A letter by ERN GENTURIS member prof Marc Tischkowitz from Cambridge, UK, on the detrimental effects of a no-deal Brexit to rare disease patients in the UK, was published in the Lancet.
The letter has a total of 73 signatories, 54 signatories from UK senior clinicians and researchers who are currently members of an ERN, as well as 19 signatories each representing a patient support group.
You can read it here.
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