News 2020 – Page 4 – ERN-RND | European Reference Network on Rare Neurological Diseases

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ERN-RND @ern-rnd.bsky.social 3 weeks

POSTPONED 💻 Upcoming #webinar on “Social and Lifestyle Issues Related to Ataxias and HSP”
📅 13th January, NEW DATE: tba
🗣️ Lotte van de Venis, Radboud University Medical Center, Nijmegen and Lori Renna Linton, Euro-HSP

Sign up 👉https://t1p.de/5nefhttps://t1p.de/5nef2a href="https://bsky.app/hashtag/webinar">#webinar

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ERN-RND @ern-rnd.bsky.social 3 weeks

POSTPONED 💻 Upcoming #webinar on “Social and Lifestyle Issues Related to Ataxias and HSP”
📅 13th January, NEW DATE: tba
🗣️ Lotte van de Venis, Radboud University Medical Center, Nijmegen and Lori Renna Linton, Euro-HSP

Sign up 👉https://t1p.de/5nefhttps://t1p.de/5nef2a href="https://bsky.app/hashtag/webinar">#webinar

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ERN-RND @ern-rnd.bsky.social 4 weeks

POSTPONED 💻 Upcoming #webinar on “Social and Lifestyle Issues Related to Ataxias and HSP”
📅 13th January, NEW DATE: tba
🗣️ Lotte van de Venis, Radboud University Medical Center, Nijmegen and Lori Renna Linton, Euro-HSP

Sign up 👉https://t1p.de/5nefhttps://t1p.de/5nef2a href="https://bsky.app/hashtag/webinar">#webinar

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ERN-RND @ern-rnd.bsky.social 1 month

POSTPONED 💻 Upcoming #webinar on “Social and Lifestyle Issues Related to Ataxias and HSP”
📅 13th January, NEW DATE: tba
🗣️ Lotte van de Venis, Radboud University Medical Center, Nijmegen and Lori Renna Linton, Euro-HSP

Sign up 👉https://t1p.de/5nefhttps://t1p.de/5nef2a href="https://bsky.app/hashtag/webinar">#webinar

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ERN-RND @ern-rnd.bsky.social 2 months

⚠️Updated time! No#webinarM CET
💻 Upcoming #webinar on “The Importance of Genetic Counselling in the Diagnostic of Rare Neurological Disorders”
📅 9th December
🗣️ Maria Judit Molnar, Semmelweis University, Buhttps://t1p.de/d825h up 👉https://t1p.de/d825h
Joint with the and

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European Paediatric Neurology Society (EPNS) @epnsnews.bsky.social 2 months

STILL TIME TO REGISTER - Next FREE EPNS Educational Webinar! Wednesday, 10 December 2025, 17:00 CET

Topic: Approach of an Acute Motor Disorder

Register at -https://us02web.zoom.us/webinar/register/WN_Do6A224CREOj3_YsZu2QSg

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European Paediatric Neurology Society (EPNS) @epnsnews.bsky.social 2 months

Young EPNS (YEPNS) December Highlights in pediatric neurology: Diagnosis of multiple sclerosis!

#yepns #epns #pediatricneurology #pediatricneurologyliterature #ms #multiplesclerosis

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Category: News 2020

SCA Global Conference 2020 CANCELLED

New EHA video on ERN-RND

ARCA Global Conference 2020 CANCELLED

ERN-RND Patient advocates meeting report, 30 January 2020

ERN-RND Survey: “Research Priorities” for patients

EJP RD calls for funding – ERNs only

Successful ERN-RND Registry Application!

New #RareDiseaseDay 2020 poster available!