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ERN-RND | European Reference Network on Rare Neurological Diseases

ERN-RND | European Reference Network on Rare Neurological Diseases

for rare or low prevalence complex diseases

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    • … for rare neurological diseases
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    • Cerebellar Ataxia & Hereditary Spastic Paraplegias (HSPs)
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Patient information – Frontotemporal dementia – Adult

Please note that this section includes useful information from a variety of sources provided by ERN-RND members but which hasn’t been endorsed by ERN-RND.

Multiple languages:

  • Disease specific patient education handouts by the Movement Disorders Society

German language:

  • DESCRIBE-FTD – Klinische Registerstudie zu Frontotemporaler Demenz by Deutsches Zentrum für Neurodegenerative Erkrankungen e. V. (DZNE)

     

Webinar Schedule

Latest News

  • New leaflet for patients on Muscle tightness & stiffness – “spasticity” in ataxia

    February 26, 2021
    read more »
  • ERN-RND recorded webinar: “Improving care for rare disease patients in Europe – Rare Disease Day 2021”

    February 25, 2021
    read more »
  • “Der Weg zur europaweiten Zusammenarbeit” von Holm Graessner

    February 25, 2021
    read more »

Latest Tweets

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ERN-RND European Reference Network for Rare Neurological Diseases

Latest Events

  • 26 February 2021 | Tag der Seltenen Erkrankungen in Mainz

    February 24, 2021
    read more »
  • 28 February 2021 | Rare Disease Day

    February 28, 2021
    read more »
  • 1-2 March 2021 | 1st International Conference on Rare Diseases “Building a Pathway from Diagnosis to Access”

    March 2, 2021
    read more »

Our mission

ERN-RND aims to support rare neurological patients in Europe in getting a timely and appropriate diagnosis, treatment and care.

ERNs

ERN-RND is one of the 24 European Reference Networks (ERNs) approved by the ERN Board of Member States. For more information about the ERNs and the EU Health strategy, please visit https://ec.europa.eu/health/ern_en

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