Skip to content
  • Facebook
  • LinkedIn
  • Bluesky
  • YouTube
ERN-RND | European Reference Network on Rare Neurological Diseases

ERN-RND | European Reference Network on Rare Neurological Diseases

for rare or low prevalence complex diseases

Members Area
  • Home
  • About us
    • What is an ERN
    • Cross border healthcare
    • What is ERN-RND
    • Objectives of ERN-RND
    • Diseases Groups Covered
    • ERN-RND coordinators
    • ERN-RND coordination office
    • ERN-RND board
    • Patient advocates
    • Work Packages
    • Monitoring
    • Publications Acknowledging ERN-RND
  • Expert Centres
    • … for rare neurological diseases
    • Full members and affiliated partners
    • How to contact expert centres
    • Supporting partners
    • Map of expert centers
    • Overview ERNs
  • Online case discussion with CPMS
    • What is the CPMS
    • Who can use it
    • How to use it
    • MLD Treatment eligibility panel
    • Neuroradiology Expert Advice Panel
    • Multidisciplinary Board for DBS in Dystonia
    • CPMS Helpdesk
    • Videos
    • Downloads
    • Websites
  • Disease Knowledge
    • Cerebellar Ataxia & Hereditary Spastic Paraplegias (HSPs)
    • Chorea & Huntington’s disease
    • Dystonias, NBIA and Paroxysmal Disorders
    • Frontotemporal dementia
    • Leukodystrophies
    • Atypical Parkinsonism: MSA, PSP & Genetic Parkinson’s Disease
    • ERN-RND Patient Journeys
  • Education & Training
    • Online Medical Education
    • upcoming Webinars
    • Training Resources
    • Webinars from Partners
    • Winter School
  • ERN-RND Registry
    • ERN-RND registry objectives
    • Disease Groups covered
    • Data Submission
      • Data Analysis 2023
    • Data Access
    • Contact
  • Collab­ora­tions
    • Projects
    • Partner organisations
    • Past projects
      • EJP RD
        • EJP RD in a nutshell
        • What is EJP RD?
        • EJP RD mission & goals
        • EJP RD & ERNs
      • Solve-RD
        • What is Solve-RD?
        • Main Objectives
        • Implementation Steps
        • Analysis
      • Value of Treatment (VoT) project
        • VoT project coordinator
        • Objectives of the VoT project
        • ERN-RND in VoT2
        • Academic partners in VoT2
        • Further reading
  • News & Events
    • News
    • Events
    • Newsletter
    • Meet the members
  • Contact us
  • Facebook
  • LinkedIn
  • Bluesky
  • YouTube

Category: Past Events 2020

3 December 2020 | Round table: providing better access to care and treatment for HD & RND patients

3 December 2020 | Round table: providing better access to care and treatment for HD & RND patients

Continue reading “3 December 2020 | Round table: providing better access to care and treatment for HD & RND patients”

Posted on December 3, 2020June 5, 2024Categories Past Events, Past Events 2020

3 December 2020 | Dystonia Europe webinar “Botulinum toxin therapy of dystonia: what is new?”

3 December 2020 | Dystonia Europe webinar “Botulinum toxin therapy of dystonia: what is new?”

Continue reading “3 December 2020 | Dystonia Europe webinar “Botulinum toxin therapy of dystonia: what is new?””

Posted on December 3, 2020June 5, 2024Categories Past Events, Past Events 2020

1 December 2020 | ERN-RND webinar “Functional movement disorders: a diagnostic guide”

1 December 2020 | ERN-RND webinar “Functional movement disorders: a diagnostic guide”

Continue reading “1 December 2020 | ERN-RND webinar “Functional movement disorders: a diagnostic guide””

Posted on December 1, 2020June 5, 2024Categories Past Events, Past Events 2020

24 November 2020 | Annual meeting for patient organisations BRAIN-TEAM

24 November 2020 | Annual meeting for patient organisations BRAIN-TEAM

Continue reading “24 November 2020 | Annual meeting for patient organisations BRAIN-TEAM”

Posted on November 24, 2020June 5, 2024Categories Past Events, Past Events 2020

24 November 2020 | ERN-RND webinar “Development of Sara-home: a novel assessment tool for patients with ataxia “

24 November 2020 | ERN-RND webinar “Development of Sara-home: a novel assessment tool for patients with ataxia “

Continue reading “24 November 2020 | ERN-RND webinar “Development of Sara-home: a novel assessment tool for patients with ataxia “”

Posted on November 24, 2020June 5, 2024Categories Past Events, Past Events 2020

19 November 2020 | EURO-NMD webinar “Congenital Myasthenia Syndrome – an update”

19 November 2020 | EURO-NMD webinar “Congenital Myasthenia Syndrome – an update”

Continue reading “19 November 2020 | EURO-NMD webinar “Congenital Myasthenia Syndrome – an update””

Posted on November 19, 2020June 5, 2024Categories Past Events, Past Events 2020

18 November 2020 | ERN-RND virtual Board Meeting (fall)

18 November 2020 | ERN-RND virtual Board Meeting (fall)

Continue reading “18 November 2020 | ERN-RND virtual Board Meeting (fall)”

Posted on November 18, 2020June 5, 2024Categories Past Events, Past Events 2020

10 November 2020 | ERN-RND webinar “Rehabilitation in ataxia: current evidence & practice”

10 November 2020 | ERN-RND webinar “Rehabilitation in ataxia: current evidence & practice”

Continue reading “10 November 2020 | ERN-RND webinar “Rehabilitation in ataxia: current evidence & practice””

Posted on November 10, 2020June 5, 2024Categories Past Events, Past Events 2020

3 November 2020 | ERN-RND webinar “Non-invasive stimulation for ataxias”

3 November 2020 | ERN-RND webinar “Non-invasive stimulation for ataxias”

Continue reading “3 November 2020 | ERN-RND webinar “Non-invasive stimulation for ataxias””

Posted on November 3, 2020June 5, 2024Categories Past Events, Past Events 2020

29 October 2020 | EURO-NMD webinar “Personalized care for patients with ALS: ALS Home monitoring & coaching”

29 October 2020 | EURO-NMD webinar “Personalized care for patients with ALS: ALS Home monitoring & coaching”

Continue reading “29 October 2020 | EURO-NMD webinar “Personalized care for patients with ALS: ALS Home monitoring & coaching””

Posted on October 29, 2020June 5, 2024Categories Past Events, Past Events 2020

19-21 October 2020 | SCA & ARCA Global Conference

19-21 October 2020 | SCA & ARCA Global Conference

Continue reading “19-21 October 2020 | SCA & ARCA Global Conference”

Posted on October 21, 2020June 5, 2024Categories Past Events, Past Events 2020

13 October 2020 | ERN-RND webinar “diagnostic algorithm for childhood onset chorea”

13 October 2020 | ERN-RND webinar “diagnostic algorithm for childhood onset chorea”

Continue reading “13 October 2020 | ERN-RND webinar “diagnostic algorithm for childhood onset chorea””

Posted on October 13, 2020June 5, 2024Categories Past Events, Past Events 2020

12 October 2020 | EJP RD Selection of Topics for Research Training Workshops call DEADLINE

12 October 2020 | EJP RD Selection of Topics for Research Training Workshops call DEADLINE

Continue reading “12 October 2020 | EJP RD Selection of Topics for Research Training Workshops call DEADLINE”

Posted on October 12, 2020June 5, 2024Categories Past Events, Past Events 2020

7-10 0ctober 2020 | 11th World Congress of Neurorehabilitation

7-10 0ctober 2020 | 11th World Congress of Neurorehabilitation

Continue reading “7-10 0ctober 2020 | 11th World Congress of Neurorehabilitation”

Posted on October 10, 2020June 5, 2024Categories Past Events, Past Events 2020

6 October 2020 | ERN-RND webinar “Treatment of spasticity in HSP and leukodystrophies”

6 October 2020 | ERN-RND webinar “Treatment of spasticity in HSP and leukodystrophies”

Continue reading “6 October 2020 | ERN-RND webinar “Treatment of spasticity in HSP and leukodystrophies””

Posted on October 6, 2020June 5, 2024Categories Past Events, Past Events 2020

September 2020 | Dystonia Awareness Month

September 2020 | Dystonia Awareness Month

Continue reading “September 2020 | Dystonia Awareness Month”

Posted on September 30, 2020June 5, 2024Categories Past Events, Past Events 2020

29 September 2020 | ERN-RND webinar “How can we develop and implement evidence based rehabilitation in rare disorders?”

29 September 2020 | ERN-RND webinar “How can we develop and implement evidence based rehabilitation in rare disorders?”

Continue reading “29 September 2020 | ERN-RND webinar “How can we develop and implement evidence based rehabilitation in rare disorders?””

Posted on September 29, 2020June 5, 2024Categories Past Events, Past Events 2020

25 September | International Ataxia Awareness Day (IAAW)

25 September | International Ataxia Awareness Day (IAAW)
Posted on September 25, 2020June 5, 2024Categories Past Events, Past Events 2020

17 September 2020 | EURO-NMD webinar “the basics of genetic approaches for NMDs – using DMD as a paradigm”

17 September 2020 | EURO-NMD webinar “the basics of genetic approaches for NMDs – using DMD as a paradigm”

Continue reading “17 September 2020 | EURO-NMD webinar “the basics of genetic approaches for NMDs – using DMD as a paradigm””

Posted on September 17, 2020June 5, 2024Categories Past Events, Past Events 2020

12-16 September 2020 | MDS Virtual Congress

12-16 September 2020 | MDS Virtual Congress

Continue reading “12-16 September 2020 | MDS Virtual Congress”

Posted on September 16, 2020June 5, 2024Categories Past Events, Past Events 2020

15 September 2020 | ERN-RND webinar “A challenge in neurogenetics: Huntington disease in kids”

15 September 2020 | ERN-RND webinar “A challenge in neurogenetics: Huntington disease in kids”

Continue reading “15 September 2020 | ERN-RND webinar “A challenge in neurogenetics: Huntington disease in kids””

Posted on September 15, 2020June 5, 2024Categories Past Events, Past Events 2020

11 September 2020 | EHDN’s Bridging Event 2020

11 September 2020 | EHDN’s Bridging Event 2020

Continue reading “11 September 2020 | EHDN’s Bridging Event 2020”

Posted on September 11, 2020June 5, 2024Categories Past Events, Past Events 2020

10 September 2020 | ERN-RND webinar “How to assess and manage spastic gait in rare diseases?”

10 September 2020 | ERN-RND webinar “How to assess and manage spastic gait in rare diseases?”

Continue reading “10 September 2020 | ERN-RND webinar “How to assess and manage spastic gait in rare diseases?””

Posted on September 10, 2020June 5, 2024Categories Past Events, Past Events 2020

8 September 2020 | ERN-RND webinar “Semantic variant of primary progressive aphasia”

8 September 2020 | ERN-RND webinar “Semantic variant of primary progressive aphasia”

Continue reading “8 September 2020 | ERN-RND webinar “Semantic variant of primary progressive aphasia””

Posted on September 8, 2020June 5, 2024Categories Past Events, Past Events 2020

8 September 2020 | 4th EAN Task Force for Rare Neurological Diseases Teaching Course

8 September 2020 | 4th EAN Task Force for Rare Neurological Diseases Teaching Course

Continue reading “8 September 2020 | 4th EAN Task Force for Rare Neurological Diseases Teaching Course”

Posted on September 8, 2020June 5, 2024Categories Past Events, Past Events 2020

1 December 2020 | ERN-RND webinar “Functional movement disorders: a diagnostic guide”

1 December 2020 | ERN-RND webinar “Functional movement disorders: a diagnostic guide”

Continue reading “1 December 2020 | ERN-RND webinar “Functional movement disorders: a diagnostic guide””

Posted on September 1, 2020June 5, 2024Categories Past Events, Past Events 2020

22 July 2020 | World Brain Day

22 July 2020 | World Brain Day

Continue reading “22 July 2020 | World Brain Day”

Posted on July 22, 2020June 5, 2024Categories Past Events, Past Events 2020

11-15 July 2020 | (Virtual) 12th FENS Forum of Neuroscience

11-15 July 2020 | (Virtual) 12th FENS Forum of Neuroscience

Continue reading “11-15 July 2020 | (Virtual) 12th FENS Forum of Neuroscience”

Posted on July 15, 2020June 5, 2024Categories Past Events, Past Events 2020

14 July 2020 | ERN-RND webinar “Gait rehabilitation in people with Hereditary Spastic Paraplegia & Respiratory physiotherapy in parkinson’s plus syndromes”

14 July 2020 | ERN-RND webinar “Gait rehabilitation in people with Hereditary Spastic Paraplegia & Respiratory physiotherapy in parkinson’s plus syndromes”

Continue reading “14 July 2020 | ERN-RND webinar “Gait rehabilitation in people with Hereditary Spastic Paraplegia & Respiratory physiotherapy in parkinson’s plus syndromes””

Posted on July 14, 2020June 5, 2024Categories Past Events, Past Events 2020

9 July 2020 | ERN-RND webinar “Environmental modifiers in Hereditary Spastic Paraplegia”

9 July 2020 | ERN-RND webinar “Environmental modifiers in Hereditary Spastic Paraplegia”

Continue reading “9 July 2020 | ERN-RND webinar “Environmental modifiers in Hereditary Spastic Paraplegia””

Posted on July 9, 2020June 5, 2024Categories Past Events, Past Events 2020

Posts pagination

Page 1 Page 2 Page 3 Next page

Webinar Schedule

Latest News

  • Meet us at EAN2025

    June 11, 2025
    Are you at this year’s EAN Congress in Helsinki? Then come and visit us at our booth (N21) in the …read more »
  • Review on DBS for Dystonia

    June 11, 2025
    Despite considerable achievements in genetics in dystonias, their response to possible treatment such as Deep Brain Stimulation (DBS) remains to …read more »
  • John Gerbild elected as Board Director for EURORDIS

    May 19, 2025
    We are happy to announce that our patient advocate John Gerbild (representative for: Ataxia/HSP) is now a newly elected Board …read more »

Find us on Bluesky

ERN-RND

@ern-rnd.bsky.social

140 Followers 84 Following 109 Posts

European Reference Network for Rare Neurological Diseases (ERN-RND) to improve diagnosis, care & treatment of RND patients.
Free webinars: https://www.ern-rnd.eu/education-training/webinars/

  • Get to this post

    ERN-RND @ern-rnd.bsky.social 1 day

    #EAN2025: Join Carola Reinhard this Sunday at 16:25 CEST to learn more about ERN-RND and improving care for rare neurological diseases.

    More information here: https://f.mtr.cool/ndcjsvgvss
  • Get to this post

    ERN-RND @ern-rnd.bsky.social 2 days

    #EAN2025: Join us on Monday at 16:25 CEST to learn more about current practices regarding genetic therapies in Europe by our coordinator Holm Graessner.

    More information here: www.eanvirtualcongress.org/ean/ean2025/...
  • Get to this post

    ERKNet - European Reference Network for Rare Kidney Diseases @erknet.bsky.social 1 week

    Upcoming ERKNet Webinar! 📢

    📝Topic: Anti-Factor H Auto-Antibodies
    🗓️ Date: June 24, 2025
    ⏰ Time: 4:00–5:00 PM CET
    👩‍⚕️ Speaker: Michal Malina

    👉 Register now: register.gotowebinar.com/register/711...

    🌞ERKNet webinars will take a summer break after this session. We wish everyone a wonderful summertime!
  • Get to this post

    ERN-RND @ern-rnd.bsky.social 1 week

    Learn more about #RareNeurologicalDisease s in our monthly #newsletter:
  • Get to this post

    ERDERA @erdera.bsky.social 1 week

    Make your voice heard! 🗣️ #ERDERA has launched a survey to explore how #RareDisease patients can contribute to EU-funded research.
    🔐 Confidential & 🤝 Co-created with patients
    🔗 Take the survey: shorturl.at/ePVuL (open until mid-July)
    📄 Learn more: shorturl.at/c03db
  • Get to this post

    ERN-RND @ern-rnd.bsky.social 1 week

    #Study on #MonogenicDystonia: Despite considerable achievements in genetics in #dystonias, their response to possible treatment such as #DeepBrainStimulation (DBS) remains to be elucidated. ERN-RND is performing a systematic review on the efficacy of #DBS.
  • Get to this post

    JARDIN Joint Action @jardinjointaction.bsky.social 1 week

    ❓ Have you heard of the #ERNs?

    🔎 Discover the 24 European Reference Networks and how they support people living with rare diseases or complex conditions across Europe.

    🌍 Visit the JARDIN website to explore them all!

    👉 jardin-ern.eu/european-ref...

    #RareDiseases #PatientVoice #EU4Health

Find us on Facebook

ERN-RND European Reference Network for Rare Neurological Diseases

Our mission

ERN-RND aims to support rare neurological patients in Europe in getting a timely and appropriate diagnosis, treatment and care.

ERNs

ERN-RND is one of the 24 European Reference Networks (ERNs) approved by the ERN Board of Member States. For more information about the ERNs and the EU Health strategy, please visit https://ec.europa.eu/health/ern_en

  • Facebook
  • LinkedIn
  • Bluesky
  • YouTube

Sitemap | Disclaimer and Data Protection

We serve cookies on this site to analyse traffic, remember your preferences, and optimise your experience.OKNo 3rd party cookiesData-Protection