News – Page 8 – ERN-RND | European Reference Network on Rare Neurological Diseases

SCA Global Conference 2020 CANCELLED

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New EHA video on ERN-RND

Continue reading “New EHA video on ERN-RND”

ARCA Global Conference 2020 CANCELLED

Continue reading “ARCA Global Conference 2020 CANCELLED”

ERN-RND Patient advocates meeting report, 30 January 2020

Continue reading “ERN-RND Patient advocates meeting report, 30 January 2020”

ERN-RND Survey: “Research Priorities” for patients

Continue reading “ERN-RND Survey: “Research Priorities” for patients”

EJP RD calls for funding – ERNs only

Continue reading “EJP RD calls for funding – ERNs only”

Successful ERN-RND Registry Application!

Continue reading “Successful ERN-RND Registry Application!”

New #RareDiseaseDay 2020 poster available!

Continue reading “New #RareDiseaseDay 2020 poster available!”

ERN-RND welcomes new affiliated partners

Continue reading “ERN-RND welcomes new affiliated partners”

New EJP RD call: Networking Support Scheme is open!

Continue reading “New EJP RD call: Networking Support Scheme is open!”

“ERNs in a crucial phase of enlargement”

Continue reading ““ERNs in a crucial phase of enlargement””

ERN Newsletter is out!

Continue reading “ERN Newsletter is out!”

Euro-ataxia publishes patient charter

Continue reading “Euro-ataxia publishes patient charter”

EAN 2020 abstract submission is open!

Continue reading “EAN 2020 abstract submission is open!”

#BrainLifeGoals photo competition, submit a photograph!

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European Conference on Rare Diseases & Orphan Products 2020, submit your poster abstract!

Continue reading “European Conference on Rare Diseases & Orphan Products 2020, submit your poster abstract!”

100 days to go until Rare Disease Day 2020!

Continue reading “100 days to go until Rare Disease Day 2020!”

SCA Global Conference registration + poster abstract submissions open!

Continue reading “SCA Global Conference registration + poster abstract submissions open!”

Call to apply to join an ERN is open until 30 November 2019

Continue reading “Call to apply to join an ERN is open until 30 November 2019”

First call for new members to join existing 24 ERNs to be launched on 30 Sept. until 30 Nov.

Continue reading “First call for new members to join existing 24 ERNs to be launched on 30 Sept. until 30 Nov.”

French MSA patient organisation ARAMISE launches fundraising campaign

Continue reading “French MSA patient organisation ARAMISE launches fundraising campaign”

EBC, EFNA & EAN sent joint open letter to EU leaders

Continue reading “EBC, EFNA & EAN sent joint open letter to EU leaders”

The Ataxia Global Initiatives website is live!

Continue reading “The Ataxia Global Initiatives website is live!”

Research News: “A clinical diagnostic algorithm for early onset cerebellar ataxia”

Continue reading “Research News: “A clinical diagnostic algorithm for early onset cerebellar ataxia””

Frequently Asked Questions for the ERN call for membership

Continue reading “Frequently Asked Questions for the ERN call for membership”

Additional documentation available to prepare applications for the 2019 ERN call for membership

Continue reading “Additional documentation available to prepare applications for the 2019 ERN call for membership”

Dystonia Awareness Month

Continue reading “Dystonia Awareness Month”

Interview with Daria Julkowska, coordinator of the European Joint Programme on Rare Diseases

Continue reading “Interview with Daria Julkowska, coordinator of the European Joint Programme on Rare Diseases”

European Commission launches Horizon Europe public consultation

Continue reading “European Commission launches Horizon Europe public consultation”

2019 call for membership to the existing ERNs to open soon

Continue reading “2019 call for membership to the existing ERNs to open soon”

Find us on Bluesky

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ERN-RND @ern-rnd.bsky.social 2 weeks

It's launched: The -- first -- UEMS approved medical training on Rare Neurological Diseases! It consists of webinars, virtual patient cases and a stay in an expert-centre for hands-on-training.

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ERN-RND @ern-rnd.bsky.social 2 weeks

Today at #EAN2026 we are launching the first UEMS approved training on Rare Neurological Diseases: our #PostgraduateCurriculum. Join the talk of our coordinator Holm Graessner to learn how our modular training works, who it is for and be one of the first to apply!
10:35 CEST, Scientific Theatre
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ERN-RND @ern-rnd.bsky.social 2 weeks

Are you at #EAN2026? Then stop by and say hi! We are at the exhibition hall right in front of the Main Auditorium and are looking forward to meeting you.
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ERN-RND @ern-rnd.bsky.social 2 weeks

#EAN2026 is about to start! Come to visit us at our booth (N31) in the Neurohood Exhibition Area and learn more about our new modular #PostgraduateCurriculum

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ERN-RND @ern-rnd.bsky.social 2 weeks

Our new #PostgraduateCurriculum --- UEMS approved --- is about to start soon! Our coordinator Holm Graessner will present the Curriculum at this year's #EAN2026 Congress on Sunday, June 28 at 10:35 CEST! Join us to learn more about our curriculum and how you can apply! #EAN2026
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ERN-RND @ern-rnd.bsky.social 4 weeks

What's new in the field of Rare Neurological Diseases? Our monthly #newsletter keeps you up to date with all important news, free webinars, participation calls, funding opportunities and events. www.ern-rnd.eu/mailpoet-ema...

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ERN-RND @ern-rnd.bsky.social 1 month

Yesterday our ePAGs visited our expert center Motol University Hospital in Prague. Our hosts Martin Vyhnalek and Julie Novakova introduced us to the team at Motol as well as patients and patients representatives they work with.

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