28 Oct. 2025 | 8 am CET
Zoom Registration
Speaker: Different Speakers
Part of the ERN-RND Annual Meeting Care-RND25
Disease Group: Cerebellar Ataxia & Hereditary Spastic Paraplegias
Patient Journeys as working documents to identify gaps in care and adapt care pathways and better meet the needs of patients
23 Sep Apr. 2025 | 3 – 4 pm CEST
Zoom Registration
Speaker: Petya Mihaylova & Mary Kearney
Irish Consortium: Tallaght University Hospital and Children’s Health Ireland & FARA Ireland
Neurogeriatric aspects in rare forms of ataxia and HSP: later on clinical manifestations and secondary symptoms
13 May 2025 | 3 – 4 pm CEST
Zoom Registration
Speaker: Eleni Zamba-Papanicolaou
Cyprus Institute of Neurology and Genetics, Cyprus
The ERN-RND Diagnostic Flowcharts: A Clinical Algorithm for the Diagnosis of Ataxias and Hereditary Spastic Paraplegias
Speech treatment in Ataxias
Winter school 2025 “Challenges of treating rare neurological diseases”
14 Mar. 2025
Speaker: Adam Vogel
University of Melbourne, Melbourne, Australia
Treatment of ataxia – rehabilitation based
Winter school 2025 “Challenges of treating rare neurological diseases”
13 Mar. 2025
Speaker: Gabriella Paparella
IRCCS Eugenio Medea, Institute for rehabilitation medicine, Italy
Treatment of ataxia – genetics based
Winter school 2025 “Challenges of treating rare neurological diseases”
13 Mar. 2025
Speaker: Ronald Buijsen
Leiden University, The Netherlands
Treatment of spasticity in children with rare neurological disorders – who, why, when and what?
Winter school 2025 “Challenges of treating rare neurological diseases”
13 Mar. 2025
Speaker: Annemieke Buizer
Amsterdam UMC, The Netherlands
Genetic testing in ataxias and HSP – in whom, when and how
Neuro-ophthalmological presentations of rare neurometabolic diseases
Friedreich Ataxia
Neuroimaging in Ataxia and HSP
CACNA1A-related disorders: clinical presentation and therapeutic options
Magnetic resonance imaging in the diagnostic assessment of cerebellar ataxias
28 Jun. 2022
Speaker: Jennifer Faber
German center for neurodegenerative disorders (DZNE), Bonn, Germany
Anti-spastic therapies in Hereditary Spastic Paraplegia
11 Jan. 2022
Speaker: Marcondes C. França Jr.
School of Medical Sciences, University Campinas (UNICAMP), Brasil
Clinical outcome assessments in Ataxias
Speech as a biomarker in ataxia: What can it tell us and how should we use it?
MR Biomarkers in Spinocerebellar Ataxias
Development of Sara-home: a novel assessment tool for patients with ataxia.
Rehabilitation in ataxia: current evidence and practice
Non-invasive stimulation for ataxias
Treatment of spasticity in HSP and leukodystrophies
6 Oct. 2020
Speaker: Annemieke Buizer & Laura Bonouvrié
VU University Medical Center Amsterdam, Netherlands
