News – Page 8 – ERN-RND | European Reference Network on Rare Neurological Diseases

EFNA launches survey on stigma & neurological conditions

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It’s #BrainAwarenessWeek 2020

Continue reading “It’s #BrainAwarenessWeek 2020”

European Reference Networks are 3 years old

Continue reading “European Reference Networks are 3 years old”

SCA Global Conference 2020 CANCELLED

Continue reading “SCA Global Conference 2020 CANCELLED”

New EHA video on ERN-RND

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ARCA Global Conference 2020 CANCELLED

Continue reading “ARCA Global Conference 2020 CANCELLED”

ERN-RND Patient advocates meeting report, 30 January 2020

Continue reading “ERN-RND Patient advocates meeting report, 30 January 2020”

ERN-RND Survey: “Research Priorities” for patients

Continue reading “ERN-RND Survey: “Research Priorities” for patients”

EJP RD calls for funding – ERNs only

Continue reading “EJP RD calls for funding – ERNs only”

Successful ERN-RND Registry Application!

Continue reading “Successful ERN-RND Registry Application!”

New #RareDiseaseDay 2020 poster available!

Continue reading “New #RareDiseaseDay 2020 poster available!”

ERN-RND welcomes new affiliated partners

Continue reading “ERN-RND welcomes new affiliated partners”

New EJP RD call: Networking Support Scheme is open!

Continue reading “New EJP RD call: Networking Support Scheme is open!”

“ERNs in a crucial phase of enlargement”

Continue reading ““ERNs in a crucial phase of enlargement””

ERN Newsletter is out!

Continue reading “ERN Newsletter is out!”

Euro-ataxia publishes patient charter

Continue reading “Euro-ataxia publishes patient charter”

EAN 2020 abstract submission is open!

Continue reading “EAN 2020 abstract submission is open!”

#BrainLifeGoals photo competition, submit a photograph!

Continue reading “#BrainLifeGoals photo competition, submit a photograph!”

European Conference on Rare Diseases & Orphan Products 2020, submit your poster abstract!

Continue reading “European Conference on Rare Diseases & Orphan Products 2020, submit your poster abstract!”

100 days to go until Rare Disease Day 2020!

Continue reading “100 days to go until Rare Disease Day 2020!”

SCA Global Conference registration + poster abstract submissions open!

Continue reading “SCA Global Conference registration + poster abstract submissions open!”

Call to apply to join an ERN is open until 30 November 2019

Continue reading “Call to apply to join an ERN is open until 30 November 2019”

First call for new members to join existing 24 ERNs to be launched on 30 Sept. until 30 Nov.

Continue reading “First call for new members to join existing 24 ERNs to be launched on 30 Sept. until 30 Nov.”

French MSA patient organisation ARAMISE launches fundraising campaign

Continue reading “French MSA patient organisation ARAMISE launches fundraising campaign”

EBC, EFNA & EAN sent joint open letter to EU leaders

Continue reading “EBC, EFNA & EAN sent joint open letter to EU leaders”

The Ataxia Global Initiatives website is live!

Continue reading “The Ataxia Global Initiatives website is live!”

Research News: “A clinical diagnostic algorithm for early onset cerebellar ataxia”

Continue reading “Research News: “A clinical diagnostic algorithm for early onset cerebellar ataxia””

Frequently Asked Questions for the ERN call for membership

Continue reading “Frequently Asked Questions for the ERN call for membership”

Additional documentation available to prepare applications for the 2019 ERN call for membership

Continue reading “Additional documentation available to prepare applications for the 2019 ERN call for membership”

Dystonia Awareness Month

Continue reading “Dystonia Awareness Month”

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ERN-RND @ern-rnd.bsky.social 4 days

On October 10 we will focus on "Registries for RND" in our Scientific +Symposium. Do you want to join us online (and free of charge)? Then register here now: us02web.zoom.us/webinar/regi...

Programme: www.ern-rnd.eu/wp-content/u...

#RND #RareNeurologicalDisease #registry #neurology #RareNeurology
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ERN-RND @ern-rnd.bsky.social 3 weeks

ERN-RND Annual Meeting 2026 - Registration open

on 10-11 October 2024 in Ljubljana,...
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ERN-RND @ern-rnd.bsky.social 3 weeks

Learn more about registries in Rare Neurological Diseases in our Scientific #Symposium on October 10 - online and free of charge!

For programme and registration click here: www.ern-rnd.eu/wp-content/u...

#registry #RND #RareNeurologicalDisease
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ERN-RND @ern-rnd.bsky.social 4 weeks

Stay informed on the latest developments in rare neurological diseases by subscribing to our #newsletter: www.ern-rnd.eu/mailpoet-ema...
With updates on standards of care, clinical decision support tools, educational webinars, opportunities to participate in research and initiatives, events.
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ERN-RND @ern-rnd.bsky.social 1 month

On #WorldBrainDay2026 we want to reflect on the remarkable progress that has been made in the field of Genetics. From small but meaningful advances to groundbreaking scientific breakthroughs, every step has brought us closer to a better future for people living with RND. youtu.be/hLP9lN4SULo?...

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View post by ERN-RND on Bluesky

ERN-RND @ern-rnd.bsky.social 1 month

Interested in Registries for Rare Neurological Diseases? Then join our Scientific #Symposium on October 10 - online and free of charge!

To see the programme and to register click here: www.ern-rnd.eu/wp-content/u...

#registry #RND #RareNeurologicalDisease #RareNeurology #ERNs

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ERN-RND @ern-rnd.bsky.social 1 month

Become an expert in Ataxias and HSPs with our UEMS certified postgraduate curriculum in the competency "Rare Neurological Diseases." Hosted at eanCampus

Interested? Visit our website for more information: lnkd.in/eKdY5jpf

#Ataxia #HSP #webinar #RND

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