New Leaflet on Friedreich`s Ataxia for adolescents online
EJP RD funded- 6th Call for ERN-Workshops
ERN-RND supports Open letter to the European Commission
EURORDIS Guide on patient involvement
9 – 13 July 2022 | FENS Forum 2022
ERN support Ukraine – Rare Diseases Hub Ukraine
3 – 7 July 2022 | ISPRM/ESPRM/SPMFR
27 June – 1 July 2022 | 11th European Conference on Rare Diseases & Orphan Products
25 – 28 June 2022 | 8th Congress of the European Academy of Neurology – Europe 2022
21 – 26 May 2022 | 15th World Congress of Neuromodulation (INS 2022)
18 – 21 May| 34th European Academy Of Childhood Disability (EACD) Annual Meeting
28 April-2 May 2022 | 14th European Paediatric Neurology Society Congress
25 – 27 April 2022 | Solve-RD Annual Meeting
24 – 27 March 2022 | 16th World Congress on Controversies in Neurology
24 – 25 March 2022 | EPNS VIRTUAL Training Course: Acute Paediatric Neurological Diseases
7 – 9 March 2022 | 2nd Expert Summit on the Future of Deep Brain Stimulation
Publication: “Acute-onset paralytic strabismus in toddlers is important to consider as a potential early sign of late-infantile Metachromatic Leukodystrophy”
22 February 2022 | EPNS Case Discussion: Neuromodulation in Dystonia
Publication from the European Metachromatic Leukodystrophy initiative (MLDi)
9 February 2022 | EJPRD- ERICA Joint Workshop “Finding RD registry data in the Virtual Platform”
Publication: “Therapy Trial Design in Vanishing White Matter – An Expert Consortium Opinion”
8 February 2022 | EURORDIS Black Pearl Award Event
4 – 5 March 2022 | EJP RD workshop: Contemporary outcome measures in NeuroMuscular diseases
United Nations adopts Resolution on persons with rare diseases
33 new ERN-RND members!
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ERN-RND | European Reference Network on Rare Neurological Diseases
for rare or low prevalence complex diseases