Past Events 2020 – Page 3 – ERN-RND | European Reference Network on Rare Neurological Diseases

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ERN-RND @ern-rnd.bsky.social 3 days

💻#webinar on “Guidelines on the Assessment and Treatment of Neurogenic Urinary and Sexual Symptoms”
📅25th November, 3 CET
🗣️A. Fanciulli and P. Guaraldi, Medical University Innsbruck and Azienda USL di Bologna
Sign up 👉 https://t1p.de/9chttps://t1p.de/9cxi7app/hashtag/webinar">#webinart with the and
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ERN-RND @ern-rnd.bsky.social 3 days

💻 Upcoming #webinar on “Recent Advances in Episodic Ataxias”
📅 18th November, 3:00 CET
🗣️ E. Indelicato and D. Pellerin, Medical University Innsbruck, Austria, and Miller School of Medicine, Miami, USA
Sign up 👉 https://t1p.de/6uunhttps://t1p.de/6uunpps://bsky.app/hashtag/webinar">#webinar and
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ERN-RND @ern-rnd.bsky.social 4 days

Welcome everyone to Day 2 of our Annual Meeting 2025! We just started into our Disease Group meetings of today.
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ERN-RND @ern-rnd.bsky.social 4 days

#QuizNight: A great evening full of laughter, learning, and connection!
How much do you know about ERN-RND?
Do you know how many data sets were submitted to the ERN-RND registry in 2024?
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ERN-RND @ern-rnd.bsky.social 4 days

Patient advocate workshop guided by one key question: what needs our attention most in the RND community? Mental health support? Lack of knowledge and awareness? Tailored transitioning care in adolescence?
Many inspiring ideas and discussions! We’re excited to see how they’ll shape future projects!
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ERN-RND @ern-rnd.bsky.social 4 days

Our Annual Meeting kicked off today with a productive Board Meeting, where we reviewed our achievements from the past 12 months, shared experiences, and discussed exciting new project ideas for the year ahead.
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ERN-RND @ern-rnd.bsky.social 1 week

Join Till Voigtländer for "Overview and First Results of the JARDIN Project " at our Symposium "European Healthcare for RND Patients", Oct 28 12:00https://f.mtr.cool/mpyqdaaqli.mtr.cool/https://f.mtr.cool/qxrjzcwauh.mtr.cool/qxrjzcwauh
Abstract: f.mtr.cool/gyblgukxvx

Category: Past Events 2020

28 February 2020 | Tag der Seltenen Erkrankungen in Mainz

22 February 2020 | Rare diseases and European Reference Networks

20 February 2020: EURO-NMD webinar “mitochondrial donation”

18 February 2020 | ERN-RND webinar “mitochondrial disorder with chorea”

30 January 2020 | ERN-RND ePAG meeting

28 January 2020 | ERN-RND webinar “introduction to leukodystrophies”

21 January 2020 | ERN-RND webinar “immune-mediated choreas”

14 January 2020 | ERN-RND webinar “inherited ataxias”