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ERN-RND | European Reference Network on Rare Neurological Diseases

ERN-RND | European Reference Network on Rare Neurological Diseases

for rare or low prevalence complex diseases

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    • … for rare neurological diseases
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Author: ERN-RND

28 April-2 May 2022 | 14th European Paediatric Neurology Society Congress

28 April-2 May 2022 | 14th European Paediatric Neurology Society Congress

Continue reading “28 April-2 May 2022 | 14th European Paediatric Neurology Society Congress”

Posted on May 2, 2022June 5, 2024Categories Past Events, Past Events 2022

25 – 27 April 2022 | Solve-RD Annual Meeting

25 – 27 April 2022 | Solve-RD Annual Meeting

Venue: Prague, CZ

Continue reading “25 – 27 April 2022 | Solve-RD Annual Meeting”
Posted on April 27, 2022June 5, 2024Categories Past Events, Past Events 2022

24 – 27 March 2022 | 16th World Congress on Controversies in Neurology

24 – 27 March 2022 | 16th World Congress on Controversies in Neurology

Continue reading “24 – 27 March 2022 | 16th World Congress on Controversies in Neurology”

Posted on March 27, 2022June 5, 2024Categories Past Events, Past Events 2022

24 – 25 March 2022 | EPNS VIRTUAL Training Course: Acute Paediatric Neurological Diseases

24 – 25 March 2022 | EPNS VIRTUAL Training Course: Acute Paediatric Neurological Diseases

Continue reading “24 – 25 March 2022 | EPNS VIRTUAL Training Course: Acute Paediatric Neurological Diseases”

Posted on March 26, 2022June 5, 2024Categories Past Events, Past Events 2022

7 – 9 March 2022 | 2nd Expert Summit on the Future of Deep Brain Stimulation

7 – 9 March 2022 | 2nd Expert Summit on the Future of Deep Brain Stimulation
Continue reading “7 – 9 March 2022 | 2nd Expert Summit on the Future of Deep Brain Stimulation”
Posted on March 9, 2022June 5, 2024Categories Past Events, Past Events 2022

Publication: “Acute-onset paralytic strabismus in toddlers is important to consider as a potential early sign of late-infantile Metachromatic Leukodystrophy”

Publication: “Acute-onset paralytic strabismus in toddlers is important to consider as a potential early sign of late-infantile Metachromatic Leukodystrophy”

Continue reading “Publication: “Acute-onset paralytic strabismus in toddlers is important to consider as a potential early sign of late-infantile Metachromatic Leukodystrophy””

Posted on March 1, 2022August 13, 2024Categories News 2022

22 February 2022 | EPNS Case Discussion: Neuromodulation in Dystonia

22 February 2022 | EPNS Case Discussion: Neuromodulation in Dystonia

Continue reading “22 February 2022 | EPNS Case Discussion: Neuromodulation in Dystonia”

Posted on February 22, 2022June 5, 2024Categories Past Events, Past Events 2022

Publication from the European Metachromatic Leukodystrophy initiative (MLDi)

Publication from the European Metachromatic Leukodystrophy initiative (MLDi)

Continue reading “Publication from the European Metachromatic Leukodystrophy initiative (MLDi)”

Posted on February 16, 2022August 13, 2024Categories News 2022

9 February 2022 | EJPRD- ERICA Joint Workshop “Finding RD registry data in the Virtual Platform”

9 February 2022 | EJPRD- ERICA Joint Workshop “Finding RD registry data in the Virtual Platform”

Continue reading “9 February 2022 | EJPRD- ERICA Joint Workshop “Finding RD registry data in the Virtual Platform””

Posted on February 9, 2022June 5, 2024Categories Past Events, Past Events 2022

Publication: “Therapy Trial Design in Vanishing White Matter – An Expert Consortium Opinion”

Publication: “Therapy Trial Design in Vanishing White Matter – An Expert Consortium Opinion”

Continue reading “Publication: “Therapy Trial Design in Vanishing White Matter – An Expert Consortium Opinion””

Posted on February 9, 2022August 13, 2024Categories News 2022

8 February 2022 | EURORDIS Black Pearl Award Event

8 February 2022 | EURORDIS Black Pearl Award Event

Continue reading “8 February 2022 | EURORDIS Black Pearl Award Event”

Posted on February 8, 2022June 5, 2024Categories Past Events, Past Events 2022

4 – 5 March 2022 | EJP RD workshop: Contemporary outcome measures in NeuroMuscular diseases

4 – 5 March 2022 | EJP RD workshop: Contemporary outcome measures in NeuroMuscular diseases

Continue reading “4 – 5 March 2022 | EJP RD workshop: Contemporary outcome measures in NeuroMuscular diseases”

Posted on January 11, 2022June 5, 2024Categories Past Events, Past Events 2022

United Nations adopts Resolution on persons with rare diseases

United Nations adopts Resolution on persons with rare diseases

Continue reading “United Nations adopts Resolution on persons with rare diseases”

Posted on January 10, 2022August 13, 2024Categories News 2022

33 new ERN-RND members!

33 new ERN-RND members!

Continue reading “33 new ERN-RND members!”

Posted on December 20, 2021August 13, 2024Categories News 2021

9 – 11 December 2021 | Workshop: The Future of Medical Data Sharing in Clinical Neurosciences

9 – 11 December 2021 | Workshop:  The Future of Medical Data Sharing in Clinical Neurosciences
Digital meeting

HBP, EBRAINS and the EAN invite the entire scientific community to join this workshop on the Future of Medical Data Sharing in Neuroscience.

More information.

Posted on December 12, 2021June 5, 2024Categories Past Events, Past Events 2021

8 – 11 December 2021 | European Congress of NeuroRehabilitation 2021

8 – 11 December 2021 | European Congress of NeuroRehabilitation 2021

Jointly with 27. Jahrestagung der Deutschen Gesellschaft für Neurorehabilitation

Continue reading “8 – 11 December 2021 | European Congress of NeuroRehabilitation 2021”
Posted on December 12, 2021June 5, 2024Categories Past Events, Past Events 2021

25 & 26 November 2021 | EPNS accredited VIRTUAL Research Meeting 2021

25 & 26 November 2021 | EPNS accredited VIRTUAL Research Meeting 2021

Continue reading “25 & 26 November 2021 | EPNS accredited VIRTUAL Research Meeting 2021”

Posted on November 26, 2021June 5, 2024Categories Past Events, Past Events 2021

25 November 2021 | EJP RD resource webinar on Orphanet

25 November 2021 | EJP RD resource webinar on Orphanet

Continue reading “25 November 2021 | EJP RD resource webinar on Orphanet”

Posted on November 25, 2021June 5, 2024Categories Past Events, Past Events 2021

22-23 November 2021 | Ataxia Global Initiative symposium

22-23 November 2021 | Ataxia Global Initiative symposium

Continue reading “22-23 November 2021 | Ataxia Global Initiative symposium”

Posted on November 23, 2021June 5, 2024Categories Past Events, Past Events 2021

18 – 19 November | First International conference on Rare Diseases and Paediatric Research

18 – 19 November | First International conference on Rare Diseases and Paediatric Research

Continue reading “18 – 19 November | First International conference on Rare Diseases and Paediatric Research”

Posted on November 20, 2021June 5, 2024Categories Past Events, Past Events 2021

18 – 19 November | MDS 1st Movement Disorders Clinical Practice Conference

18 – 19 November | MDS 1st Movement Disorders Clinical Practice Conference

Continue reading “18 – 19 November | MDS 1st Movement Disorders Clinical Practice Conference”

Posted on November 19, 2021June 5, 2024Categories Past Events, Past Events 2021

EURORDIS Photo Award

EURORDIS Photo Award

Continue reading “EURORDIS Photo Award”

Posted on November 10, 2021August 13, 2024Categories News 2021

4 November | Drug repurposing for rare diseases workshop series

4 November | Drug repurposing for rare diseases workshop series

Continue reading “4 November | Drug repurposing for rare diseases workshop series”

Posted on November 4, 2021June 5, 2024Categories Past Events, Past Events 2021

New CPMS helpdesk

New CPMS helpdesk

Continue reading “New CPMS helpdesk”

Posted on November 3, 2021August 13, 2024Categories News 2021

Editorial: Networks in Movement Disorders. To Move or Not to Move

Editorial: Networks in Movement Disorders. To Move or Not to Move

Continue reading “Editorial: Networks in Movement Disorders. To Move or Not to Move”

Posted on October 26, 2021August 13, 2024Categories News 2021

25 – 27 October | Training: Pluripotent stem cells for rare disease research: banking, data, application (registration deadline 27 September)

25 – 27 October | Training: Pluripotent stem cells for rare disease research: banking, data, application (registration deadline 27 September)

Continue reading “25 – 27 October | Training: Pluripotent stem cells for rare disease research: banking, data, application (registration deadline 27 September)”

Posted on October 26, 2021June 5, 2024Categories Past Events, Past Events 2021

Publication: “Preparing n-of-1 Antisense Oligonucleotide Treatments for Rare Neurological Diseases in Europe: Genetic, Regulatory, and Ethical Perspectives”

Publication: “Preparing n-of-1 Antisense Oligonucleotide Treatments for Rare Neurological Diseases in Europe: Genetic, Regulatory, and Ethical Perspectives”

Continue reading “Publication: “Preparing n-of-1 Antisense Oligonucleotide Treatments for Rare Neurological Diseases in Europe: Genetic, Regulatory, and Ethical Perspectives””

Posted on October 21, 2021August 13, 2024Categories News 2021

15-16 October 2021 | Italian Mitochondrial Disease Conference 2021

15-16 October 2021 | Italian Mitochondrial Disease Conference 2021
Continue reading “15-16 October 2021 | Italian Mitochondrial Disease Conference 2021”
Posted on October 16, 2021June 5, 2024Categories Past Events, Past Events 2021

15 & 22 October | MDS-ES and EHDN Joint Online Course Series: Huntington’s Disease: From Foundational Principles to Assessment and Treatment

15 &  22 October | MDS-ES and EHDN Joint Online Course Series: Huntington’s Disease: From Foundational Principles to Assessment and Treatment

Continue reading “15 & 22 October | MDS-ES and EHDN Joint Online Course Series: Huntington’s Disease: From Foundational Principles to Assessment and Treatment”

Posted on October 15, 2021June 5, 2024Categories Past Events, Past Events 2021

9 November 2021 | ERN-RND webinar “Clinical Outcome Assessments in Ataxias”

9 November 2021 | ERN-RND webinar “Clinical Outcome Assessments in Ataxias”

Continue reading “9 November 2021 | ERN-RND webinar “Clinical Outcome Assessments in Ataxias””

Posted on October 10, 2021June 5, 2024Categories Past Events, Past Events 2021

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Webinar Schedule

Find us on Bluesky

ERN-RND

@ern-rnd.bsky.social

188 Followers 92 Following 266 Posts

European Reference Network for Rare Neurological Diseases (ERN-RND) to improve diagnosis, care & treatment of RND patients.
Free webinars: https://www.ern-rnd.eu/education-training/online-medical-education-for-rare-neurological-diseases/

  • View post by ERN-RND on Bluesky

    ERN-RND @ern-rnd.bsky.social 22 hours

    Interested in Registries for Rare Neurological Diseases? Then join our Scientific #Symposium on October 10 - online and free of charge!

    To see the programme and to register click here: www.ern-rnd.eu/wp-content/u...

    #registry #RND #RareNeurologicalDisease #RareNeurology #ERNs
  • View post by ERN-RND on Bluesky

    ERN-RND @ern-rnd.bsky.social 3 days

    Become an expert in Ataxias and HSPs with our UEMS certified postgraduate curriculum in the competency "Rare Neurological Diseases." Hosted at eanCampus

    Interested? Visit our website for more information: lnkd.in/eKdY5jpf

    #Ataxia #HSP #webinar #RND
  • View post by ERN-RND on Bluesky

    ERN-RND @ern-rnd.bsky.social 3 weeks

    It's launched: The -- first -- UEMS approved medical training on Rare Neurological Diseases! It consists of webinars, virtual patient cases and a stay in an expert-centre for hands-on-training.
    💬 1
  • View post by ERN-RND on Bluesky

    ERN-RND @ern-rnd.bsky.social 3 weeks

    Today at #EAN2026 we are launching the first UEMS approved training on Rare Neurological Diseases: our #PostgraduateCurriculum. Join the talk of our coordinator Holm Graessner to learn how our modular training works, who it is for and be one of the first to apply!
    10:35 CEST, Scientific Theatre
  • View post by ERN-RND on Bluesky

    ERN-RND @ern-rnd.bsky.social 3 weeks

    Are you at #EAN2026? Then stop by and say hi! We are at the exhibition hall right in front of the Main Auditorium and are looking forward to meeting you.
  • View post by ERN-RND on Bluesky

    ERN-RND @ern-rnd.bsky.social 3 weeks

    #EAN2026 is about to start! Come to visit us at our booth (N31) in the Neurohood Exhibition Area and learn more about our new modular #PostgraduateCurriculum
    ❤️ 1
  • View post by ERN-RND on Bluesky

    ERN-RND @ern-rnd.bsky.social 4 weeks

    Our new #PostgraduateCurriculum --- UEMS approved --- is about to start soon! Our coordinator Holm Graessner will present the Curriculum at this year's #EAN2026 Congress on Sunday, June 28 at 10:35 CEST! Join us to learn more about our curriculum and how you can apply! #EAN2026

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ERN-RND European Reference Network for Rare Neurological Diseases

Our mission

ERN-RND aims to support rare neurological patients in Europe in getting a timely and appropriate diagnosis, treatment and care.

ERNs

ERN-RND is one of the 24 European Reference Networks (ERNs) approved by the ERN Board of Member States. For more information about the ERNs and the EU Health strategy, please visit https://ec.europa.eu/health/ern_en

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