The European Reference Network for Rare Neurological Diseases (ERN-RND) is pleased to invite all ERN-RND CPMS users to the webinar “Presenting the new CPMS functionalities and the principle of e-consultations” which will take place on 7 May 2021, 3-4pm CET.
Following an introduction of new key features of the latest Clinical Patient Management System (CPMS) version, a case discussion will illustrate the principles of e-consultations using the CPMS.
Martje Pauly (Centre for Rare Diseases in Lübeck, Germany) will present a case of a 4-year old patient that after a prolonged birth with asphyxia and reanimation started to suffer from impaired hearing (with 6 months), delayed motor and speech development and a severe generalised choreatic movement disorder without spasticity or dystonia since she was two-years old.
Her case will then be discussed by a panel of experts in the field.
Target audience: ERN-RND CPMS Users (or those who are interested in using it)
Register here for the webinar.