TIME TO ACT – IMPROVING RARE DISEASE DIAGNOSIS AND SOLVING THE UNSOLVED RARE DISEASE THROUGH COLLABORATION IN EUROPE
35th Annual Meeting EACD
Second AGI YII Webinar Series
Public Symposium at the Solve-RD Final Meeting 2023: The Impact of Solve-RD on Research & Care of Rare Disease Patients!
11th International Meeting on Neuroacanthocytosis Syndromes
RE(ACT) Congress and IRDiRC Conference 2023
12th EURORDIS Black Pearl Awards Ceremony: recording online
First Medication to Treat Friedreich’s Ataxia Approved on Rare Disease Day!
The ERN-RND Coordination Team shares its colors for Rare Disease Day 2023
Register now: ERICA Webinar
EAN 2023 – Register now!
Holm Graessner, coordinator of ERN-RND, obtains the EURORDIS European Rare Disease Leadership Award 2023
Workshop on epileptogenesis
European Joint Programme on Rare Diseases (EJP RD)
Abstract submission for the EAN 2023 is open!
Multidisciplinary Fetal Diagnostics Winter School
Webinar: Access to health care services and support for HD patients in Europe
EURORDIS launches new podcast: Rare on Air
4th Neuromuscular Translational School
Solve-RD Webinar: The Treatabolome Database
ERN-RND supports Rare Disease Day
EURORDIS PHOTO AWARD 2023
Publication: “Recognizing early MRI signs (or their absence) is crucial in diagnosing metachromatic leukodystrophy”
Ataxia Global Conference 2022
27-28. October 2022, ”Current challenges of semiology in pediatric neurology” – Hybrid Course
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ERN-RND | European Reference Network on Rare Neurological Diseases
for rare or low prevalence complex diseases