Holm Graessner, coordinator of ERN-RND, obtains the EURORDIS European Rare Disease Leadership Award 2023
Workshop on epileptogenesis
European Joint Programme on Rare Diseases (EJP RD)
Abstract submission for the EAN 2023 is open!
Multidisciplinary Fetal Diagnostics Winter School
Webinar: Access to health care services and support for HD patients in Europe
EURORDIS launches new podcast: Rare on Air
4th Neuromuscular Translational School
Solve-RD Webinar: The Treatabolome Database
ERN-RND supports Rare Disease Day
EURORDIS PHOTO AWARD 2023
Publication: “Recognizing early MRI signs (or their absence) is crucial in diagnosing metachromatic leukodystrophy”
Ataxia Global Conference 2022
27-28. October 2022, ”Current challenges of semiology in pediatric neurology” – Hybrid Course
Expert Conference on Rare Diseases
4th TransplantChild workshop
EJP RD-Workshop on childhood epilepsy and movement disorders
Publication: “Dystonia management across Europe within ERN-RND: current state and future challenges”
8th International Symposium on NBIA
ERN-RND ANNUAL MEETING 2022
29 September- 1 October 2022 | ERN-RND Annual Meeting
Online Scientific Symposium
New Leaflet on Friedreich`s Ataxia for adolescents online
EJP RD funded- 6th Call for ERN-Workshops
ERN-RND supports Open letter to the European Commission