New EHA video on ERN-RND

ERN-RND patient advocates visited our coordination office and the University Hospital Tübingen in Germany on 30 January 2020.

The following patient advocates were present:

The European Huntigton Association (EHA) represented by president Astri Arnesen during this visit put together a video featuring interviews of patient advocates explaining why ERNs and ERN-RND are essential for better diagnosis and care of rare disease patients in Europe.

Thank you to the European Huntington Association for this very nice video which you can view on their YouTube channel here.