News – Page 9 – ERN-RND | European Reference Network on Rare Neurological Diseases

Interview with Daria Julkowska, coordinator of the European Joint Programme on Rare Diseases

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European Commission launches Horizon Europe public consultation

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2019 call for membership to the existing ERNs to open soon

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Report – European Academy of Neurology Congress 2019

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Report – ERN-RND Annual Meeting 2019

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MSA Trust is accepting new and innovative project grant applications for Research Grant Round 2019

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Two statements adopted on ERNs integration into the national health systems and cooperation with industry

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First ERN Newsletter published by EU Commission’s DG Health

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EJP-RD survey – please take 5min to complete it

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PETITION – Call for increased emphasis on brain research in the strategic plan for Horizon Europe

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European Brain Council Election Manifesto

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Dystonia Europe survey – please participate

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EAN interviews ERN-RND coordinator Holm Graessner

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#BrainLifeGoals project grants from EFNA

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Brain, Mind and Pain #BookofEvidence for 2019-2024 EU mandate released

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Postdoc in Computational Genomics at the University Hospital Tübingen – Applications open!

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Report – First SCA Global Conference

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MoU signed between ERN-RND & EAN

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The ERNs are getting ready for the challenges of enlarging the ERNs

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Call for Proposals – Grant Opportunity for BPAN and MPAN research

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18 February 2019 | Trial readiness and registries in RND workshop report

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Rare Disease Day: a new EU platform to support better diagnosis and treatment

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The ERNs are building a common training and eLearning strategy

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ERN-RND, ZSE and Solve-RD coordinating offices on #RareDiseaseDay

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Living with ataxia and advocating around the world #RareDiseaseDay

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Working in the BRAIN-TEAM: raising awareness of rare diseases daily #RareDiseaseDay

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Being diagnosed at the centre of rare diseases in Tübingen (ZSE) #RareDiseaseDay

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Pediatric ataxias – the daily work of a clinician in Italy #RareDiseaseDay

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ERN-RND member Pr Boespflug-Tanguy & team find new Leukodystrophies gene and potential treatment

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ERN-RND short fellowship experience in Tübingen, Germany

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ERN-RND @ern-rnd.bsky.social 2 days

Join our Symposium this Saturday on Registries for Rare Neurological Diseases - online & free of charge!

The Symposium will focus on:
- Framework for RND registries
- Registry Examples in ERN-RND
- Regulatory and Methodological Perspectives

Programme & registration: www.ern-rnd.eu/scientific-s...
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ERN-RND @ern-rnd.bsky.social 6 days

Join our Symposium on October 10 and learn more about the ERN-RND use case by Christina Vossler-Wolf:

Register now for online participation (free of charge): us02web.zoom.us/webinar/regi...

Find the whole programme here: www.ern-rnd.eu/wp-content/u...
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ERN-RND @ern-rnd.bsky.social 6 days

Join our Symposium on October 10 and learn more about the framework for multistakeholder patient registries by Nicole Wolf:

Register now for online participation (free of charge): us02web.zoom.us/webinar/regi...
Find the whole programme here: www.ern-rnd.eu/wp-content/u...
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ERN-RND @ern-rnd.bsky.social 1 week

Join our Symposium on October 10 and learn more about registry qualification and regulatory expectations by Kelly Plueschke:

Register now for online participation (free of charge): us02web.zoom.us/webinar/regi...

Find the whole programme here: www.ern-rnd.eu/wp-content/u...

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ERN-RND @ern-rnd.bsky.social 1 week

Join our Symposium on October 10 and learn more why Registries Matter for Rare Neurological Diseases by Thomas Klockgether during the KEYNOTE talk:

Register now for online participation (free of charge): us02web.zoom.us/webinar/regi...

The whole programme: www.ern-rnd.eu/wp-content/u...
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ERN-RND @ern-rnd.bsky.social 2 weeks

What are patient perspectives on registries? Mary Kearney will give us an insight during our Symposium "Registries for RND" on October 10.

Join online for free and register now: us02web.zoom.us/webinar/regi...

Find the programme here: www.ern-rnd.eu/wp-content/u...
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ERN-RND @ern-rnd.bsky.social 2 weeks

Join our Symposium on October 10 and learn more about the french MSA registry by David Bendetowicz:

The French MSA Registry

Register now for online participation (free of charge): us02web.zoom.us/webinar/regi...

Find the whole programme here: www.ern-rnd.eu/wp-content/u...

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Last updated 10 minutes ago