We are delighted to announce the publication of a research article written by ERN-RND members including the network’s coordinator, Holm Graessner. We believe that the work that has been done, an explorative care need survey across all European Union (EU) countries, is a first in the field and will ultimately greatly benefits patients with rare neurological diseases.
Article name: “Management of rare movement disorders in Europe: outcome of surveys of the European Reference Network for Rare Neurological Diseases”
Authors: C. Painous, NJH. van Os, A. Delamarre, I. Michailoviene, MJ. Marti, BP. van de Warrenburg, WG. Meissner, A. Utkus, C. Reinhard, H. Graessner, MAJ. Tijssen
Published: 9 May 2020
Journal: European Journal of Neurology