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ERN-RND | European Reference Network on Rare Neurological Diseases

ERN-RND | European Reference Network on Rare Neurological Diseases

for rare or low prevalence complex diseases

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Category: Past Events 2020

3 December 2020 | Dystonia Europe webinar “Botulinum toxin therapy of dystonia: what is new?”

3 December 2020 | Dystonia Europe webinar “Botulinum toxin therapy of dystonia: what is new?”

Continue reading “3 December 2020 | Dystonia Europe webinar “Botulinum toxin therapy of dystonia: what is new?””

Posted on December 3, 2020June 5, 2024Categories Past Events, Past Events 2020

3 December 2020 | Round table: providing better access to care and treatment for HD & RND patients

3 December 2020 | Round table: providing better access to care and treatment for HD & RND patients

Continue reading “3 December 2020 | Round table: providing better access to care and treatment for HD & RND patients”

Posted on December 3, 2020June 5, 2024Categories Past Events, Past Events 2020

1 December 2020 | ERN-RND webinar “Functional movement disorders: a diagnostic guide”

1 December 2020 | ERN-RND webinar “Functional movement disorders: a diagnostic guide”

Continue reading “1 December 2020 | ERN-RND webinar “Functional movement disorders: a diagnostic guide””

Posted on December 1, 2020June 5, 2024Categories Past Events, Past Events 2020

24 November 2020 | ERN-RND webinar “Development of Sara-home: a novel assessment tool for patients with ataxia “

24 November 2020 | ERN-RND webinar “Development of Sara-home: a novel assessment tool for patients with ataxia “

Continue reading “24 November 2020 | ERN-RND webinar “Development of Sara-home: a novel assessment tool for patients with ataxia “”

Posted on November 24, 2020June 5, 2024Categories Past Events, Past Events 2020

24 November 2020 | Annual meeting for patient organisations BRAIN-TEAM

24 November 2020 | Annual meeting for patient organisations BRAIN-TEAM

Continue reading “24 November 2020 | Annual meeting for patient organisations BRAIN-TEAM”

Posted on November 24, 2020June 5, 2024Categories Past Events, Past Events 2020

19 November 2020 | EURO-NMD webinar “Congenital Myasthenia Syndrome – an update”

19 November 2020 | EURO-NMD webinar “Congenital Myasthenia Syndrome – an update”

Continue reading “19 November 2020 | EURO-NMD webinar “Congenital Myasthenia Syndrome – an update””

Posted on November 19, 2020June 5, 2024Categories Past Events, Past Events 2020

18 November 2020 | ERN-RND virtual Board Meeting (fall)

18 November 2020 | ERN-RND virtual Board Meeting (fall)

Continue reading “18 November 2020 | ERN-RND virtual Board Meeting (fall)”

Posted on November 18, 2020June 5, 2024Categories Past Events, Past Events 2020

10 November 2020 | ERN-RND webinar “Rehabilitation in ataxia: current evidence & practice”

10 November 2020 | ERN-RND webinar “Rehabilitation in ataxia: current evidence & practice”

Continue reading “10 November 2020 | ERN-RND webinar “Rehabilitation in ataxia: current evidence & practice””

Posted on November 10, 2020June 5, 2024Categories Past Events, Past Events 2020

3 November 2020 | ERN-RND webinar “Non-invasive stimulation for ataxias”

3 November 2020 | ERN-RND webinar “Non-invasive stimulation for ataxias”

Continue reading “3 November 2020 | ERN-RND webinar “Non-invasive stimulation for ataxias””

Posted on November 3, 2020June 5, 2024Categories Past Events, Past Events 2020

29 October 2020 | EURO-NMD webinar “Personalized care for patients with ALS: ALS Home monitoring & coaching”

29 October 2020 | EURO-NMD webinar “Personalized care for patients with ALS: ALS Home monitoring & coaching”

Continue reading “29 October 2020 | EURO-NMD webinar “Personalized care for patients with ALS: ALS Home monitoring & coaching””

Posted on October 29, 2020June 5, 2024Categories Past Events, Past Events 2020

19-21 October 2020 | SCA & ARCA Global Conference

19-21 October 2020 | SCA & ARCA Global Conference

Continue reading “19-21 October 2020 | SCA & ARCA Global Conference”

Posted on October 21, 2020June 5, 2024Categories Past Events, Past Events 2020

13 October 2020 | ERN-RND webinar “diagnostic algorithm for childhood onset chorea”

13 October 2020 | ERN-RND webinar “diagnostic algorithm for childhood onset chorea”

Continue reading “13 October 2020 | ERN-RND webinar “diagnostic algorithm for childhood onset chorea””

Posted on October 13, 2020June 5, 2024Categories Past Events, Past Events 2020

12 October 2020 | EJP RD Selection of Topics for Research Training Workshops call DEADLINE

12 October 2020 | EJP RD Selection of Topics for Research Training Workshops call DEADLINE

Continue reading “12 October 2020 | EJP RD Selection of Topics for Research Training Workshops call DEADLINE”

Posted on October 12, 2020June 5, 2024Categories Past Events, Past Events 2020

7-10 0ctober 2020 | 11th World Congress of Neurorehabilitation

7-10 0ctober 2020 | 11th World Congress of Neurorehabilitation

Continue reading “7-10 0ctober 2020 | 11th World Congress of Neurorehabilitation”

Posted on October 10, 2020June 5, 2024Categories Past Events, Past Events 2020

6 October 2020 | ERN-RND webinar “Treatment of spasticity in HSP and leukodystrophies”

6 October 2020 | ERN-RND webinar “Treatment of spasticity in HSP and leukodystrophies”

Continue reading “6 October 2020 | ERN-RND webinar “Treatment of spasticity in HSP and leukodystrophies””

Posted on October 6, 2020June 5, 2024Categories Past Events, Past Events 2020

September 2020 | Dystonia Awareness Month

September 2020 | Dystonia Awareness Month

Continue reading “September 2020 | Dystonia Awareness Month”

Posted on September 30, 2020June 5, 2024Categories Past Events, Past Events 2020

29 September 2020 | ERN-RND webinar “How can we develop and implement evidence based rehabilitation in rare disorders?”

29 September 2020 | ERN-RND webinar “How can we develop and implement evidence based rehabilitation in rare disorders?”

Continue reading “29 September 2020 | ERN-RND webinar “How can we develop and implement evidence based rehabilitation in rare disorders?””

Posted on September 29, 2020June 5, 2024Categories Past Events, Past Events 2020

25 September | International Ataxia Awareness Day (IAAW)

25 September | International Ataxia Awareness Day (IAAW)
Posted on September 25, 2020June 5, 2024Categories Past Events, Past Events 2020

17 September 2020 | EURO-NMD webinar “the basics of genetic approaches for NMDs – using DMD as a paradigm”

17 September 2020 | EURO-NMD webinar “the basics of genetic approaches for NMDs – using DMD as a paradigm”

Continue reading “17 September 2020 | EURO-NMD webinar “the basics of genetic approaches for NMDs – using DMD as a paradigm””

Posted on September 17, 2020June 5, 2024Categories Past Events, Past Events 2020

12-16 September 2020 | MDS Virtual Congress

12-16 September 2020 | MDS Virtual Congress

Continue reading “12-16 September 2020 | MDS Virtual Congress”

Posted on September 16, 2020June 5, 2024Categories Past Events, Past Events 2020

15 September 2020 | ERN-RND webinar “A challenge in neurogenetics: Huntington disease in kids”

15 September 2020 | ERN-RND webinar “A challenge in neurogenetics: Huntington disease in kids”

Continue reading “15 September 2020 | ERN-RND webinar “A challenge in neurogenetics: Huntington disease in kids””

Posted on September 15, 2020June 5, 2024Categories Past Events, Past Events 2020

11 September 2020 | EHDN’s Bridging Event 2020

11 September 2020 | EHDN’s Bridging Event 2020

Continue reading “11 September 2020 | EHDN’s Bridging Event 2020”

Posted on September 11, 2020June 5, 2024Categories Past Events, Past Events 2020

10 September 2020 | ERN-RND webinar “How to assess and manage spastic gait in rare diseases?”

10 September 2020 | ERN-RND webinar “How to assess and manage spastic gait in rare diseases?”

Continue reading “10 September 2020 | ERN-RND webinar “How to assess and manage spastic gait in rare diseases?””

Posted on September 10, 2020June 5, 2024Categories Past Events, Past Events 2020

8 September 2020 | ERN-RND webinar “Semantic variant of primary progressive aphasia”

8 September 2020 | ERN-RND webinar “Semantic variant of primary progressive aphasia”

Continue reading “8 September 2020 | ERN-RND webinar “Semantic variant of primary progressive aphasia””

Posted on September 8, 2020June 5, 2024Categories Past Events, Past Events 2020

8 September 2020 | 4th EAN Task Force for Rare Neurological Diseases Teaching Course

8 September 2020 | 4th EAN Task Force for Rare Neurological Diseases Teaching Course

Continue reading “8 September 2020 | 4th EAN Task Force for Rare Neurological Diseases Teaching Course”

Posted on September 8, 2020June 5, 2024Categories Past Events, Past Events 2020

1 December 2020 | ERN-RND webinar “Functional movement disorders: a diagnostic guide”

1 December 2020 | ERN-RND webinar “Functional movement disorders: a diagnostic guide”

Continue reading “1 December 2020 | ERN-RND webinar “Functional movement disorders: a diagnostic guide””

Posted on September 1, 2020June 5, 2024Categories Past Events, Past Events 2020

22 July 2020 | World Brain Day

22 July 2020 | World Brain Day

Continue reading “22 July 2020 | World Brain Day”

Posted on July 22, 2020June 5, 2024Categories Past Events, Past Events 2020

11-15 July 2020 | (Virtual) 12th FENS Forum of Neuroscience

11-15 July 2020 | (Virtual) 12th FENS Forum of Neuroscience

Continue reading “11-15 July 2020 | (Virtual) 12th FENS Forum of Neuroscience”

Posted on July 15, 2020June 5, 2024Categories Past Events, Past Events 2020

14 July 2020 | ERN-RND webinar “Gait rehabilitation in people with Hereditary Spastic Paraplegia & Respiratory physiotherapy in parkinson’s plus syndromes”

14 July 2020 | ERN-RND webinar “Gait rehabilitation in people with Hereditary Spastic Paraplegia & Respiratory physiotherapy in parkinson’s plus syndromes”

Continue reading “14 July 2020 | ERN-RND webinar “Gait rehabilitation in people with Hereditary Spastic Paraplegia & Respiratory physiotherapy in parkinson’s plus syndromes””

Posted on July 14, 2020June 5, 2024Categories Past Events, Past Events 2020

9 July 2020 | ERN-RND webinar “Environmental modifiers in Hereditary Spastic Paraplegia”

9 July 2020 | ERN-RND webinar “Environmental modifiers in Hereditary Spastic Paraplegia”

Continue reading “9 July 2020 | ERN-RND webinar “Environmental modifiers in Hereditary Spastic Paraplegia””

Posted on July 9, 2020June 5, 2024Categories Past Events, Past Events 2020

Posts pagination

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Webinar Schedule

Latest News

  • ePAG visit at Children’s Hospital Sant Joan de Déu, Barcelona

    July 7, 2025
    Having a rare disease means spending a lot of time around doctors and hospitals. Places, that even adults will not …read more »
  • Meet us at EAN2025

    June 11, 2025
    Are you at this year’s EAN Congress in Helsinki? Then come and visit us at our booth (N21) in the …read more »
  • Review on DBS for Dystonia

    June 11, 2025
    Despite considerable achievements in genetics in dystonias, their response to possible treatment such as Deep Brain Stimulation (DBS) remains to …read more »

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ERN-RND

@ern-rnd.bsky.social

153 Followers 85 Following 141 Posts

European Reference Network for Rare Neurological Diseases (ERN-RND) to improve diagnosis, care & treatment of RND patients.
Free webinars: https://www.ern-rnd.eu/education-training/online-medical-education-for-rare-neurological-diseases/

  • Get to this post

    ERN-RND @ern-rnd.bsky.social 15 hours

    Movement Disorders affect also children and therefore paediatric scales are needed - but which one to use when, what treatment in which frequency? A standardization is needed. Learn more in our interview with ERN-RND clinician Juan Dario Ortigoza Escobar www.youtube.com/watch?v=k46u...
  • Get to this post

    European Paediatric Neurology Society (EPNS) @epnsnews.bsky.social 3 days

    We are delighted to announce that the application period for EPNS Visiting Teacher 2026 is now open!

    For more information visit: epns.info/epns-visitin...
  • Get to this post

    ERN-RND @ern-rnd.bsky.social 1 week

    #WorldBrainDay - There are many gaps in the European #Healthcare systems for rare neurological diseases - but if you could change only #OneThing to make it better, what would you choose? Find out what our clinicians, patient advocates and patient organizations would do!
  • Get to this post

    ERN-RND @ern-rnd.bsky.social 1 week

    One more day till #WorldBrainDay: "What would you change in the health care system for rare neurological diseases if you could change only one thing to make it better?"

    This is what ERN-RND clinician Rebecca Schuele would change: https://f.mtr.cool/mqrhizkhjs

    #WorldBrainDay2025 <https://f.mtr.cool/mqrhizkhjstag/BrainHealth">#BrainHealth
  • Get to this post

    ERN-RND @ern-rnd.bsky.social 2 weeks

    22 July is #WorldBrainDay: "What would you change in the health care system for rare neurological diseases if you could change only one thing to make it better?"

    This is what ERN-RND clinician Vassilis Constantinides would change: https://f.mtr.cool/kkmcrksprq

    #WorldBrainDay2025 https://f.mtr.cool/kkmcrksprqshtag/BrainHealth">#BrainHealth
  • Get to this post

    ERN-RND @ern-rnd.bsky.social 2 weeks

    5 more days till #WorldBrainDay: "What would you change in the health care system for rare neurological diseases if you could change only one thing to make it better?"
    This is what ERN-RND clinician Jana Dominguez Carral from wo#WorldBrainDay:
  • Get to this post

    ERN-RND @ern-rnd.bsky.social 2 weeks

    #WorldBrainDay is coming up on July 22! "What would you change in the health care system for rare neurological diseases if you could change only one thing to make it better?"

    This is what ERN-RND clinician David Gomez would change first: www.youtube.com/watch?v=ukLl...
    #WorldBrainDay2025

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ERN-RND European Reference Network for Rare Neurological Diseases

Our mission

ERN-RND aims to support rare neurological patients in Europe in getting a timely and appropriate diagnosis, treatment and care.

ERNs

ERN-RND is one of the 24 European Reference Networks (ERNs) approved by the ERN Board of Member States. For more information about the ERNs and the EU Health strategy, please visit https://ec.europa.eu/health/ern_en

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