ERN-RND Patient advocates meeting report, 30 January 2020 Continue reading “ERN-RND Patient advocates meeting report, 30 January 2020”
29 February 2020 | Süddeutscher Fachtag der Seltenen Erkrankungen Continue reading “29 February 2020 | Süddeutscher Fachtag der Seltenen Erkrankungen”
28 February 2020 | Tag der Seltenen Erkrankungen in Mainz Continue reading “28 February 2020 | Tag der Seltenen Erkrankungen in Mainz”
ERN-RND Survey: “Research Priorities” for patients Continue reading “ERN-RND Survey: “Research Priorities” for patients”
22 February 2020 | Rare diseases and European Reference Networks Continue reading “22 February 2020 | Rare diseases and European Reference Networks”
20 February 2020: EURO-NMD webinar “mitochondrial donation” Continue reading “20 February 2020: EURO-NMD webinar “mitochondrial donation””
18 February 2020 | ERN-RND webinar “mitochondrial disorder with chorea” Continue reading “18 February 2020 | ERN-RND webinar “mitochondrial disorder with chorea””
28 January 2020 | ERN-RND webinar “introduction to leukodystrophies” Continue reading “28 January 2020 | ERN-RND webinar “introduction to leukodystrophies””
21 January 2020 | ERN-RND webinar “immune-mediated choreas” Continue reading “21 January 2020 | ERN-RND webinar “immune-mediated choreas””
14 January 2020 | ERN-RND webinar “inherited ataxias” Continue reading “14 January 2020 | ERN-RND webinar “inherited ataxias””
New #RareDiseaseDay 2020 poster available! Continue reading “New #RareDiseaseDay 2020 poster available!”
17 December | ERN-RND webinar “non-progressive congenital ataxia” Continue reading “17 December | ERN-RND webinar “non-progressive congenital ataxia””
New EJP RD call: Networking Support Scheme is open! Continue reading “New EJP RD call: Networking Support Scheme is open!”
16 December | Solve-RD webinar “RD-Connect GPAP – advanced platform features” Continue reading “16 December | Solve-RD webinar “RD-Connect GPAP – advanced platform features””
9 December | Solve-RD webinar “RD-Connect GPAP – basic analysis” Continue reading “9 December | Solve-RD webinar “RD-Connect GPAP – basic analysis””
6 December | Journée Nationale Maladie de Huntington Continue reading “6 December | Journée Nationale Maladie de Huntington”
3 December | ERN-RND webinar “Neuroacanthocytosis syndromes, a rare chorea” Continue reading “3 December | ERN-RND webinar “Neuroacanthocytosis syndromes, a rare chorea””
26 November | 5th BRAIN-TEAM patient organisations day Continue reading “26 November | 5th BRAIN-TEAM patient organisations day”
#BrainLifeGoals photo competition, submit a photograph! Continue reading “#BrainLifeGoals photo competition, submit a photograph!”