Cerebellar Ataxia & Hereditary Spastic Paraplegias (HSPs)
The Cerebellar Ataxia & Hereditary Spastic Paraplegias Disease Knowledge Hub provides reference information on care of Cerebellar Ataxia and Hereditary Spastic Paraplegias.
Information and knowledge that has been developed or endorsed by ERN-RND can be found in blue boxes.
ERN-RND Centres for Cerebellar Ataxia & HSPs
Care Standards
Available in many European languages .
Ataxias
Diagnosis
Clinical Rating Scale
Guidelines
HSPs
Clinical Rating Scales
Cross-cutting thematic areas
Online Medical Education
Patient Journeys
Available in many European languages.
Patient Journey for Hereditary Spastic Paraplegia
Patient Journey for Friedreich’s Ataxia
Patient Journey for Rare Neurological Diseases
Information for Patients – Endorsed by ERN-RND
Available in many European languages.
Friedreich’s Ataxia Leaflets
Information for Patients
Please note that this section includes useful information from a variety of sources provided by ERN-RND members but which hasn’t been endorsed by ERN-RND.
Patient Organisations
Clinical Studies and Trials
Patient Registries (to which ERN-RND members contribute)
Patient Journey Stories of our Patient Representatives
Lori Renna Linton (HSP patient)
Juliane Krabath (daughter with HSP)