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ERN-RND | European Reference Network on Rare Neurological Diseases

ERN-RND | European Reference Network on Rare Neurological Diseases

for rare or low prevalence complex diseases

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    • … for rare neurological diseases
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Category: News 2018

New European Joint Programme on Rare Diseases – €100 million allocated to rare disease research

New European Joint Programme on Rare Diseases – €100 million allocated to rare disease research

Continue reading “New European Joint Programme on Rare Diseases – €100 million allocated to rare disease research”

Posted on December 7, 2018August 13, 2024Categories News 2018

Poster – Diagnostic flowcharts, a tool to disseminate expert knowledge on rare neurological diseases

Poster – Diagnostic flowcharts, a tool to disseminate expert knowledge on rare neurological diseases

Continue reading “Poster – Diagnostic flowcharts, a tool to disseminate expert knowledge on rare neurological diseases”

Posted on December 4, 2018August 13, 2024Categories News 2018

New #EUProtects video released by the European Commission

New #EUProtects video released by the European Commission

Continue reading “New #EUProtects video released by the European Commission”

Posted on December 3, 2018August 13, 2024Categories News 2018

Poster: “CPMS use cases in ERN-RND”

Poster: “CPMS use cases in ERN-RND”

Continue reading “Poster: “CPMS use cases in ERN-RND””

Posted on December 3, 2018August 13, 2024Categories News 2018

Poster: ERN-RND – Survey research priorities

Poster: ERN-RND – Survey research priorities

Continue reading “Poster: ERN-RND – Survey research priorities”

Posted on November 29, 2018August 13, 2024Categories News 2018

Summary report – 4th Conference on European Reference Networks

Summary report – 4th Conference on European Reference Networks

Continue reading “Summary report – 4th Conference on European Reference Networks”

Posted on November 28, 2018August 13, 2024Categories News 2018

New ERN video and flyer for patients and healthcare professionals

New ERN video and flyer for patients and healthcare professionals

Continue reading “New ERN video and flyer for patients and healthcare professionals”

Posted on November 27, 2018August 13, 2024Categories News 2018

Executive Summary – 9th European Conference on Rare Diseases and Orphan Products

Executive Summary – 9th European Conference on Rare Diseases and Orphan Products

Continue reading “Executive Summary – 9th European Conference on Rare Diseases and Orphan Products”

Posted on November 19, 2018August 13, 2024Categories News 2018

ERN-RND Fellowship experience in Tübingen, Germany

ERN-RND Fellowship experience in Tübingen, Germany

Continue reading “ERN-RND Fellowship experience in Tübingen, Germany”

Posted on November 14, 2018August 13, 2024Categories News 2018

ERN-RND has affirmed the value of the Ataxia-UK guideline “Management of the ataxias towards best clinical practice” (Ataxia UK, 3rd edition, July 2016)

ERN-RND has affirmed the value of the Ataxia-UK guideline “Management of the ataxias towards best clinical practice” (Ataxia UK, 3rd edition, July 2016)

Continue reading “ERN-RND has affirmed the value of the Ataxia-UK guideline “Management of the ataxias towards best clinical practice” (Ataxia UK, 3rd edition, July 2016)”

Posted on November 7, 2018August 13, 2024Categories News 2018

ERN-RND Fellowship

ERN-RND Fellowship

Continue reading “ERN-RND Fellowship”

Posted on July 18, 2018August 13, 2024Categories News 2018

ERN-RND Annual Meeting 2018

ERN-RND Annual Meeting 2018

Continue reading “ERN-RND Annual Meeting 2018”

Posted on July 3, 2018August 13, 2024Categories News 2018

Solve-RD project

Solve-RD project

Continue reading “Solve-RD project”

Posted on June 28, 2018February 3, 2025Categories News 2018

MoU signed between ERN-RND & MDS-ES

MoU signed between ERN-RND & MDS-ES

Continue reading “MoU signed between ERN-RND & MDS-ES”

Posted on May 15, 2018August 13, 2024Categories News 2018

@ERN_RND is on Twitter!

@ERN_RND is on Twitter!

Continue reading “@ERN_RND is on Twitter!”

Posted on May 14, 2018August 13, 2024Categories News 2018

Webinar Schedule

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ERN-RND

@ern-rnd.bsky.social

168 Followers 90 Following 194 Posts

European Reference Network for Rare Neurological Diseases (ERN-RND) to improve diagnosis, care & treatment of RND patients.
Free webinars: https://www.ern-rnd.eu/education-training/online-medical-education-for-rare-neurological-diseases/

  • Get to this post

    ERN-RND @ern-rnd.bsky.social 1 day

    Stay informed: Whether you’re a clinician, patient, carer, or patient representative, our ERN-RND #newsletter is your go-to source for the latest updates on Rare Neurological Diseases in Europe: www.ern-rnd.eu?mailpoet_rou...

    #RareDisease #RareNeurologicalDisease #Neurology #RareNeurology
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    ERN-RND @ern-rnd.bsky.social 3 days

    💻 Upcoming #webinar on “Fluid Biomarkers in Frontotemporal Dementia”
    📅 2nd December, 3:00 CET
    🗣️ Domenico Plantone, AOU - University Hospital Siena, Italy

    Sign up 👉https://t1p.de/9hsbhttps://t1p.de/9hsbctps://bsky.app/hashtag/webinar">#webinar and
  • Get to this post

    ERN-RND @ern-rnd.bsky.social 1 week

    💻#webinar on “Guidelines on the Assessment and Treatment of Neurogenic Urinary and Sexual Symptoms”
    📅25th November, 3 CET
    🗣️A. Fanciulli and P. Guaraldi, Medical University Innsbruck and Azienda USL di Bologna
    Sign up 👉 https://t1p.de/9chttps://t1p.de/9cxi7app/hashtag/webinar">#webinart with the and
  • Get to this post

    ERN-RND @ern-rnd.bsky.social 1 week

    💻 Upcoming #webinar on “Recent Advances in Episodic Ataxias”
    📅 18th November, 3:00 CET
    🗣️ E. Indelicato and D. Pellerin, Medical University Innsbruck, Austria, and Miller School of Medicine, Miami, USA
    Sign up 👉 https://t1p.de/6uunhttps://t1p.de/6uunpps://bsky.app/hashtag/webinar">#webinar and
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    ERN-RND @ern-rnd.bsky.social 2 weeks

    Welcome everyone to Day 2 of our Annual Meeting 2025! We just started into our Disease Group meetings of today.
  • Get to this post

    ERN-RND @ern-rnd.bsky.social 2 weeks

    #QuizNight: A great evening full of laughter, learning, and connection!
    How much do you know about ERN-RND?
    Do you know how many data sets were submitted to the ERN-RND registry in 2024?
  • Get to this post

    ERN-RND @ern-rnd.bsky.social 2 weeks

    Patient advocate workshop guided by one key question: what needs our attention most in the RND community? Mental health support? Lack of knowledge and awareness? Tailored transitioning care in adolescence?
    Many inspiring ideas and discussions! We’re excited to see how they’ll shape future projects!

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ERN-RND European Reference Network for Rare Neurological Diseases

Our mission

ERN-RND aims to support rare neurological patients in Europe in getting a timely and appropriate diagnosis, treatment and care.

ERNs

ERN-RND is one of the 24 European Reference Networks (ERNs) approved by the ERN Board of Member States. For more information about the ERNs and the EU Health strategy, please visit https://ec.europa.eu/health/ern_en

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