News – Page 9 – ERN-RND | European Reference Network on Rare Neurological Diseases

Report – ERN-RND Annual Meeting 2019

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MSA Trust is accepting new and innovative project grant applications for Research Grant Round 2019

Continue reading “MSA Trust is accepting new and innovative project grant applications for Research Grant Round 2019”

Two statements adopted on ERNs integration into the national health systems and cooperation with industry

Continue reading “Two statements adopted on ERNs integration into the national health systems and cooperation with industry”

First ERN Newsletter published by EU Commission’s DG Health

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EJP-RD survey – please take 5min to complete it

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PETITION – Call for increased emphasis on brain research in the strategic plan for Horizon Europe

Continue reading “PETITION – Call for increased emphasis on brain research in the strategic plan for Horizon Europe”

European Brain Council Election Manifesto

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Dystonia Europe survey – please participate

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EAN interviews ERN-RND coordinator Holm Graessner

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#BrainLifeGoals project grants from EFNA

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Brain, Mind and Pain #BookofEvidence for 2019-2024 EU mandate released

Continue reading “Brain, Mind and Pain #BookofEvidence for 2019-2024 EU mandate released”

Postdoc in Computational Genomics at the University Hospital Tübingen – Applications open!

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Report – First SCA Global Conference

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MoU signed between ERN-RND & EAN

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The ERNs are getting ready for the challenges of enlarging the ERNs

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Call for Proposals – Grant Opportunity for BPAN and MPAN research

Continue reading “Call for Proposals – Grant Opportunity for BPAN and MPAN research”

18 February 2019 | Trial readiness and registries in RND workshop report

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Rare Disease Day: a new EU platform to support better diagnosis and treatment

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The ERNs are building a common training and eLearning strategy

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ERN-RND, ZSE and Solve-RD coordinating offices on #RareDiseaseDay

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Living with ataxia and advocating around the world #RareDiseaseDay

Continue reading “Living with ataxia and advocating around the world #RareDiseaseDay”

Working in the BRAIN-TEAM: raising awareness of rare diseases daily #RareDiseaseDay

Continue reading “Working in the BRAIN-TEAM: raising awareness of rare diseases daily #RareDiseaseDay”

Being diagnosed at the centre of rare diseases in Tübingen (ZSE) #RareDiseaseDay

Continue reading “Being diagnosed at the centre of rare diseases in Tübingen (ZSE) #RareDiseaseDay”

Pediatric ataxias – the daily work of a clinician in Italy #RareDiseaseDay

Continue reading “Pediatric ataxias – the daily work of a clinician in Italy #RareDiseaseDay”

ERN-RND member Pr Boespflug-Tanguy & team find new Leukodystrophies gene and potential treatment

Continue reading “ERN-RND member Pr Boespflug-Tanguy & team find new Leukodystrophies gene and potential treatment”

ERN-RND short fellowship experience in Tübingen, Germany

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Full report – 4th European Reference Networks Conference

Continue reading “Full report – 4th European Reference Networks Conference”

New European Joint Programme on Rare Diseases – €100 million allocated to rare disease research

Continue reading “New European Joint Programme on Rare Diseases – €100 million allocated to rare disease research”

Poster – Diagnostic flowcharts, a tool to disseminate expert knowledge on rare neurological diseases

Continue reading “Poster – Diagnostic flowcharts, a tool to disseminate expert knowledge on rare neurological diseases”

New #EUProtects video released by the European Commission

Continue reading “New #EUProtects video released by the European Commission”

Find us on Bluesky

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ERN-RND @ern-rnd.bsky.social 1 week

Our coordinator Holm Graessner will introduce our new Postgraduate Curriculum at this year’s EAN Congress. Join us on Sunday, June 28 at 10:35 CEST (Scientific Theatre)!

Holm Graessner:
Advancing Care for Patients with Rare Neurological Diseases – the Development of a Postgraduate Curriculum

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ERN-RND @ern-rnd.bsky.social 1 week

Get the latest news on rare neurological diseases with our monthly #newsletter: www.ern-rnd.eu?mailpoet_rou...

Find news on #HuntingtonDisease, #FriedreichAtaxia, #CervicalDystonia, #NBIA, #HereditarySpasticParaplegia, #AtypicalParkinsonism, #Leukodystrophy and #FrontotemporalDementia
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ERN-RND @ern-rnd.bsky.social 2 weeks

After a quick break we will continue with Nicola Whiffin and "Non-coding Variants in Rare Diseases" at 11:30 CEST.

Join our #SpringSchool on "Next Generation Sequencing Diagnostics for Rare Neurological Diseases": us02web.zoom.us/webinar/regi...

programme here: www.ern-rnd.eu/education-tr...
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ERN-RND @ern-rnd.bsky.social 2 weeks

Join our free #SpringSchool now - right now on:
Christian Gilissen with "Bioinformatic Tools for Diagnosing Rare Diseases"

To join the talk click here: us02web.zoom.us/webinar/regi...

Find the whole programme here: www.ern-rnd.eu/education-tr...

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ERN-RND @ern-rnd.bsky.social 3 weeks

Join Katja Lohmann and Ales Maver to learn about quality insurance and recommendations for NGS during our #SpringSchool on "Next Generation Sequencing Diagnostics for Rare Neurological Diseases” on May 6th at 9:00 CEST.

Register for free: https://t1p.de/wsatw
Programme: https://t1p.de/xp523
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ERN-RND @ern-rnd.bsky.social 3 weeks

Less than a week to go till our #SpringSchool "Next Generation Sequencing Diagnostics for Rare Neurological Diseases” starts! Join uns online from May 5-7 and register now (free of charge): us02web.zoom.us/webinar/regi...

Find the programme here: www.ern-rnd.eu/education-tr...
View post by ERN-RND on Bluesky

ERN-RND @ern-rnd.bsky.social 3 weeks

Interested in NGS for Ataxia and HSP? Join Erik-Jan Kamsteeg during our #SpringSchool on "Next Generation Sequencing Diagnostics for Rare Neurological Diseases” on May 7th at 9:00 CEST.

Registration is free of charge: https://t1p.de/wsatw
Programme: https://t1p.de/xp523