Event: 1st International Conference on Rare Diseases “Building a Pathway from Diagnosis to Access”
Date: 1-2 March
The 1st International Conference on Rare Diseases “Building a Pathway from Diagnosis to Access” recognises that the next decade holds great potential for improvement and that while we cannot predict the future, we all have a role in preparing for it. As the EU shapes its future regulations, strategies and access policies, this conference will serve as an opportunity to press the ‘pause button’ and take the time to co-create policy options today that can lead to a better patient journey in the future.
Engaging all stakeholders to take action, the 1st International Conference on Rare Diseases aspires to bring together all stakeholders in the rare disease community – patient representatives, policy makers, clinicians, researchers, industry representatives, payers and regulators to exchange invaluable knowledge with the aim to enhance dialogue and promote policy changes to help build a better pathway from Diagnosis to Access for Rare Diseases.
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