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ERN-RND | European Reference Network on Rare Neurological Diseases

ERN-RND | European Reference Network on Rare Neurological Diseases

for rare or low prevalence complex diseases

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Category: Past Events 2021

9 – 11 December 2021 | Workshop: The Future of Medical Data Sharing in Clinical Neurosciences

9 – 11 December 2021 | Workshop:  The Future of Medical Data Sharing in Clinical Neurosciences
Digital meeting

HBP, EBRAINS and the EAN invite the entire scientific community to join this workshop on the Future of Medical Data Sharing in Neuroscience.

More information.

Posted on December 12, 2021June 5, 2024Categories Past Events, Past Events 2021

8 – 11 December 2021 | European Congress of NeuroRehabilitation 2021

8 – 11 December 2021 | European Congress of NeuroRehabilitation 2021

Jointly with 27. Jahrestagung der Deutschen Gesellschaft für Neurorehabilitation

Continue reading “8 – 11 December 2021 | European Congress of NeuroRehabilitation 2021”
Posted on December 12, 2021June 5, 2024Categories Past Events, Past Events 2021

25 & 26 November 2021 | EPNS accredited VIRTUAL Research Meeting 2021

25 & 26 November 2021 | EPNS accredited VIRTUAL Research Meeting 2021

Continue reading “25 & 26 November 2021 | EPNS accredited VIRTUAL Research Meeting 2021”

Posted on November 26, 2021June 5, 2024Categories Past Events, Past Events 2021

25 November 2021 | EJP RD resource webinar on Orphanet

25 November 2021 | EJP RD resource webinar on Orphanet

Continue reading “25 November 2021 | EJP RD resource webinar on Orphanet”

Posted on November 25, 2021June 5, 2024Categories Past Events, Past Events 2021

22-23 November 2021 | Ataxia Global Initiative symposium

22-23 November 2021 | Ataxia Global Initiative symposium

Continue reading “22-23 November 2021 | Ataxia Global Initiative symposium”

Posted on November 23, 2021June 5, 2024Categories Past Events, Past Events 2021

18 – 19 November | First International conference on Rare Diseases and Paediatric Research

18 – 19 November | First International conference on Rare Diseases and Paediatric Research

Continue reading “18 – 19 November | First International conference on Rare Diseases and Paediatric Research”

Posted on November 20, 2021June 5, 2024Categories Past Events, Past Events 2021

18 – 19 November | MDS 1st Movement Disorders Clinical Practice Conference

18 – 19 November | MDS 1st Movement Disorders Clinical Practice Conference

Continue reading “18 – 19 November | MDS 1st Movement Disorders Clinical Practice Conference”

Posted on November 19, 2021June 5, 2024Categories Past Events, Past Events 2021

4 November | Drug repurposing for rare diseases workshop series

4 November | Drug repurposing for rare diseases workshop series

Continue reading “4 November | Drug repurposing for rare diseases workshop series”

Posted on November 4, 2021June 5, 2024Categories Past Events, Past Events 2021

25 – 27 October | Training: Pluripotent stem cells for rare disease research: banking, data, application (registration deadline 27 September)

25 – 27 October | Training: Pluripotent stem cells for rare disease research: banking, data, application (registration deadline 27 September)

Continue reading “25 – 27 October | Training: Pluripotent stem cells for rare disease research: banking, data, application (registration deadline 27 September)”

Posted on October 26, 2021June 5, 2024Categories Past Events, Past Events 2021

15-16 October 2021 | Italian Mitochondrial Disease Conference 2021

15-16 October 2021 | Italian Mitochondrial Disease Conference 2021
Continue reading “15-16 October 2021 | Italian Mitochondrial Disease Conference 2021”
Posted on October 16, 2021June 5, 2024Categories Past Events, Past Events 2021

15 & 22 October | MDS-ES and EHDN Joint Online Course Series: Huntington’s Disease: From Foundational Principles to Assessment and Treatment

15 &  22 October | MDS-ES and EHDN Joint Online Course Series: Huntington’s Disease: From Foundational Principles to Assessment and Treatment

Continue reading “15 & 22 October | MDS-ES and EHDN Joint Online Course Series: Huntington’s Disease: From Foundational Principles to Assessment and Treatment”

Posted on October 15, 2021June 5, 2024Categories Past Events, Past Events 2021

12 October 2021 | ERN-RND webinar “Functional gait disorders: a sign-based approach”

12 October 2021 | ERN-RND webinar “Functional gait disorders: a sign-based approach”

Continue reading “12 October 2021 | ERN-RND webinar “Functional gait disorders: a sign-based approach””

Posted on October 10, 2021June 5, 2024Categories Past Events, Past Events 2021

19 October 2021 | ERN-RND webinar “Oligonucleotide therapies: a new class of drugs that allow precise genetic targeting”

19 October 2021 | ERN-RND webinar “Oligonucleotide therapies: a new class of drugs that allow precise genetic targeting”

Continue reading “19 October 2021 | ERN-RND webinar “Oligonucleotide therapies: a new class of drugs that allow precise genetic targeting””

Posted on October 10, 2021June 5, 2024Categories Past Events, Past Events 2021

26 October 2021 | ERN-RND webinar “Pelizaeus-Merzbacher disease and related disorders”

26 October 2021 | ERN-RND webinar “Pelizaeus-Merzbacher disease and related disorders”

Continue reading “26 October 2021 | ERN-RND webinar “Pelizaeus-Merzbacher disease and related disorders””

Posted on October 10, 2021June 5, 2024Categories Past Events, Past Events 2021

18 November 2021 | ERN-RND webinar “Pure autonomic failure: really that pure?”

18 November 2021 | ERN-RND webinar “Pure autonomic failure: really that pure?”

Continue reading “18 November 2021 | ERN-RND webinar “Pure autonomic failure: really that pure?””

Posted on October 10, 2021June 5, 2024Categories Past Events, Past Events 2021

9 November 2021 | ERN-RND webinar “Clinical Outcome Assessments in Ataxias”

9 November 2021 | ERN-RND webinar “Clinical Outcome Assessments in Ataxias”

Continue reading “9 November 2021 | ERN-RND webinar “Clinical Outcome Assessments in Ataxias””

Posted on October 10, 2021June 5, 2024Categories Past Events, Past Events 2021

7 October 2021 | ERN-RND webinar “x-linked adrenoleukodystrophies-Update”

7 October 2021 | ERN-RND webinar “x-linked adrenoleukodystrophies-Update”

Continue reading “7 October 2021 | ERN-RND webinar “x-linked adrenoleukodystrophies-Update””

Posted on October 7, 2021June 5, 2024Categories Past Events, Past Events 2021

3-7 October 2021 | XXV World Congress of Neurology

3-7 October 2021 | XXV World Congress of Neurology

Continue reading “3-7 October 2021 | XXV World Congress of Neurology”

Posted on October 7, 2021June 5, 2024Categories Past Events, Past Events 2021

September 2021 | Dystonia Awareness Month

Continue reading “September 2021 | Dystonia Awareness Month”

Posted on September 30, 2021June 5, 2024Categories Past Events, Past Events 2021

28 September 2021 | ERN-RND webinar “Treatable dystonias & dystonia in inborn errors of metabolism”

28 September 2021 | ERN-RND webinar “Treatable dystonias & dystonia in inborn errors of metabolism”

Continue reading “28 September 2021 | ERN-RND webinar “Treatable dystonias & dystonia in inborn errors of metabolism””

Posted on September 28, 2021June 5, 2024Categories Past Events, Past Events 2021

17-22 September 2021 | MDS Virtual Congress 2021

17-22 September 2021 | MDS Virtual Congress 2021

Continue reading “17-22 September 2021 | MDS Virtual Congress 2021”

Posted on September 22, 2021June 5, 2024Categories Past Events, Past Events 2021

14 September 2021 | ERN-RND webinar “Genetic forms of Parkinson’s disease”

14 September 2021 | ERN-RND webinar “Genetic forms of Parkinson’s disease”

Continue reading “14 September 2021 | ERN-RND webinar “Genetic forms of Parkinson’s disease””

Posted on September 14, 2021June 5, 2024Categories Past Events, Past Events 2021

9-11 September 2021 | EHDN plenary meeting

9-11 September 2021 | EHDN plenary meeting

Continue reading “9-11 September 2021 | EHDN plenary meeting”

Posted on September 11, 2021June 5, 2024Categories Past Events, Past Events 2021

4 September 2021 | Dystonia Europe Annual Conference – Dystonia Day

4 September 2021 | Dystonia Europe Annual Conference – Dystonia Day

Continue reading “4 September 2021 | Dystonia Europe Annual Conference – Dystonia Day”

Posted on September 4, 2021June 5, 2024Categories Past Events, Past Events 2021

6 July 2021 | ERN-RND webinar “Speech as a biomarker in ataxia: What can it tell us and how should we use it?”

6 July 2021 | ERN-RND webinar “Speech as a biomarker in ataxia: What can it tell us and how should we use it?”

Continue reading “6 July 2021 | ERN-RND webinar “Speech as a biomarker in ataxia: What can it tell us and how should we use it?””

Posted on July 6, 2021June 5, 2024Categories Past Events, Past Events 2021

30 June – 2 July 2021 | ERN-RND Annual Meeting

30 June – 2 July 2021 | ERN-RND Annual Meeting
Continue reading “30 June – 2 July 2021 | ERN-RND Annual Meeting”
Posted on July 1, 2021June 5, 2024Categories Past Events, Past Events 2021

19-22 June 2021 | EAN Congress 2021

19-22 June 2021 | EAN Congress 2021

Continue reading “19-22 June 2021 | EAN Congress 2021”

Posted on June 22, 2021June 5, 2024Categories Past Events, Past Events 2021

15 June 2021 | ERN-RND webinar “Update Metachromatic Leukodystrophy”

15 June 2021 | ERN-RND webinar “Update Metachromatic Leukodystrophy”

Continue reading “15 June 2021 | ERN-RND webinar “Update Metachromatic Leukodystrophy””

Posted on June 15, 2021June 5, 2024Categories Past Events, Past Events 2021

8 June 2021 | ERN-RND webinar “MRI pattern recognition in leukodystrophies”

8 June 2021 | ERN-RND webinar “MRI pattern recognition in leukodystrophies”

Continue reading “8 June 2021 | ERN-RND webinar “MRI pattern recognition in leukodystrophies””

Posted on June 8, 2021June 5, 2024Categories Past Events, Past Events 2021

8 June 2021 | Value of Treatment 2 Synthesis Meeting

8 June 2021 | Value of Treatment 2 Synthesis Meeting

Continue reading “8 June 2021 | Value of Treatment 2 Synthesis Meeting”

Posted on June 8, 2021June 5, 2024Categories Past Events, Past Events 2021

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Webinar Schedule

Latest News

  • ePAG visit at Children’s Hospital Sant Joan de Déu, Barcelona

    July 7, 2025
    Having a rare disease means spending a lot of time around doctors and hospitals. Places, that even adults will not …read more »
  • Meet us at EAN2025

    June 11, 2025
    Are you at this year’s EAN Congress in Helsinki? Then come and visit us at our booth (N21) in the …read more »
  • Review on DBS for Dystonia

    June 11, 2025
    Despite considerable achievements in genetics in dystonias, their response to possible treatment such as Deep Brain Stimulation (DBS) remains to …read more »

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ERN-RND

@ern-rnd.bsky.social

153 Followers 86 Following 142 Posts

European Reference Network for Rare Neurological Diseases (ERN-RND) to improve diagnosis, care & treatment of RND patients.
Free webinars: https://www.ern-rnd.eu/education-training/online-medical-education-for-rare-neurological-diseases/

  • Get to this post

    European Paediatric Neurology Society (EPNS) @epnsnews.bsky.social 2 weeks

    Want to be actively involved in the activities of the YEPNS?

    Learn more - epns.info/young-epns-y...

    Join for FREE! - epns.info/young-epns-y...
  • Get to this post

    ERDERA @erdera.bsky.social 2 weeks

    📢 Exciting news — the #ERDERA Networking Support Scheme is n#ERDERA for applications! 👉 If you are working to advance research in #RareDiseases or rare cancers, this co#RareDiseasesnding opportunity you're looking for!
    🔗 Find out more: https://loom.ly/CwIvcvM
    🔁 Repost: Help us spread this info!
  • Get to this post

    ERN-RND @ern-rnd.bsky.social 2 weeks

    Join our Scientific Symposium on "European Healthcare for RND Patients" on October 28 online! Free registration: us02web.zoom.us/webinar/regi...

    Find the programme here: www.ern-rnd.eu/wp-content/u...

    #HealthcareEU #Neurology #RareDisease #RareNeurologicalDisease #Symposium
  • Get to this post

    ERN-RND @ern-rnd.bsky.social 2 weeks

    Movement Disorders affect also children and therefore paediatric scales are needed - but which one to use when, what treatment in which frequency? A standardization is needed. Learn more in our interview with ERN-RND clinician Juan Dario Ortigoza Escobar www.youtube.com/watch?v=k46u...
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    European Paediatric Neurology Society (EPNS) @epnsnews.bsky.social 3 weeks

    We are delighted to announce that the application period for EPNS Visiting Teacher 2026 is now open!

    For more information visit: epns.info/epns-visitin...
  • Get to this post

    ERN-RND @ern-rnd.bsky.social 4 weeks

    #WorldBrainDay - There are many gaps in the European #Healthcare systems for rare neurological diseases - but if you could change only #OneThing to make it better, what would you choose? Find out what our clinicians, patient advocates and patient organizations would do!
  • Get to this post

    ERN-RND @ern-rnd.bsky.social 4 weeks

    One more day till #WorldBrainDay: "What would you change in the health care system for rare neurological diseases if you could change only one thing to make it better?"

    This is what ERN-RND clinician Rebecca Schuele would change: https://f.mtr.cool/mqrhizkhjs

    #WorldBrainDay2025 <https://f.mtr.cool/mqrhizkhjstag/BrainHealth">#BrainHealth

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ERN-RND European Reference Network for Rare Neurological Diseases

Our mission

ERN-RND aims to support rare neurological patients in Europe in getting a timely and appropriate diagnosis, treatment and care.

ERNs

ERN-RND is one of the 24 European Reference Networks (ERNs) approved by the ERN Board of Member States. For more information about the ERNs and the EU Health strategy, please visit https://ec.europa.eu/health/ern_en

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