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ERN-RND | European Reference Network on Rare Neurological Diseases

ERN-RND | European Reference Network on Rare Neurological Diseases

for rare or low prevalence complex diseases

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Category: News 2018

New European Joint Programme on Rare Diseases – €100 million allocated to rare disease research

New European Joint Programme on Rare Diseases – €100 million allocated to rare disease research

Continue reading “New European Joint Programme on Rare Diseases – €100 million allocated to rare disease research”

Posted on December 7, 2018August 13, 2024Categories News 2018

Poster – Diagnostic flowcharts, a tool to disseminate expert knowledge on rare neurological diseases

Poster – Diagnostic flowcharts, a tool to disseminate expert knowledge on rare neurological diseases

Continue reading “Poster – Diagnostic flowcharts, a tool to disseminate expert knowledge on rare neurological diseases”

Posted on December 4, 2018August 13, 2024Categories News 2018

New #EUProtects video released by the European Commission

New #EUProtects video released by the European Commission

Continue reading “New #EUProtects video released by the European Commission”

Posted on December 3, 2018August 13, 2024Categories News 2018

Poster: “CPMS use cases in ERN-RND”

Poster: “CPMS use cases in ERN-RND”

Continue reading “Poster: “CPMS use cases in ERN-RND””

Posted on December 3, 2018August 13, 2024Categories News 2018

Poster: ERN-RND – Survey research priorities

Poster: ERN-RND – Survey research priorities

Continue reading “Poster: ERN-RND – Survey research priorities”

Posted on November 29, 2018August 13, 2024Categories News 2018

Summary report – 4th Conference on European Reference Networks

Summary report – 4th Conference on European Reference Networks

Continue reading “Summary report – 4th Conference on European Reference Networks”

Posted on November 28, 2018August 13, 2024Categories News 2018

New ERN video and flyer for patients and healthcare professionals

New ERN video and flyer for patients and healthcare professionals

Continue reading “New ERN video and flyer for patients and healthcare professionals”

Posted on November 27, 2018August 13, 2024Categories News 2018

Executive Summary – 9th European Conference on Rare Diseases and Orphan Products

Executive Summary – 9th European Conference on Rare Diseases and Orphan Products

Continue reading “Executive Summary – 9th European Conference on Rare Diseases and Orphan Products”

Posted on November 19, 2018August 13, 2024Categories News 2018

ERN-RND Fellowship experience in Tübingen, Germany

ERN-RND Fellowship experience in Tübingen, Germany

Continue reading “ERN-RND Fellowship experience in Tübingen, Germany”

Posted on November 14, 2018August 13, 2024Categories News 2018

ERN-RND has affirmed the value of the Ataxia-UK guideline “Management of the ataxias towards best clinical practice” (Ataxia UK, 3rd edition, July 2016)

ERN-RND has affirmed the value of the Ataxia-UK guideline “Management of the ataxias towards best clinical practice” (Ataxia UK, 3rd edition, July 2016)

Continue reading “ERN-RND has affirmed the value of the Ataxia-UK guideline “Management of the ataxias towards best clinical practice” (Ataxia UK, 3rd edition, July 2016)”

Posted on November 7, 2018August 13, 2024Categories News 2018

ERN-RND Fellowship

ERN-RND Fellowship

Continue reading “ERN-RND Fellowship”

Posted on July 18, 2018August 13, 2024Categories News 2018

ERN-RND Annual Meeting 2018

ERN-RND Annual Meeting 2018

Continue reading “ERN-RND Annual Meeting 2018”

Posted on July 3, 2018August 13, 2024Categories News 2018

Solve-RD project

Solve-RD project

Continue reading “Solve-RD project”

Posted on June 28, 2018February 3, 2025Categories News 2018

MoU signed between ERN-RND & MDS-ES

MoU signed between ERN-RND & MDS-ES

Continue reading “MoU signed between ERN-RND & MDS-ES”

Posted on May 15, 2018August 13, 2024Categories News 2018

@ERN_RND is on Twitter!

@ERN_RND is on Twitter!

Continue reading “@ERN_RND is on Twitter!”

Posted on May 14, 2018August 13, 2024Categories News 2018

Webinar Schedule

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ERN-RND

@ern-rnd.bsky.social

172 Followers 90 Following 219 Posts

European Reference Network for Rare Neurological Diseases (ERN-RND) to improve diagnosis, care & treatment of RND patients.
Free webinars: https://www.ern-rnd.eu/education-training/online-medical-education-for-rare-neurological-diseases/

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    ERN-RND @ern-rnd.bsky.social 3 days

    POSTPONED 💻 Upcoming #webinar on “Social and Lifestyle Issues Related to Ataxias and HSP”
    📅 13th January, NEW DATE: tba
    🗣️ Lotte van de Venis, Radboud University Medical Center, Nijmegen and Lori Renna Linton, Euro-HSP

    Sign up 👉https://t1p.de/5nefhttps://t1p.de/5nef2a href="https://bsky.app/hashtag/webinar">#webinar
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    ERN-RND @ern-rnd.bsky.social 3 weeks

    ⚠️Updated time! No#webinarM CET
    💻 Upcoming #webinar on “The Importance of Genetic Counselling in the Diagnostic of Rare Neurological Disorders”
    📅 9th December
    🗣️ Maria Judit Molnar, Semmelweis University, Buhttps://t1p.de/d825h up 👉https://t1p.de/d825h
    Joint with the and
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    ERN-RND @ern-rnd.bsky.social 3 weeks

    It's today! Join the live stream here: www.brains4brain.eu/eu-activitie...
  • Get to this post

    European Paediatric Neurology Society (EPNS) @epnsnews.bsky.social 3 weeks

    Meet our EPNS Fellows!

    Dr Marie Rohlenová from Czech Rep went to the Raymond Poincaré hospital in Garches, France in 2025

    To read more about Marie's fellowship experience visit - www.epns.info/epns-fellows...

    To join the EPNS visit - www.epns.info/become.../ne...
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    European Paediatric Neurology Society (EPNS) @epnsnews.bsky.social 4 weeks

    FREE EPNS WEBINAR: CLIMATE CHANGE

    Open to all.
    Wed 18 Feb 2026 5PMCET
    Paediatric Neurology in the Anthropocene: Clinical perspectives in a changing climate

    Register us02web.zoom.us/webinar/register/WN_R7B23GXoRpGwwDBtwYXvig#/registration

    www.epns.info/epns-climate-change-webinar/
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    European Paediatric Neurology Society (EPNS) @epnsnews.bsky.social 4 weeks

    STILL TIME TO REGISTER - Next FREE EPNS Educational Webinar! Wednesday, 10 December 2025, 17:00 CET

    Topic: Approach of an Acute Motor Disorder

    Register at -https://us02web.zoom.us/webinar/register/WN_Do6A224CREOj3_YsZu2QSg
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    European Paediatric Neurology Society (EPNS) @epnsnews.bsky.social 4 weeks

    Young EPNS (YEPNS) December Highlights in pediatric neurology: Diagnosis of multiple sclerosis!

    #yepns #epns #pediatricneurology #pediatricneurologyliterature #ms #multiplesclerosis

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ERN-RND European Reference Network for Rare Neurological Diseases

Our mission

ERN-RND aims to support rare neurological patients in Europe in getting a timely and appropriate diagnosis, treatment and care.

ERNs

ERN-RND is one of the 24 European Reference Networks (ERNs) approved by the ERN Board of Member States. For more information about the ERNs and the EU Health strategy, please visit https://ec.europa.eu/health/ern_en

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