Welcome to the ERN-RND Annual Meeting 2026 and its Scientific Symposium!
What awaits us?
- Thursday, 08th October 2026, DAY 1: Networking session (internal projects), Board meeting (only for board members), and social event
- Friday, 09th October 2026, DAY 2: Disease Group and Working Group meetings, Data Access Committee meeting, and poster session
- Sunday, 10th October 2026, DAY 3: Scientific Symposium “Registries for RND”
Find more information in our programme here:
Venue: Ospedale Pediatrico Bambino Gesu, San Paolo site, Rome, Italy
Viale Ferdinando Baldelli, 38, 00146 Roma RM, Italy
Satisfaction survey and reimbursement form:
Poster Session on 09th October 2026
ePAG Support Package
ERN-RND Coordination
General ERN-RND overview, network governance
ERN-RND Dissemination
Patient Journeys, flyers, movies, hand-out campaign, translations, recruiting translators
ERN-RND Evaluation
Monitoring, HCP performance indicators system, 5-year evaluation
ERN-RND Training
Online medical education and postgraduate curriculum, short exchange programme
ERN-RND Registry
CPMS 2.0 care pathways
DBS, TEP MLD, neuroradiology panel, TEP Krabbe
CPMS 2.0
EU login and technical aspects
ERN-RND Care Standards
Update of past year
ERN-RND care access and quality – EQA NGS
ERN-RND care access and quality – gene therapy survey
Funded projects: MSA clinical deficit scales
DG APS
Atypical PD: Red flags for primary care
DG APS
Diagnostic flowchart for Atypical Parkinsonian Syndromes
DG APS
Funded projects: Development and validation of an optimized clinical Ataxia scale
DG Ataxia/HSP
Funded projects: Diagnosis and management of genetic ataxias in adulthood: an EAN/ERN-RND guideline
DG Ataxia/HSP
Revision of Diagnostic Flowchart for HSP
DG Ataxia/HSP
Funded projects: Clinical practice guideline for NKX2-1-related disorders
DG HD and chorea
Funded projects: NKX2-1-related disorders – Genotype PICOs
DG HD and chorea
Funded projects: Cross-linguistic evaluation of the Mini-Linguistic State Examination (MLSE) in patients with Primary Progressive Aphasia (PPA)
D
DG FTD
FTD: Caregiver survey
DG FTD
FTD red flags
DG FTD
SOP DBS in Dystonia
DG Dystonia
Guidelines: DBS in monogenic Dystonia
DG Dystonia
JARDIN: Patient pathway DBS in monogenic dystonia
DG Dystonia
Dystonia: BoNT survey
DG Dystonia
Guidelines: MLD
DG Leukodystrophies
