, Rotterdam, Netherlands;
APHP – Pitié-Salpêtrière Hospital, Paris, France
DBS in Dystonia – Targets, programming and therapeutic challenges
Krabbe disease – natural history and treatment options
CACNA1A-related disorders: clinical presentation and therapeutic options
Tau-targeting Therapies: Where are we heading to?
Vanishing white matter
13 Sep. 2022
Speaker: Marjo van der Knaap
VU University Medical Center Amsterdam, Netherlands
Importance of autopsies in leukodystrophies
Basal ganglia diseases in childhood
The logopenic variant of primary progressive aphasia (lvPPA): language, cognitive, neuroradiological issues’
5 Apr. 2022
Speaker: Robert Rusina & Zsolt Cséfalvay
Thomayer Hospital, Prague, Czech Republic; Comenius University in Bratislava, Slovakia
Measuring disease severity in chronic progressive myelopathy
Brain Development in Huntington’s Disease
The overlap between the spectrum of frontotemporal dementias and atypical Parkinsonism
Learning by example: HD-JUNIOR a national registry for patients with juvenile onset Huntington’s Disease
Pelizaeus-Merzbacher disease and related disorders (pediatric focus)
26 Oct. 2021
Speaker: Nicole Wolf
VU University Medical Center Amsterdam, Netherlands;
Emma Children’s Hospital, Amsterdam, Netherlands
