We understand that members of the rare neurological disease community may be concerned about their health in regards to the current COVID-19 pandemic.
Please check the following websites for official and regularly updated information on COVID-19:
World Health Organization
European Centre for Disease Control
National information resources for the public on COVID-19
US Centers for Disease Control and Prevention
British Society for Genetic Medicine
European Academy of Neurology recommendation: "RNDs in the COVID-19 era: Suggestions for information to patients & caregivers"
Welcome to ERN-RND
your network for Rare Neurological Diseases in Europe
The ERN-RND is a European Reference Network established by the EU to support patients and families affected by rare neurological diseases (RND) which requires much specialised knowledge, treatment and resources.
Some diseases are so rare that the necessary knowledge might not be available in the patient’s nearest health centre or country. The patient doesn’t travel but knowledge does. Specific information about the diseases ERN-RND covers can be found in the Disease Knowledge section.
European Reference Networks (ERNs) are virtual networks connecting healthcare professionals around Europe with expertise in rare diseases which allows them to discuss a patient’s diagnosis and care, with their consent, via an online IT platform called the Clinical Patient Management System (CPMS).
ERN-RND unites 41 of Europe’s leading expert centres in 22 Member States and includes highly active patient organisations. Centres are located in Austria, Belgium, Bulgaria, Croatia, Czech Republic, Denmark, Estonia, Finland, France, Germany, Hungary, Italy, Latvia, Lithuania, Luxembourg, Malta, Netherlands, Poland, Slovenia, Spain and the UK.