16 June 2020 | Webinar “Advancing the rare disease research agenda”

Event: Webinar “Advancing the rare disease research agenda” organised by Share4Rare

Date: 16 June, 4pm CET

Venue: Online, register here

This new Share4Rare webinar will focus on the new Share4Rare research feature that is addressed to patient organisations (POs).  You will learn:

  • How Share4Rare patient-driven research features can benefit your patient organisation through research projects of high scientific quality within your community
  • How you can optimally utilize Share4Rare’s PO feature to safely collect your data and and disseminate your research initiative using a global platform
  • How can Share4Rare’s PO networking and capacity building can benefit your patient organisation and your patients

Find out more about this webinar here.