ERN-RND webinars in collaboration with ERN EURO-NMD and EAN
ERN-RND provides free educational webinars on rare neurological and neuromuscular diseases - in collaboration with the European Reference Network for Rare Neuromuscular Diseases (EURO-NMD) and the European Academy of Neurology (EAN). The goal is to share knowledge on rare neurological, movement and neuromuscular disorders via a series of webinars presented by expert members of both networks.
Topics: The webinars will treat topics related to the disease groups covered by the two networks and alternate between adult and paediatric contents. Various aspects from more general clinical features, examination, disease diagnosis, medical interventions and disease management to more specific ones as use of scales or imaging will be discussed.
Audience: clinical specialists (neurologists and paediatric neurologists), residents and other paramedical staff involved in the care of neurological patients.
Recorded webinars: The webinars are usually recorded and published on the "past webinars" webpage 2 weeks approximately after it took place. However, please consider that in the recorded webinar some features are missing and thus the live experience of these educational events is highly recommended.
Registration: In order to register for a specific webinar click on the webinar of your choice in the table below. The registration links will be active as soon as possible and at the latest 2 weeks before the webinar's date.
Next webinar organised by ERN-RND will be on:
4 June 2024: Genetic Testing in Ataxias and HSP - in whom, when and how
Rebecca Schüle, Ludger Schöls, University Hospital Heidelberg & University Hospital Tübingen, Germany
Date | Topic | Speaker | Institution | ERN | Focus |
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04 June 2024, 3 - 4 pm CET | Genetic Testing in Ataxias and HSP - in whom, when and how |
Rebecca Schüle, Ludger Schöls | (University Hospital Heidelberg & University Hospital Tübingen, Germany) | ERN-RND | |
25 June 2024, 3 - 4 pm CET | Autoimmune parkinsonism | Jeroen Kerstens | Antwerp University Hospital, Belgium | ERN-RND | |
24 September 2024, 3 - 4 pm CET | Clinical Neurophysiology in Dystonia | Anke Snijders | Radboud University Medical Center, Netherlands | ERN-RND | |
22 October 2024, 3 - 4 pm CET | Neurogeriatric Aspects and Neurological aspects in Palliative Care of MSA, PSP and advanced PD | Martin Klietz | Hannover Medical School, Germany | ERN-RND | |
05 November 2024, 3 - 4 pm CET | Diagnostic Approach to Childhood-onset Chorea | Juan Darío Ortigoza-Escobar | Hospital Sant Joan de Déu, Barcelona, Spain | ERN-RND | |
14 November 2024, 4 - 5 pm CET | DBS in Dystonia - the network perspective | Juho Joutsa | Turku University Hospital | ERN-RND | |
19 November 2024, 3 - 4 pm CET | Autonomic dysfunction in movment disorders | Pietro Guaraldi | Azienda USL di Bologna, IRCCS Institute of Neurological Sciences, Bologna, Italy | ERN-RND |
GENE THERAPY Webinar Series
The webinar series on Gene Therapy is co-organized by ERN-RND, EURO-NMD, ERN EpiCARE and the European Academy of Neurology (EAN), where we’ll delve into the latest advancements and breakthroughs in this interesting field. Look forward to cutting-edge research, clinical applications and successes, ethical considerations and future prospects as well as to expert discussions and Q&A Sessions.
Date | Topic | Speaker | Institution | ERN | Focus |
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14 May 2024, 4 pm CEST | Episode 4 N-of-1 to Many Personalized Therapies |
Terry Pirovolakis | (Founder of CureSPG50 and Elpida Therapeutics, Greece) | EURO-NMD | |
23 May 2024, 4 pm CEST | Episode 5 Safety Issues in Gene Therapies and how to Address them |
tba | tba | epiCARE | |
29 May 2024, 4 pm CEST | Episode 6 Genetic Therapies and Therapy Developments for Muscular Dystrophies (DMD, LGMD) |
Annemieke Aartsma-Rus | Leiden University Medical Center, the Netherlands | EURO-NMD | |
06 June 2024, 4 pm CEST | Episode 7 Genetic Therapies and Therapy Developments for Epileptic Disorders |
tba | tba | epiCARE | |
13 June 2024, 4 pm CEST | Episode 8 Genetic Therapies and Therapy Developments for ALS |
Juan Francisco Vázquez Costa | University of Valencia, Spain | EURO-NMD | |
20 June 2024, 4 pm CEST | Episode 9 Health technology assessment of genetic therapies |
tba | tba | epiCARE | |
27 June 2024, 4 pm CEST | Episode 10 Genetic therapies and therapy developments for SMA |
Jan Kirschner | Medical Center – University of Freiburg, Germany | EURO-NMD | |
02 July 2024, 4 pm CEST | Episode 11 State of the art of clinical stage gene therapies for Leukodystrophies |
Caroline Sevin | Kremlin Bicêtre Hospital, France | ERN-RND | |
23 July 2024, 4 pm CEST | Episode 12 Genetic therapies and therapy developments for rare movement disorders (HD, SCA) |
Willeke van Roon-Mom | Leiden University Medical Center, the Netherlands
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ERN-RND |
Webinars from partner professional organisations
All past webinars of ERN-RND partner organisations (including patient organisations) can be found here.
Please note that ERN-RND is not responsible for the content provided via external links and has no control over them.