Skip to content
  • Twittter
  • Facebook
  • LinkedIn
  • Youtube
ERN-RND | European Reference Network on Rare Neurological Diseases

ERN-RND | European Reference Network on Rare Neurological Diseases

for rare or low prevalence complex diseases

Members Area
  • Home
  • About us
    • What is an ERN
    • Cross border healthcare
    • What is ERN-RND
    • Objectives of ERN-RND
    • Diseases Groups Covered
    • ERN-RND coordinators
    • ERN-RND coordination office
    • ERN-RND board
    • Patient advocates
    • Work Packages
    • Monitoring
    • Publications Acknowledging ERN-RND
  • Expert Centres
    • … for rare neurological diseases
    • Full members and affiliated partners
    • How to contact expert centres
    • Supporting partners
    • Videos from our members
  • Online case discussion with CPMS
    • What is the CPMS
    • Who can use it
    • How to use it
    • Special case for CPMS
    • CPMS Helpdesk
    • Videos
  • Disease Knowledge
    • Cerebellar Ataxia & Hereditary Spastic Paraplegias (HSPs)
    • Chorea & Huntington’s disease
    • Dystonias, NBIA and Paroxysmal Disorders
    • Frontotemporal dementia
    • Leukodystrophies
    • Atypical Parkinsonism: MSA, PSP & Genetic Parkinson’s Disease
  • Education & Training
    • Webinars
    • Past webinars
    • Short Exchange Programme
    • EJP RD funded training – Research on RD
    • Winter School
  • Registry
    • ERN-RND registry objectives
    • Disease Groups covered
    • Pilot Phase
    • Registry Manual
    • Contact
  • Collab­ora­tions
    • EJP RD
      • What is EJP RD?
      • EJP RD mission & goals
      • EJP RD & ERNs
      • EJP RD in a nutshell
    • Solve-RD
      • What is Solve-RD?
      • Main Objectives
      • Implementation Steps
      • Analysis
    • Value of Treatment (VoT)
      • VoT project coordinator
      • Objectives of the VoT project
      • ERN-RND in VoT2
      • Academic partners in VoT2
      • Further reading
  • News & Events
    • News
    • Events
    • Newsletters
    • Meet the members
  • Contact us
  • Twittter
  • Facebook
  • LinkedIn
  • Youtube

Summary report – 4th Conference on European Reference Networks

The summary report of the 4th Conference
on European Reference Networks
that took
place in Brussels, Belgium on 21-22 November
2018 is now available here.

More information about this Conference can be
found on the European Commission’s website.

Author ERN-RNDPosted on November 28, 2018February 20, 2019Categories News

Post navigation

Previous Previous post: New ERN video and flyer for patients and healthcare professionals
Next Next post: Poster: ERN-RND – Survey research priorities

Our mission

ERN-RND aims to support rare neurological patients in Europe in getting a timely and appropriate diagnosis, treatment and care.

ERNs

ERN-RND is one of the 24 European Reference Networks (ERNs) approved by the ERN Board of Member States. For more information about the ERNs and the EU Health strategy, please visit https://ec.europa.eu/health/ern_en

  • Twittter
  • Facebook
  • LinkedIn
  • Youtube

Sitemap | Disclaimer and Data Protection

  • Twitter
  • Facebook
  • LinkedIn