ERN-RND Survey: “Research Priorities” for patients

The ERN-RND survey: “Research Priorities” is to be completed by patients & patient representatives (not for professionals) for the rare neurological diseases covered by the network:

  • Ataxia/HSP,
  • Atypical Parkinson’s Disease (MSA, PSP, Genetic Parkinson’s Disease)
  • Frontotemporal dementia
  • Huntington’s disease & choreas
  • Leukodystrophies
  • Dystonia§NBIA/paroxysmal disorders

Results will guide research carried out within ERN-RND in the next 5 years. Deadline to fill in the survey: 8 March.

The survey is available in 5 languages:

Survey in English here.
Enquête en Français ici.
Umfrage auf Deutsch hier.
Sondaggio in Italiano  qui.
Enquête in het Nederlands hier.
Survey in Polish here.

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