Share your reason for Europe to take action on rare diseases!

Tell Ursula von der Leyen, the President of the European Commission, YOUR reason why Europe needs to take action for a better future for people living with a rare disease by 2030.

Let’s not wait and help improve the lives of 30 million people in Europe now!

Write down your reason here, it will take less than 5 minutes.

Thank you EURORDIS for the initiative and thank you for your contribution!