Disease networks and study groups

The listed disease networks and study groups are external networks and groups, which are leaders in the field of research for these disease groups. ERN-RND’s work is based on and complimentary to the work being done by these networks.

Ataxia

ASG

Dystonia

Frontotemporal Dementia

Genetic Parkinsonism

Heriditary Spastic Paraplegia

  • International network with the intention to further the development of trial readiness and therapies in HSP and PLS.
  • A nationwide research platform connecting physicians and scientists from various Universities and Hospitals across Canada. It was established in 2011 and is funded by the Canadian Institutes for Health Research (CIHR).
Website: SPF
Contact: Frank Davis

Huntington

Leukodystrophies

Multiple System Atrophy

ADC

Progressive Supranuclear Palsy

CBD Solutions (Corticobasal Degeneration)