EJP-RD survey – please take 5min to complete it Continue reading “EJP-RD survey – please take 5min to complete it”
PETITION – Call for increased emphasis on brain research in the strategic plan for Horizon Europe Continue reading “PETITION – Call for increased emphasis on brain research in the strategic plan for Horizon Europe”
European Brain Council Election Manifesto Continue reading “European Brain Council Election Manifesto”
Dystonia Europe survey – please participate Continue reading “Dystonia Europe survey – please participate”
EAN interviews ERN-RND coordinator Holm Graessner Continue reading “EAN interviews ERN-RND coordinator Holm Graessner”
Brain, Mind and Pain #BookofEvidence for 2019-2024 EU mandate released Continue reading “Brain, Mind and Pain #BookofEvidence for 2019-2024 EU mandate released”
Postdoc in Computational Genomics at the University Hospital Tübingen – Applications open! Continue reading “Postdoc in Computational Genomics at the University Hospital Tübingen – Applications open!”
The ERNs are getting ready for the challenges of enlarging the ERNs Continue reading “The ERNs are getting ready for the challenges of enlarging the ERNs”
Call for Proposals – Grant Opportunity for BPAN and MPAN research Continue reading “Call for Proposals – Grant Opportunity for BPAN and MPAN research”
18 February 2019 | Trial readiness and registries in RND workshop report Continue reading “18 February 2019 | Trial readiness and registries in RND workshop report”
Rare Disease Day: a new EU platform to support better diagnosis and treatment Continue reading “Rare Disease Day: a new EU platform to support better diagnosis and treatment”
The ERNs are building a common training and eLearning strategy Continue reading “The ERNs are building a common training and eLearning strategy”
ERN-RND, ZSE and Solve-RD coordinating offices on #RareDiseaseDay Continue reading “ERN-RND, ZSE and Solve-RD coordinating offices on #RareDiseaseDay”
Living with ataxia and advocating around the world #RareDiseaseDay Continue reading “Living with ataxia and advocating around the world #RareDiseaseDay”
Working in the BRAIN-TEAM: raising awareness of rare diseases daily #RareDiseaseDay Continue reading “Working in the BRAIN-TEAM: raising awareness of rare diseases daily #RareDiseaseDay”
Being diagnosed at the centre of rare diseases in Tübingen (ZSE) #RareDiseaseDay Continue reading “Being diagnosed at the centre of rare diseases in Tübingen (ZSE) #RareDiseaseDay”
Pediatric ataxias – the daily work of a clinician in Italy #RareDiseaseDay Continue reading “Pediatric ataxias – the daily work of a clinician in Italy #RareDiseaseDay”
ERN-RND member Pr Boespflug-Tanguy & team find new Leukodystrophies gene and potential treatment Continue reading “ERN-RND member Pr Boespflug-Tanguy & team find new Leukodystrophies gene and potential treatment”
ERN-RND short fellowship experience in Tübingen, Germany Continue reading “ERN-RND short fellowship experience in Tübingen, Germany”
Full report – 4th European Reference Networks Conference Continue reading “Full report – 4th European Reference Networks Conference”
New European Joint Programme on Rare Diseases – €100 million allocated to rare disease research Continue reading “New European Joint Programme on Rare Diseases – €100 million allocated to rare disease research”
Poster – Diagnostic flowcharts, a tool to disseminate expert knowledge on rare neurological diseases Continue reading “Poster – Diagnostic flowcharts, a tool to disseminate expert knowledge on rare neurological diseases”
New #EUProtects video released by the European Commission Continue reading “New #EUProtects video released by the European Commission”
Poster: ERN-RND – Survey research priorities Continue reading “Poster: ERN-RND – Survey research priorities”
Summary report – 4th Conference on European Reference Networks Continue reading “Summary report – 4th Conference on European Reference Networks”
New ERN video and flyer for patients and healthcare professionals Continue reading “New ERN video and flyer for patients and healthcare professionals”