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ERN-RND | European Reference Network on Rare Neurological Diseases

ERN-RND | European Reference Network on Rare Neurological Diseases

for rare or low prevalence complex diseases

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    • … for rare neurological diseases
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Domain: Communicating and counselling patients

POSTPONED: Social and life style issues related to ataxias and HSP

POSTPONED: Social and life style issues related to ataxias and HSP

NEW DATE tba
(cancelled on 13 January 2026 | 3 – 4 pm CET)
Zoom Registration

Speaker: Lotte van de Venis and Lori Renna Linton
Radboud University Meidcal Center, Nijmegen, the Netherlands, Euro-HSP

Social and Lifestyle Issues Related to FTD and PPA

Social and Lifestyle Issues Related to FTD and PPA

30 Sep. 2025 | 3 – 4 pm CEST
Zoom Registration

Speaker: Alexa Häger
University Hospital Aachen, Germany

Recording

Treatment of spasticity in children with rare neurological disorders – who, why, when and what?

Treatment of spasticity in children with rare neurological disorders – who, why, when and what?

Winter school 2025 “Challenges of treating rare neurological diseases”
13 Mar. 2025

Speaker: Annemieke Buizer
Amsterdam UMC, The Netherlands

Recording

Treatment of nano-rare neurological diseases

Treatment of nano-rare neurological diseases

Winter school 2025 “Challenges of treating rare neurological diseases”
12 Mar. 2025

Speaker: Marlen Lauffer
Leiden University Medical Center​, The Netherlands

Recording

Insights into growing up in families affected by Huntington’s disease

Insights into growing up in families affected by Huntington’s disease

28 Nov. 2023

Speaker: Siri Kjølaas
Oslo University Hospital, Centre for rare disorders, Oslo, Norway

Recording

Slides

X-Linked leukodystrophies – Update

X-Linked leukodystrophies – Update

7 Oct. 2021

Speaker: Caroline Sevin
Reference Center for Leukodystrophies, Hôpital de Bicêtre and ICM (institute of Brain and Spine), Paris, France

Recording

Slides

Webinar Schedule

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ERN-RND

@ern-rnd.bsky.social

177 Followers 90 Following 235 Posts

European Reference Network for Rare Neurological Diseases (ERN-RND) to improve diagnosis, care & treatment of RND patients.
Free webinars: https://www.ern-rnd.eu/education-training/online-medical-education-for-rare-neurological-diseases/

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ERN-RND European Reference Network for Rare Neurological Diseases

Our mission

ERN-RND aims to support rare neurological patients in Europe in getting a timely and appropriate diagnosis, treatment and care.

ERNs

ERN-RND is one of the 24 European Reference Networks (ERNs) approved by the ERN Board of Member States. For more information about the ERNs and the EU Health strategy, please visit https://ec.europa.eu/health/ern_en

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