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ERN-RND | European Reference Network on Rare Neurological Diseases

ERN-RND | European Reference Network on Rare Neurological Diseases

for rare or low prevalence complex diseases

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Category: Past Events

19 October 2021 | ERN-RND webinar “Oligonucleotide therapies: a new class of drugs that allow precise genetic targeting”

19 October 2021 | ERN-RND webinar “Oligonucleotide therapies: a new class of drugs that allow precise genetic targeting”

Continue reading “19 October 2021 | ERN-RND webinar “Oligonucleotide therapies: a new class of drugs that allow precise genetic targeting””

Posted on October 10, 2021June 5, 2024Categories Past Events, Past Events 2021

26 October 2021 | ERN-RND webinar “Pelizaeus-Merzbacher disease and related disorders”

26 October 2021 | ERN-RND webinar “Pelizaeus-Merzbacher disease and related disorders”

Continue reading “26 October 2021 | ERN-RND webinar “Pelizaeus-Merzbacher disease and related disorders””

Posted on October 10, 2021June 5, 2024Categories Past Events, Past Events 2021

18 November 2021 | ERN-RND webinar “Pure autonomic failure: really that pure?”

18 November 2021 | ERN-RND webinar “Pure autonomic failure: really that pure?”

Continue reading “18 November 2021 | ERN-RND webinar “Pure autonomic failure: really that pure?””

Posted on October 10, 2021June 5, 2024Categories Past Events, Past Events 2021

7 October 2021 | ERN-RND webinar “x-linked adrenoleukodystrophies-Update”

7 October 2021 | ERN-RND webinar “x-linked adrenoleukodystrophies-Update”

Continue reading “7 October 2021 | ERN-RND webinar “x-linked adrenoleukodystrophies-Update””

Posted on October 7, 2021June 5, 2024Categories Past Events, Past Events 2021

3-7 October 2021 | XXV World Congress of Neurology

3-7 October 2021 | XXV World Congress of Neurology

Continue reading “3-7 October 2021 | XXV World Congress of Neurology”

Posted on October 7, 2021June 5, 2024Categories Past Events, Past Events 2021

September 2021 | Dystonia Awareness Month

Continue reading “September 2021 | Dystonia Awareness Month”

Posted on September 30, 2021June 5, 2024Categories Past Events, Past Events 2021

28 September 2021 | ERN-RND webinar “Treatable dystonias & dystonia in inborn errors of metabolism”

28 September 2021 | ERN-RND webinar “Treatable dystonias & dystonia in inborn errors of metabolism”

Continue reading “28 September 2021 | ERN-RND webinar “Treatable dystonias & dystonia in inborn errors of metabolism””

Posted on September 28, 2021June 5, 2024Categories Past Events, Past Events 2021

17-22 September 2021 | MDS Virtual Congress 2021

17-22 September 2021 | MDS Virtual Congress 2021

Continue reading “17-22 September 2021 | MDS Virtual Congress 2021”

Posted on September 22, 2021June 5, 2024Categories Past Events, Past Events 2021

14 September 2021 | ERN-RND webinar “Genetic forms of Parkinson’s disease”

14 September 2021 | ERN-RND webinar “Genetic forms of Parkinson’s disease”

Continue reading “14 September 2021 | ERN-RND webinar “Genetic forms of Parkinson’s disease””

Posted on September 14, 2021June 5, 2024Categories Past Events, Past Events 2021

9-11 September 2021 | EHDN plenary meeting

9-11 September 2021 | EHDN plenary meeting

Continue reading “9-11 September 2021 | EHDN plenary meeting”

Posted on September 11, 2021June 5, 2024Categories Past Events, Past Events 2021

4 September 2021 | Dystonia Europe Annual Conference – Dystonia Day

4 September 2021 | Dystonia Europe Annual Conference – Dystonia Day

Continue reading “4 September 2021 | Dystonia Europe Annual Conference – Dystonia Day”

Posted on September 4, 2021June 5, 2024Categories Past Events, Past Events 2021

6 July 2021 | ERN-RND webinar “Speech as a biomarker in ataxia: What can it tell us and how should we use it?”

6 July 2021 | ERN-RND webinar “Speech as a biomarker in ataxia: What can it tell us and how should we use it?”

Continue reading “6 July 2021 | ERN-RND webinar “Speech as a biomarker in ataxia: What can it tell us and how should we use it?””

Posted on July 6, 2021June 5, 2024Categories Past Events, Past Events 2021

30 June – 2 July 2021 | ERN-RND Annual Meeting

30 June – 2 July 2021 | ERN-RND Annual Meeting
Continue reading “30 June – 2 July 2021 | ERN-RND Annual Meeting”
Posted on July 1, 2021June 5, 2024Categories Past Events, Past Events 2021

19-22 June 2021 | EAN Congress 2021

19-22 June 2021 | EAN Congress 2021

Continue reading “19-22 June 2021 | EAN Congress 2021”

Posted on June 22, 2021June 5, 2024Categories Past Events, Past Events 2021

15 June 2021 | ERN-RND webinar “Update Metachromatic Leukodystrophy”

15 June 2021 | ERN-RND webinar “Update Metachromatic Leukodystrophy”

Continue reading “15 June 2021 | ERN-RND webinar “Update Metachromatic Leukodystrophy””

Posted on June 15, 2021June 5, 2024Categories Past Events, Past Events 2021

8 June 2021 | ERN-RND webinar “MRI pattern recognition in leukodystrophies”

8 June 2021 | ERN-RND webinar “MRI pattern recognition in leukodystrophies”

Continue reading “8 June 2021 | ERN-RND webinar “MRI pattern recognition in leukodystrophies””

Posted on June 8, 2021June 5, 2024Categories Past Events, Past Events 2021

8 June 2021 | Value of Treatment 2 Synthesis Meeting

8 June 2021 | Value of Treatment 2 Synthesis Meeting

Continue reading “8 June 2021 | Value of Treatment 2 Synthesis Meeting”

Posted on June 8, 2021June 5, 2024Categories Past Events, Past Events 2021

27-28 May 2021 | ERICA kick-off meeting & first General Assembly

27-28 May 2021 | ERICA kick-off meeting & first General Assembly

Continue reading “27-28 May 2021 | ERICA kick-off meeting & first General Assembly”

Posted on May 28, 2021June 5, 2024Categories Past Events, Past Events 2021

18 May 2021 | ERN-RND webinar “Benign hereditary choreas” (paediatric focus)

18 May 2021 | ERN-RND webinar “Benign hereditary choreas” (paediatric focus)

Continue reading “18 May 2021 | ERN-RND webinar “Benign hereditary choreas” (paediatric focus)”

Posted on May 18, 2021June 5, 2024Categories Past Events, Past Events 2021

7 May 2021 | ERN-RND webinar “Presenting the new CPMS functionalities and the principle of e-consultations”

7 May 2021 | ERN-RND webinar “Presenting the new CPMS functionalities and the principle of e-consultations”

Continue reading “7 May 2021 | ERN-RND webinar “Presenting the new CPMS functionalities and the principle of e-consultations””

Posted on May 7, 2021June 5, 2024Categories Past Events, Past Events 2021

4 May 2021 | ERN-RND webinar “Better Conversations -Communication Partner Training for language led dementias”

4 May 2021 | ERN-RND webinar “Better Conversations -Communication Partner Training for language led dementias”

Continue reading “4 May 2021 | ERN-RND webinar “Better Conversations -Communication Partner Training for language led dementias””

Posted on May 4, 2021June 5, 2024Categories Past Events, Past Events 2021

20 April 2021 | ERN-RND webinar “Approach to the patient with non-HD chorea”

20 April 2021 | ERN-RND webinar “Approach to the patient with non-HD chorea”

Continue reading “20 April 2021 | ERN-RND webinar “Approach to the patient with non-HD chorea””

Posted on April 20, 2021June 5, 2024Categories Past Events, Past Events 2021

12-15 April 2021 | International BNA2021 Festival of Neuroscience

12-15 April 2021 | International BNA2021 Festival of Neuroscience

Continue reading “12-15 April 2021 | International BNA2021 Festival of Neuroscience”

Posted on April 15, 2021June 5, 2024Categories Past Events, Past Events 2021

13 April 2021 | ERN-RND webinar “MR Biomarkers in Spinocerebellar Ataxias”

13 April 2021 | ERN-RND webinar “MR Biomarkers in Spinocerebellar Ataxias”

Continue reading “13 April 2021 | ERN-RND webinar “MR Biomarkers in Spinocerebellar Ataxias””

Posted on April 13, 2021June 5, 2024Categories Past Events, Past Events 2021

26 March 2021 | EHA webinar “GENERATION HD1 – what happened and what does it mean?”

26 March 2021 | EHA webinar “GENERATION HD1 – what happened and what does it mean?”
Continue reading “26 March 2021 | EHA webinar “GENERATION HD1 – what happened and what does it mean?””
Posted on March 26, 2021June 5, 2024Categories Past Events, Past Events 2021

23 March 2021 | ERN-RND webinar “Challenges in Frontotemporal Dementia: clinical, genetic and pathological heterogeneity”

23 March 2021 | ERN-RND webinar “Challenges in Frontotemporal Dementia: clinical, genetic and pathological heterogeneity”

Continue reading “23 March 2021 | ERN-RND webinar “Challenges in Frontotemporal Dementia: clinical, genetic and pathological heterogeneity””

Posted on March 23, 2021June 5, 2024Categories Past Events, Past Events 2021

23 March 2021 | 6ème Journée Nationale BRAIN-TEAM

23 March 2021 | 6ème Journée Nationale BRAIN-TEAM

Continue reading “23 March 2021 | 6ème Journée Nationale BRAIN-TEAM”

Posted on March 23, 2021June 5, 2024Categories Past Events, Past Events 2021

15-21 March 2021 | Brain Awareness Week

15-21 March 2021 | Brain Awareness Week

Continue reading “15-21 March 2021 | Brain Awareness Week”

Posted on March 21, 2021June 5, 2024Categories Past Events, Past Events 2021

13-14 March 2021 | HDYO’s International Young Adult Virtual Congress

13-14 March 2021 | HDYO’s International Young Adult Virtual Congress

Continue reading “13-14 March 2021 | HDYO’s International Young Adult Virtual Congress”

Posted on March 14, 2021June 5, 2024Categories Past Events, Past Events 2021

1-2 March 2021 | 1st International Conference on Rare Diseases “Building a Pathway from Diagnosis to Access”

1-2 March 2021 | 1st International Conference on Rare Diseases “Building a Pathway from Diagnosis to Access”

Continue reading “1-2 March 2021 | 1st International Conference on Rare Diseases “Building a Pathway from Diagnosis to Access””

Posted on March 2, 2021June 5, 2024Categories Past Events, Past Events 2021

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Webinar Schedule

Latest News

  • Meet us at EAN2025

    June 11, 2025
    Are you at this year’s EAN Congress in Helsinki? Then come and visit us at our booth (N21) in the …read more »
  • Review on DBS for Dystonia

    June 11, 2025
    Despite considerable achievements in genetics in dystonias, their response to possible treatment such as Deep Brain Stimulation (DBS) remains to …read more »
  • John Gerbild elected as Board Director for EURORDIS

    May 19, 2025
    We are happy to announce that our patient advocate John Gerbild (representative for: Ataxia/HSP) is now a newly elected Board …read more »

Find us on Bluesky

ERN-RND

@ern-rnd.bsky.social

145 Followers 84 Following 121 Posts

European Reference Network for Rare Neurological Diseases (ERN-RND) to improve diagnosis, care & treatment of RND patients.
Free webinars: https://www.ern-rnd.eu/education-training/webinars/

  • Get to this post

    ERN-RND @ern-rnd.bsky.social 2 hours

    #FriedreichAtaxia (FA) is progressive, meaning what you can do keeps changing. When you think you have gotten to understand FA, something new happens - says Brona Kearney, who has been living with FA for the past 23 years.
    How does this disease affect a patient's life? This is Brona's story.
  • Get to this post

    EHDN News @ehdn-news.bsky.social 5 hours

    Listen to our latest podcast! www.youtube.com/watch?v=fEg4...
  • Get to this post

    EHDN News @ehdn-news.bsky.social 5 hours

    Our 55th issue opens with a tribute to our much-loved and sadly missed colleague, Tim McLean. Highlights include a call to action from EHDN’s HEATED task force, clinical trial updates, and an interview with Daniel Claassen, Chief Executive Officer @ Huntington Study Group: ehdn.org/wp-content/u...
  • Get to this post

    ERN-RND @ern-rnd.bsky.social 23 hours

    #WorldBrainDay is coming up on July 22! We asked our network: "If you could change one thing in the health care system for Rare Neurological Diseases what would that be and why?"

    This is what our patient representative Mary Kearney (Friedreich's #Ataxia) said.

    #WorldBrainDay2025 #WorldBrainDay25
  • Get to this post

    ERN EuroBloodNet @erneurobloodnet.bsky.social 6 days

    💻​Don't miss the ERN-EuroBloodNet #ThursdayWebinar session on "Gene therapy for Pyruvate Kinase Deficiency and Congenital Dyserythropoietic Anemia Type II”!

    🗓️3rd July - 17:00h CEST.
    👉Registrations: eurobloodnet.eu/education/th...

    #ERNeu #ERNs #HealthUnion #EU4Health #ShareCareCure #hematology
  • Get to this post

    ERN-RND @ern-rnd.bsky.social 1 week

    Bye bye #EAN2025: meeting members and partners, introducing pur new postgraduate curriculum (hosted on eanCampus), talking about future projects, planning new cooperations - we had a great time in Helsinki and are looking forward to the #EAN2026 In Geneva! #EAN2026
  • Get to this post

    ERN-RND @ern-rnd.bsky.social 1 week

    EAN2025 - #PublicBrainHealthDay #BrainHealthMission

    I"f you could change ONE THING in the health care system for rare neurological diseases - what do you think is needed most and why?"

    This is what our coordinator Holm Graessner would change first:

    #ToBeContinued - more to come soon! #ToBeContinued

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ERN-RND European Reference Network for Rare Neurological Diseases

Our mission

ERN-RND aims to support rare neurological patients in Europe in getting a timely and appropriate diagnosis, treatment and care.

ERNs

ERN-RND is one of the 24 European Reference Networks (ERNs) approved by the ERN Board of Member States. For more information about the ERNs and the EU Health strategy, please visit https://ec.europa.eu/health/ern_en

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