13 May 2025 | 3 – 4 pm CEST
Zoom Registration
Speaker: Eleni Zamba-Papanicolaou
Cyprus Institute of Neurology and Genetics, Cyprus
Domain: Disease specific management aspects
Palliative care in chorea and Huntington’s disease
6 May 2025 | 3 – 4 pm CEST
Zoom Registration
Speaker: Jean-Marc Burgunder
Universtiy of Bern, Neurology clinic, Switzerland
Updates on the Management of Childhood-Onset Dystonia
Psychiatric and neuropsychological assessments in Huntington’s disease
Neurogeriatric aspects of Huntington’s disease and chorea
Speech treatment in Ataxias
Winter school 2025 “Challenges of treating rare neurological diseases”
14 Mar. 2025
Speaker: Adam Vogel
University of Melbourne, Melbourne, Australia
Cognitive and psychiatric treatment in Huntington’s disease
Winter school 2025 “Challenges of treating rare neurological diseases”
14 Mar. 2025
Speaker: Mayke Oosterloo
Maastricht University Medical Center, The Netherlands
Treatment of ataxia – rehabilitation based
Winter school 2025 “Challenges of treating rare neurological diseases”
13 Mar. 2025
Speaker: Gabriella Paparella
IRCCS Eugenio Medea, Institute for rehabilitation medicine, Italy
Autonomic dysfunction in movement disorders
19 Nov. 2024
Speaker: Pietro Guaraldi
Azienda USL di Bologna, IRCCS Institute of Neurological Sciences, Bologna, Italy
Neurogeriatric aspects and neurological aspects in palliative care of MSA, PSP and advanced PD
Family Experiences with Huntington’s Disease: Insights and Comparisons with other Neurological and Neuropsychiatric Disorders
10 Sep. 2024
Speaker: Siri Kjølaas
Oslo University Hospital, Centre for rare disorders, Oslo, Norway
Autoimmune parkinsonism
The spectrum of genetic synucleinopathies
12 Mar. 2024
Speaker: Leonidas Stefanis
University of Athens Medical School, Athens, Greece
Neuropsychological assessment in primary progressive aphasia – recommendations and pitfalls in clinical practice
Clinical neurophysiology in dystonia
Friedreich Ataxia
Dissecting Fahr’s disease
Telerehabilitation in RND: an update
CACNA1A-related disorders: clinical presentation and therapeutic options
Vanishing white matter
13 Sep. 2022
Speaker: Marjo van der Knaap
VU University Medical Center Amsterdam, Netherlands
Young onset Parkinson’s disease – What is the difference?
Caring HD: the experience of the French National Reference Centre
Basal ganglia diseases in childhood
Functional gait disorders: a sign-based approach
Myoclonus dystonia
How can we develop and implement evidence based rehabilitation in rare disorders?
29 Sep. 2020
Speaker: Hortensia Gimeno
Guy’s and St Thomas’ NHS Foundation Trust, London, United Kingdom
How to assess and manage spastic gait in rare diseases
Environmental modifiers in Hereditary Spastic Paraplegia
Goal setting and outcome measures of interventions in pediatric rehabilitation.
18 Jun. 2020
Speaker: Annemieke Buizer
VU University Medical Center Amsterdam, Netherlands;
Emma Children’s Hospital, Amsterdam, Netherlands
