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ERN-RND | European Reference Network on Rare Neurological Diseases

ERN-RND | European Reference Network on Rare Neurological Diseases

for rare or low prevalence complex diseases

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Patient information – Frontotemporal dementia – Adult

Please note that this section includes useful information from a variety of sources provided by ERN-RND members but which hasn’t been endorsed by ERN-RND.

Multiple languages:

  • Disease specific patient education handouts by the Movement Disorders Society

German language:

  • DESCRIBE-FTD – Klinische Registerstudie zu Frontotemporaler Demenz by Deutsches Zentrum für Neurodegenerative Erkrankungen e. V. (DZNE)

     


Webinar Schedule

Find us on Bluesky

ERN-RND

@ern-rnd.bsky.social

182 Followers 90 Following 253 Posts

European Reference Network for Rare Neurological Diseases (ERN-RND) to improve diagnosis, care & treatment of RND patients.
Free webinars: https://www.ern-rnd.eu/education-training/online-medical-education-for-rare-neurological-diseases/

Last updated 10 minutes ago

  • View post by ERN-RND on Bluesky

    ERN-RND @ern-rnd.bsky.social 4 days

    After a quick break we will continue with Nicola Whiffin and "Non-coding Variants in Rare Diseases" at 11:30 CEST.

    Join our #SpringSchool on "Next Generation Sequencing Diagnostics for Rare Neurological Diseases": us02web.zoom.us/webinar/regi...

    programme here: www.ern-rnd.eu/education-tr...
  • View post by ERN-RND on Bluesky

    ERN-RND @ern-rnd.bsky.social 4 days

    Join our free #SpringSchool now - right now on:
    Christian Gilissen with "Bioinformatic Tools for Diagnosing Rare Diseases"

    To join the talk click here: us02web.zoom.us/webinar/regi...

    Find the whole programme here: www.ern-rnd.eu/education-tr...
    ❤️ 1
  • View post by ERN-RND on Bluesky

    ERN-RND @ern-rnd.bsky.social 1 week

    Join Katja Lohmann and Ales Maver to learn about quality insurance and recommendations for NGS during our #SpringSchool on "Next Generation Sequencing Diagnostics for Rare Neurological Diseases” on May 6th at 9:00 CEST.

    Register for free: https://t1p.de/wsatw
    Programme: https://t1p.de/xp523
  • View post by ERN-RND on Bluesky

    ERN-RND @ern-rnd.bsky.social 1 week

    Less than a week to go till our #SpringSchool "Next Generation Sequencing Diagnostics for Rare Neurological Diseases” starts! Join uns online from May 5-7 and register now (free of charge): us02web.zoom.us/webinar/regi...

    Find the programme here: www.ern-rnd.eu/education-tr...
  • View post by ERN-RND on Bluesky

    ERN-RND @ern-rnd.bsky.social 2 weeks

    Interested in NGS for Ataxia and HSP? Join Erik-Jan Kamsteeg during our #SpringSchool on "Next Generation Sequencing Diagnostics for Rare Neurological Diseases” on May 7th at 9:00 CEST.

    Registration is free of charge: https://t1p.de/wsatw
    Programme: https://t1p.de/xp523
  • View post by ERN-RND on Bluesky

    ERN-RND @ern-rnd.bsky.social 2 weeks

    Gain deeper insights into the role of non-coding variants in rare diseases with Nicola Whiffin during our #SpringSchool  on "Next Generation Sequencing Diagnostics for Rare Neurological Diseases” on May 5th at 11:30 CEST. 

    Register for free: https://t1p.de/wsatw
    Programme: https://t1p.de/xp523
    ❤️ 1
  • View post by ERN-RND on Bluesky

    ERN-RND @ern-rnd.bsky.social 3 weeks

    Interested in NGS for Leukoencephalopathies? Join Fanny Mochel during our #SpringSchool on "Next Generation Sequencing Diagnostics for Rare Neurological Diseases” on May 7th at 13:00 CEST.
    Registration is free of charge: https://t1p.de/wsatw
    Programme: https://t1phttps://t1p.de/wsatwttps://bsky.https://t1p.de/xp523S
    ❤️ 1 🔄 1
Last updated 10 minutes ago

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ERN-RND European Reference Network for Rare Neurological Diseases

Our mission

ERN-RND aims to support rare neurological patients in Europe in getting a timely and appropriate diagnosis, treatment and care.

ERNs

ERN-RND is one of the 24 European Reference Networks (ERNs) approved by the ERN Board of Member States. For more information about the ERNs and the EU Health strategy, please visit https://ec.europa.eu/health/ern_en

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