ERN-RND – Page 4 – ERN-RND | European Reference Network on Rare Neurological Diseases

23 March 2021 | ERN-RND webinar “Challenges in Frontotemporal Dementia: clinical, genetic and pathological heterogeneity”

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23 March 2021 | 6ème Journée Nationale BRAIN-TEAM

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15-21 March 2021 | Brain Awareness Week

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Article: “European Reference Networks: challenges and opportunities”

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Survey: educational needs in rare neurological diseases in Europe

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FUNDING – EJP RD / ERN Research Mobility Fellowship call open

Continue reading “FUNDING – EJP RD / ERN Research Mobility Fellowship call open”

13-14 March 2021 | HDYO’s International Young Adult Virtual Congress

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EJP RD – ERN Research Mobility Fellowship funding opportunity

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ERICA project kick-off

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EJP RD Rare Disease Day Video

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Health Awareness Rare Disease Day 2021 campaign

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1-2 March 2021 | 1st International Conference on Rare Diseases “Building a Pathway from Diagnosis to Access”

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28 February 2021 | Rare Disease Day

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New leaflet for patients on Muscle tightness & stiffness – “spasticity” in ataxia

Continue reading “New leaflet for patients on Muscle tightness & stiffness – “spasticity” in ataxia”

ERN-RND recorded webinar: “Improving care for rare disease patients in Europe – Rare Disease Day 2021”

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“Der Weg zur europaweiten Zusammenarbeit” von Holm Graessner

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24 February 2021 | EURORDIS Black Pearl Awards

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26 February 2021 | Tag der Seltenen Erkrankungen in Mainz

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23 February 2021 | ERN-RND webinar “Improving care for rare disease patients in Europe – Rare Disease Day 2021”

Continue reading “23 February 2021 | ERN-RND webinar “Improving care for rare disease patients in Europe – Rare Disease Day 2021””

23 February 2021 | Rare 2030 Final Policy Conference

Continue reading “23 February 2021 | Rare 2030 Final Policy Conference”

ERN-RND recorded webinar: “Rare Disease Natural History Studies: Experience from the GNAO1 Natural History study in a pre and postpandemic world”

Continue reading “ERN-RND recorded webinar: “Rare Disease Natural History Studies: Experience from the GNAO1 Natural History study in a pre and postpandemic world””

ERN-RND recorded webinar: “Progressive Supranuclear Palsy – Update on Diagnostics, Biomarkers and Therapies”

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15 February 2021 | Online workshop “Good practice nelle Reti di Riferimento Europee”

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Research article: “Novel instructionless eye tracking tasks identify emotion recognition deficits in frontotemporal dementia”

Continue reading “Research article: “Novel instructionless eye tracking tasks identify emotion recognition deficits in frontotemporal dementia” “

9 February 2021 | ERN-RND webinar “Rare Disease Natural History Studies: Experience from the GNAO1 Natural History study in a pre and postpandemic world”

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Case report: “Video Case Report: Action Myoclonus After CAR-T Cell Therapy”

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Rare Disease Day 2021 video

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New ERN-RND project manager

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New ERN-RND CPMS helpdesk

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Brief report: “Development of SARAhome, a New Video‐Based Tool for the Assessment of Ataxia at Home”

Continue reading “Brief report: “Development of SARAhome, a New Video‐Based Tool for the Assessment of Ataxia at Home””