28 February 2020 | Tag der Seltenen Erkrankungen in Mainz

Event name: Tag der Seltenen Erkrankungen in Mainz

Date: 28 February 2020

Venue: Haus der Jugend, Mitternachtsgasse 8, 55116 Mainz, Germany

This event is organised by our ePAG AHC18+ e. V. and cooperation partners.

Sanja Hermanns, Training & ERN-RND CPMS Helpdesk Manager will be giving a talk on “Europäische Referenznetzwerke – Mehrwert für die Versorgung der Patienten mit Seltenen Erkrankungen in Deutschland” (European Reference Networks – added value for the care of rare disease patients in Germany).

You can find the programme here.

If you would like to have an information booth, please contact Marek Parowicz: