News – Page 8 – ERN-RND | European Reference Network on Rare Neurological Diseases

New EHA video on ERN-RND

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ARCA Global Conference 2020 CANCELLED

Continue reading “ARCA Global Conference 2020 CANCELLED”

ERN-RND Patient advocates meeting report, 30 January 2020

Continue reading “ERN-RND Patient advocates meeting report, 30 January 2020”

ERN-RND Survey: “Research Priorities” for patients

Continue reading “ERN-RND Survey: “Research Priorities” for patients”

EJP RD calls for funding – ERNs only

Continue reading “EJP RD calls for funding – ERNs only”

Successful ERN-RND Registry Application!

Continue reading “Successful ERN-RND Registry Application!”

New #RareDiseaseDay 2020 poster available!

Continue reading “New #RareDiseaseDay 2020 poster available!”

ERN-RND welcomes new affiliated partners

Continue reading “ERN-RND welcomes new affiliated partners”

New EJP RD call: Networking Support Scheme is open!

Continue reading “New EJP RD call: Networking Support Scheme is open!”

“ERNs in a crucial phase of enlargement”

Continue reading ““ERNs in a crucial phase of enlargement””

ERN Newsletter is out!

Continue reading “ERN Newsletter is out!”

Euro-ataxia publishes patient charter

Continue reading “Euro-ataxia publishes patient charter”

EAN 2020 abstract submission is open!

Continue reading “EAN 2020 abstract submission is open!”

#BrainLifeGoals photo competition, submit a photograph!

Continue reading “#BrainLifeGoals photo competition, submit a photograph!”

European Conference on Rare Diseases & Orphan Products 2020, submit your poster abstract!

Continue reading “European Conference on Rare Diseases & Orphan Products 2020, submit your poster abstract!”

100 days to go until Rare Disease Day 2020!

Continue reading “100 days to go until Rare Disease Day 2020!”

SCA Global Conference registration + poster abstract submissions open!

Continue reading “SCA Global Conference registration + poster abstract submissions open!”

Call to apply to join an ERN is open until 30 November 2019

Continue reading “Call to apply to join an ERN is open until 30 November 2019”

First call for new members to join existing 24 ERNs to be launched on 30 Sept. until 30 Nov.

Continue reading “First call for new members to join existing 24 ERNs to be launched on 30 Sept. until 30 Nov.”

French MSA patient organisation ARAMISE launches fundraising campaign

Continue reading “French MSA patient organisation ARAMISE launches fundraising campaign”

EBC, EFNA & EAN sent joint open letter to EU leaders

Continue reading “EBC, EFNA & EAN sent joint open letter to EU leaders”

The Ataxia Global Initiatives website is live!

Continue reading “The Ataxia Global Initiatives website is live!”

Research News: “A clinical diagnostic algorithm for early onset cerebellar ataxia”

Continue reading “Research News: “A clinical diagnostic algorithm for early onset cerebellar ataxia””

Frequently Asked Questions for the ERN call for membership

Continue reading “Frequently Asked Questions for the ERN call for membership”

Additional documentation available to prepare applications for the 2019 ERN call for membership

Continue reading “Additional documentation available to prepare applications for the 2019 ERN call for membership”

Dystonia Awareness Month

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Interview with Daria Julkowska, coordinator of the European Joint Programme on Rare Diseases

Continue reading “Interview with Daria Julkowska, coordinator of the European Joint Programme on Rare Diseases”

European Commission launches Horizon Europe public consultation

Continue reading “European Commission launches Horizon Europe public consultation”

2019 call for membership to the existing ERNs to open soon

Continue reading “2019 call for membership to the existing ERNs to open soon”

Report – European Academy of Neurology Congress 2019

Continue reading “Report – European Academy of Neurology Congress 2019”

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ERN-RND @ern-rnd.bsky.social 1 week

Our coordinator Holm Graessner will introduce our new Postgraduate Curriculum at this year’s EAN Congress. Join us on Sunday, June 28 at 10:35 CEST (Scientific Theatre)!

Holm Graessner:
Advancing Care for Patients with Rare Neurological Diseases – the Development of a Postgraduate Curriculum

1
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ERN-RND @ern-rnd.bsky.social 1 week

Get the latest news on rare neurological diseases with our monthly #newsletter: www.ern-rnd.eu?mailpoet_rou...

Find news on #HuntingtonDisease, #FriedreichAtaxia, #CervicalDystonia, #NBIA, #HereditarySpasticParaplegia, #AtypicalParkinsonism, #Leukodystrophy and #FrontotemporalDementia
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ERN-RND @ern-rnd.bsky.social 2 weeks

After a quick break we will continue with Nicola Whiffin and "Non-coding Variants in Rare Diseases" at 11:30 CEST.

Join our #SpringSchool on "Next Generation Sequencing Diagnostics for Rare Neurological Diseases": us02web.zoom.us/webinar/regi...

programme here: www.ern-rnd.eu/education-tr...
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ERN-RND @ern-rnd.bsky.social 2 weeks

Join our free #SpringSchool now - right now on:
Christian Gilissen with "Bioinformatic Tools for Diagnosing Rare Diseases"

To join the talk click here: us02web.zoom.us/webinar/regi...

Find the whole programme here: www.ern-rnd.eu/education-tr...

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ERN-RND @ern-rnd.bsky.social 3 weeks

Join Katja Lohmann and Ales Maver to learn about quality insurance and recommendations for NGS during our #SpringSchool on "Next Generation Sequencing Diagnostics for Rare Neurological Diseases” on May 6th at 9:00 CEST.

Register for free: https://t1p.de/wsatw
Programme: https://t1p.de/xp523
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ERN-RND @ern-rnd.bsky.social 3 weeks

Less than a week to go till our #SpringSchool "Next Generation Sequencing Diagnostics for Rare Neurological Diseases” starts! Join uns online from May 5-7 and register now (free of charge): us02web.zoom.us/webinar/regi...

Find the programme here: www.ern-rnd.eu/education-tr...
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ERN-RND @ern-rnd.bsky.social 3 weeks

Interested in NGS for Ataxia and HSP? Join Erik-Jan Kamsteeg during our #SpringSchool on "Next Generation Sequencing Diagnostics for Rare Neurological Diseases” on May 7th at 9:00 CEST.

Registration is free of charge: https://t1p.de/wsatw
Programme: https://t1p.de/xp523

Last updated 10 minutes ago