Welcome to the ERN-RND Annual Meeting 2025 and its Scientific Symposium!
What awaits us?
- Sunday 26th October 2025, DAY 1: Board meeting (only for board members), Data Access Committee meeting, and social event
- Monday 27th October 2025, DAY 2: Disease Group and Working Group meetings, and poster session
- Tuesday 28th October 2025, DAY 3: Scientific Symposium “European Healthcare for RND patients”
Find more information in our programme here:
Venue: Schloss Tutzing
Schloßstraße 2+4, 82327 Tutzing
Satisfaction survey and reimbursement form:
Poster Session on 27th October 2025
ePAG common Patient Journey
ERN-RND Coordination
General ERN-RND overview, network governance
ERN-RND Dissemination
Patient Journeys: flyers, movies, hand-out campaign, translations, recruiting translators
ERN-RND Evaluation
Monitoring, HCP performance indicators system, 5-year evaluation
ERN-RND Training
Online medical education and postgraduate curriculum, short exchange programme
ERN-RND Registry
CPMS care pathways
DBS, TEP MLD, neuroradiology panel, TEP Krabbe
EU login and technical aspects
Funded projects: MSA clinical deficit scales
DG APS
Funded projects: Developing a multiple system atrophy pain scale
DG APS
Guidelines: MSA and PSP
DG APS
Genetic testing in PD
DG APS
Funded projects: New SARA scale
DG Ataxia/HSP
Funded projects: Diagnosis and management of genetic ataxias in adulthood: An EAN/ERN-RND guideline
DG Ataxia/HSP
Funded projects: Clinical practice guideline for NKX2-1-related disorders
DG HD and chorea
Guidelines: GNAO1
DG HD and chorea
Treatment options of behavioural FTD
DG FTD
Speech and language therapy
DG FTD
Guidelines: DBS in monogenic Dystonia
DG Dystonia
Guidelines: MLD
DG Leukoencephalopathies
