News – Page 8 – ERN-RND | European Reference Network on Rare Neurological Diseases

ERN-RND welcomes new affiliated partners

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New EJP RD call: Networking Support Scheme is open!

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“ERNs in a crucial phase of enlargement”

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ERN Newsletter is out!

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Euro-ataxia publishes patient charter

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EAN 2020 abstract submission is open!

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#BrainLifeGoals photo competition, submit a photograph!

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European Conference on Rare Diseases & Orphan Products 2020, submit your poster abstract!

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100 days to go until Rare Disease Day 2020!

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SCA Global Conference registration + poster abstract submissions open!

Continue reading “SCA Global Conference registration + poster abstract submissions open!”

Call to apply to join an ERN is open until 30 November 2019

Continue reading “Call to apply to join an ERN is open until 30 November 2019”

First call for new members to join existing 24 ERNs to be launched on 30 Sept. until 30 Nov.

Continue reading “First call for new members to join existing 24 ERNs to be launched on 30 Sept. until 30 Nov.”

French MSA patient organisation ARAMISE launches fundraising campaign

Continue reading “French MSA patient organisation ARAMISE launches fundraising campaign”

EBC, EFNA & EAN sent joint open letter to EU leaders

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The Ataxia Global Initiatives website is live!

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Research News: “A clinical diagnostic algorithm for early onset cerebellar ataxia”

Continue reading “Research News: “A clinical diagnostic algorithm for early onset cerebellar ataxia””

Frequently Asked Questions for the ERN call for membership

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Additional documentation available to prepare applications for the 2019 ERN call for membership

Continue reading “Additional documentation available to prepare applications for the 2019 ERN call for membership”

Dystonia Awareness Month

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Interview with Daria Julkowska, coordinator of the European Joint Programme on Rare Diseases

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European Commission launches Horizon Europe public consultation

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2019 call for membership to the existing ERNs to open soon

Continue reading “2019 call for membership to the existing ERNs to open soon”

Report – European Academy of Neurology Congress 2019

Continue reading “Report – European Academy of Neurology Congress 2019”

Report – ERN-RND Annual Meeting 2019

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MSA Trust is accepting new and innovative project grant applications for Research Grant Round 2019

Continue reading “MSA Trust is accepting new and innovative project grant applications for Research Grant Round 2019”

Two statements adopted on ERNs integration into the national health systems and cooperation with industry

Continue reading “Two statements adopted on ERNs integration into the national health systems and cooperation with industry”

First ERN Newsletter published by EU Commission’s DG Health

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EJP-RD survey – please take 5min to complete it

Continue reading “EJP-RD survey – please take 5min to complete it”

PETITION – Call for increased emphasis on brain research in the strategic plan for Horizon Europe

Continue reading “PETITION – Call for increased emphasis on brain research in the strategic plan for Horizon Europe”

European Brain Council Election Manifesto

Continue reading “European Brain Council Election Manifesto”

ePAG visit at Children’s Hospital Sant Joan de Déu, Barcelona
July 7, 2025
Having a rare disease means spending a lot of time around doctors and hospitals. Places, that even adults will not …read more »
Meet us at EAN2025
June 11, 2025
Are you at this year’s EAN Congress in Helsinki? Then come and visit us at our booth (N21) in the …read more »
Review on DBS for Dystonia
June 11, 2025
Despite considerable achievements in genetics in dystonias, their response to possible treatment such as Deep Brain Stimulation (DBS) remains to …read more »

Find us on Bluesky

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ERN-RND @ern-rnd.bsky.social 2 hours

Join our free symposium on European Healthcare for RND patients!
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European Paediatric Neurology Society (EPNS) @epnsnews.bsky.social 4 hours

Stay ahead in #PaediatricNeurology by reading the #EPNS2025 Abstract Book to get quick insights into the latest research, treatments, and breakthroughs:
epns-congress.com/wp-content/u...
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ERN-RND @ern-rnd.bsky.social 4 hours

💻U#webinar#webinar on “Neurological and Non-Neurological Aspects in Palliative Care of FTD and PPA Patients”
📅16th September, 3:00 CEST
🗣️Renate Wahl, University Hospital Aachen, Germany
Sighttps://t1p.de/j8mlcde/j8mlc
Joint w/ the European Reference Network for Rare Neuromuscular Diseases and
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European Paediatric Neurology Society (EPNS) @epnsnews.bsky.social 4 days

Next FREE YEPNS Case Discussion!

Join us for an interactive journey through three compelling paediatric neurology cases—from clarity to enigma.

Register at: us02web.zoom.us/webinar/regi...
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European Paediatric Neurology Society (EPNS) @epnsnews.bsky.social 2 weeks

Want to be actively involved in the activities of the YEPNS?

Learn more - epns.info/young-epns-y...

Join for FREE! - epns.info/young-epns-y...
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ERDERA @erdera.bsky.social 2 weeks

📢 Exciting news — the #ERDERA Networking Support Scheme is n#ERDERA for applications! 👉 If you are working to advance research in #RareDiseases or rare cancers, this co#RareDiseasesnding opportunity you're looking for!
🔗 Find out more: https://loom.ly/CwIvcvM
🔁 Repost: Help us spread this info!
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ERN-RND @ern-rnd.bsky.social 2 weeks

Join our Scientific Symposium on "European Healthcare for RND Patients" on October 28 online! Free registration: us02web.zoom.us/webinar/regi...

Find the programme here: www.ern-rnd.eu/wp-content/u...

#HealthcareEU #Neurology #RareDisease #RareNeurologicalDisease #Symposium