News 2017 – ERN-RND | European Reference Network on Rare Neurological Diseases

1st ERN-RND Winter School

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ERN-RND @ern-rnd.bsky.social 2 weeks

After three eventful and inspiring days our annual meeting in Rome has come to an end. A big thank you to the team from Ospedale Pediatrico Bambino Gesù for having us this year. We also thank everyone who joined us, both on-site and online for valuable insights and engaging discussions.
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ERN-RND @ern-rnd.bsky.social 2 weeks

Join our last talk by Ralf Reilmann on Natural History Studies as historical control data for trials: us02web.zoom.us/webinar/regi...

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ERN-RND @ern-rnd.bsky.social 2 weeks

Don't miss our talk on registry qualification and regulatory expectations for rare disease evidence generation by Kelly Plueschke at 11:45 CEST: us02web.zoom.us/webinar/regi...
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ERN-RND @ern-rnd.bsky.social 2 weeks
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ERN-RND @ern-rnd.bsky.social 2 weeks

Join our next talk by Dario Ortigoza on the NKX2-1 registry at 10:30 CEST: www.ern-rnd.eu/scientific-s...
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ERN-RND @ern-rnd.bsky.social 2 weeks

Our second session will present examples of ERN-RND registries, starting with Rebecca Schüle and TreatHSP. Jois this talk now: www.ern-rnd.eu/scientific-s...
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ERN-RND @ern-rnd.bsky.social 2 weeks

This was the first session of our symposium on the Framework for RND registries. After a short break we will be back at 09:50 CEST. Join us remotely: www.ern-rnd.eu/scientific-s...

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