ERN-RND – Page 3 – ERN-RND | European Reference Network on Rare Neurological Diseases

Digital meeting

HBP, EBRAINS and the EAN invite the entire scientific community to join this workshop on the Future of Medical Data Sharing in Neuroscience.

More information.

8 – 11 December 2021 | European Congress of NeuroRehabilitation 2021

Jointly with 27. Jahrestagung der Deutschen Gesellschaft für Neurorehabilitation

25 & 26 November 2021 | EPNS accredited VIRTUAL Research Meeting 2021

Continue reading “25 & 26 November 2021 | EPNS accredited VIRTUAL Research Meeting 2021”

25 November 2021 | EJP RD resource webinar on Orphanet

Continue reading “25 November 2021 | EJP RD resource webinar on Orphanet”

22-23 November 2021 | Ataxia Global Initiative symposium

Continue reading “22-23 November 2021 | Ataxia Global Initiative symposium”

18 – 19 November | First International conference on Rare Diseases and Paediatric Research

Continue reading “18 – 19 November | First International conference on Rare Diseases and Paediatric Research”

18 – 19 November | MDS 1st Movement Disorders Clinical Practice Conference

Continue reading “18 – 19 November | MDS 1st Movement Disorders Clinical Practice Conference”

EURORDIS Photo Award

Continue reading “EURORDIS Photo Award”

4 November | Drug repurposing for rare diseases workshop series

Continue reading “4 November | Drug repurposing for rare diseases workshop series”

New CPMS helpdesk

Continue reading “New CPMS helpdesk”

Editorial: Networks in Movement Disorders. To Move or Not to Move

Continue reading “Editorial: Networks in Movement Disorders. To Move or Not to Move”

25 – 27 October | Training: Pluripotent stem cells for rare disease research: banking, data, application (registration deadline 27 September)

Continue reading “25 – 27 October | Training: Pluripotent stem cells for rare disease research: banking, data, application (registration deadline 27 September)”

Publication: “Preparing n-of-1 Antisense Oligonucleotide Treatments for Rare Neurological Diseases in Europe: Genetic, Regulatory, and Ethical Perspectives”

Continue reading “Publication: “Preparing n-of-1 Antisense Oligonucleotide Treatments for Rare Neurological Diseases in Europe: Genetic, Regulatory, and Ethical Perspectives””

15-16 October 2021 | Italian Mitochondrial Disease Conference 2021

Continue reading “15-16 October 2021 | Italian Mitochondrial Disease Conference 2021”

15 & 22 October | MDS-ES and EHDN Joint Online Course Series: Huntington’s Disease: From Foundational Principles to Assessment and Treatment

Continue reading “15 & 22 October | MDS-ES and EHDN Joint Online Course Series: Huntington’s Disease: From Foundational Principles to Assessment and Treatment”

9 November 2021 | ERN-RND webinar “Clinical Outcome Assessments in Ataxias”

Continue reading “9 November 2021 | ERN-RND webinar “Clinical Outcome Assessments in Ataxias””

18 November 2021 | ERN-RND webinar “Pure autonomic failure: really that pure?”

Continue reading “18 November 2021 | ERN-RND webinar “Pure autonomic failure: really that pure?””

26 October 2021 | ERN-RND webinar “Pelizaeus-Merzbacher disease and related disorders”

Continue reading “26 October 2021 | ERN-RND webinar “Pelizaeus-Merzbacher disease and related disorders””

19 October 2021 | ERN-RND webinar “Oligonucleotide therapies: a new class of drugs that allow precise genetic targeting”

Continue reading “19 October 2021 | ERN-RND webinar “Oligonucleotide therapies: a new class of drugs that allow precise genetic targeting””

12 October 2021 | ERN-RND webinar “Functional gait disorders: a sign-based approach”

Continue reading “12 October 2021 | ERN-RND webinar “Functional gait disorders: a sign-based approach””

7 October 2021 | ERN-RND webinar “x-linked adrenoleukodystrophies-Update”

Continue reading “7 October 2021 | ERN-RND webinar “x-linked adrenoleukodystrophies-Update””

3-7 October 2021 | XXV World Congress of Neurology

Continue reading “3-7 October 2021 | XXV World Congress of Neurology”

Available from EJP RD: MOOC Diagnosing Rare Diseases: from the Clinic to Research and back

Continue reading “Available from EJP RD: MOOC Diagnosing Rare Diseases: from the Clinic to Research and back”

September 2021 | Dystonia Awareness Month

Continue reading “September 2021 | Dystonia Awareness Month”

28 September 2021 | ERN-RND webinar “Treatable dystonias & dystonia in inborn errors of metabolism”

Continue reading “28 September 2021 | ERN-RND webinar “Treatable dystonias & dystonia in inborn errors of metabolism””

17-22 September 2021 | MDS Virtual Congress 2021

Continue reading “17-22 September 2021 | MDS Virtual Congress 2021”

14 September 2021 | ERN-RND webinar “Genetic forms of Parkinson’s disease”

Continue reading “14 September 2021 | ERN-RND webinar “Genetic forms of Parkinson’s disease””

Author: ERN-RND

4 – 5 March 2022 | EJP RD workshop: Contemporary outcome measures in NeuroMuscular diseases

United Nations adopts Resolution on persons with rare diseases

33 new ERN-RND members!

9 – 11 December 2021 | Workshop: The Future of Medical Data Sharing in Clinical Neurosciences

Digital meeting

8 – 11 December 2021 | European Congress of NeuroRehabilitation 2021

Jointly with 27. Jahrestagung der Deutschen Gesellschaft für Neurorehabilitation

25 & 26 November 2021 | EPNS accredited VIRTUAL Research Meeting 2021

25 November 2021 | EJP RD resource webinar on Orphanet

22-23 November 2021 | Ataxia Global Initiative symposium

18 – 19 November | First International conference on Rare Diseases and Paediatric Research

18 – 19 November | MDS 1st Movement Disorders Clinical Practice Conference

EURORDIS Photo Award

4 November | Drug repurposing for rare diseases workshop series

New CPMS helpdesk

Editorial: Networks in Movement Disorders. To Move or Not to Move

25 – 27 October | Training: Pluripotent stem cells for rare disease research: banking, data, application (registration deadline 27 September)

Publication: “Preparing n-of-1 Antisense Oligonucleotide Treatments for Rare Neurological Diseases in Europe: Genetic, Regulatory, and Ethical Perspectives”

15-16 October 2021 | Italian Mitochondrial Disease Conference 2021

Continue reading “15-16 October 2021 | Italian Mitochondrial Disease Conference 2021”

15 & 22 October | MDS-ES and EHDN Joint Online Course Series: Huntington’s Disease: From Foundational Principles to Assessment and Treatment

9 November 2021 | ERN-RND webinar “Clinical Outcome Assessments in Ataxias”

18 November 2021 | ERN-RND webinar “Pure autonomic failure: really that pure?”

26 October 2021 | ERN-RND webinar “Pelizaeus-Merzbacher disease and related disorders”

19 October 2021 | ERN-RND webinar “Oligonucleotide therapies: a new class of drugs that allow precise genetic targeting”

12 October 2021 | ERN-RND webinar “Functional gait disorders: a sign-based approach”

7 October 2021 | ERN-RND webinar “x-linked adrenoleukodystrophies-Update”

3-7 October 2021 | XXV World Congress of Neurology

Available from EJP RD: MOOC Diagnosing Rare Diseases: from the Clinic to Research and back

September 2021 | Dystonia Awareness Month

28 September 2021 | ERN-RND webinar “Treatable dystonias & dystonia in inborn errors of metabolism”

17-22 September 2021 | MDS Virtual Congress 2021

14 September 2021 | ERN-RND webinar “Genetic forms of Parkinson’s disease”