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ERN-RND Spring School: Next Generation Sequencing Diagnostics for Rare Neurological Diseases
The registration for our Spring School “Next Generation Sequencing Diagnostics for Rare Neurological Diseases” taking place on May 5–7 is… Continue reading
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ePAG Nataliya Grigorova receives EURORDIS’ Black Pearl Award 2026
Our ePAG Nataliya Grigorova received the Holistic Care Award for her work in the Bulgarian Huntington Association – Congratulations, and… Continue reading
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Declaration on the European Innovation and Care Ecosystem for Rare and Complex Diseases
Last December’s High Level Meeting on a European Innovation and Care Ecosystem for Rare and Complex Diseases brought together policymakers,… Continue reading
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Holm Graessner at the Brain Innovation Days 2025
Our coordinator Holm Graessner is participating in the Brain Innovation Days’ Platinum Panel “Advancing Adaptive Pathways and Real-World Evidence for… Continue reading
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Scientific Symposium “European Healthcare for RND patients”
ERN-RND is organising a Scientific Symposium on “European Healthcare for RND Patients” on October 28, which will be held online… Continue reading
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Treatabolome for Dominant Ataxias – Interview David Gomez
For some rare paediatric ataxias treatments do exist, but unfortunately they are not always well-known. In oder to accelerate diagnosis… Continue reading
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ePAG visit at Children’s Hospital Sant Joan de Déu, Barcelona
Having a rare disease means spending a lot of time around doctors and hospitals. Places, that even adults will not… Continue reading
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Meet us at EAN2025
Are you at this year’s EAN Congress in Helsinki? Then come and visit us at our booth (N21) in the… Continue reading
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Review on DBS for Dystonia
Despite considerable achievements in genetics in dystonias, their response to possible treatment such as Deep Brain Stimulation (DBS) remains to… Continue reading
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ERN-RND | European Reference Network on Rare Neurological Diseases
for rare or low prevalence complex diseases