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ERN-RND | European Reference Network on Rare Neurological Diseases

ERN-RND | European Reference Network on Rare Neurological Diseases

for rare or low prevalence complex diseases

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Category: News 2019

Dystonia Europe survey – please participate

Dystonia Europe survey – please participate

Continue reading “Dystonia Europe survey – please participate”

Posted on May 20, 2019August 13, 2024Categories News 2019

EAN interviews ERN-RND coordinator Holm Graessner

EAN interviews ERN-RND coordinator Holm Graessner

Continue reading “EAN interviews ERN-RND coordinator Holm Graessner”

Posted on May 6, 2019August 13, 2024Categories News 2019

#BrainLifeGoals project grants from EFNA

#BrainLifeGoals project grants from EFNA

Continue reading “#BrainLifeGoals project grants from EFNA”

Posted on May 2, 2019August 13, 2024Categories News 2019

Brain, Mind and Pain #BookofEvidence for 2019-2024 EU mandate released

Brain, Mind and Pain #BookofEvidence for 2019-2024 EU mandate released

Continue reading “Brain, Mind and Pain #BookofEvidence for 2019-2024 EU mandate released”

Posted on May 2, 2019August 13, 2024Categories News 2019

Postdoc in Computational Genomics at the University Hospital Tübingen – Applications open!

Postdoc in Computational Genomics at the University Hospital Tübingen – Applications open!

Continue reading “Postdoc in Computational Genomics at the University Hospital Tübingen – Applications open!”

Posted on April 29, 2019October 2, 2025Categories News 2019

Report – First SCA Global Conference

Report – First SCA Global Conference

Continue reading “Report – First SCA Global Conference”

Posted on April 15, 2019August 13, 2024Categories News 2019

MoU signed between ERN-RND & EAN

MoU signed between ERN-RND & EAN

Continue reading “MoU signed between ERN-RND & EAN”

Posted on April 11, 2019August 13, 2024Categories News 2019

The ERNs are getting ready for the challenges of enlarging the ERNs

The ERNs are getting ready for the challenges of enlarging the ERNs

Continue reading “The ERNs are getting ready for the challenges of enlarging the ERNs”

Posted on April 8, 2019August 13, 2024Categories News 2019

Call for Proposals – Grant Opportunity for BPAN and MPAN research

Call for Proposals – Grant Opportunity for BPAN and MPAN research

Continue reading “Call for Proposals – Grant Opportunity for BPAN and MPAN research”

Posted on March 21, 2019August 13, 2024Categories News 2019

18 February 2019 | Trial readiness and registries in RND workshop report

18 February 2019 | Trial readiness and registries in RND workshop report

Continue reading “18 February 2019 | Trial readiness and registries in RND workshop report”

Posted on March 15, 2019August 13, 2024Categories News 2019

Rare Disease Day: a new EU platform to support better diagnosis and treatment

Rare Disease Day: a new EU platform to support better diagnosis and treatment

Continue reading “Rare Disease Day: a new EU platform to support better diagnosis and treatment”

Posted on March 7, 2019August 13, 2024Categories News 2019

The ERNs are building a common training and eLearning strategy

The ERNs are building a common training and eLearning strategy

Continue reading “The ERNs are building a common training and eLearning strategy”

Posted on March 4, 2019August 13, 2024Categories News 2019

ERN-RND, ZSE and Solve-RD coordinating offices on #RareDiseaseDay

ERN-RND, ZSE and Solve-RD coordinating offices on #RareDiseaseDay

Continue reading “ERN-RND, ZSE and Solve-RD coordinating offices on #RareDiseaseDay”

Posted on February 28, 2019August 13, 2024Categories News 2019

Living with ataxia and advocating around the world #RareDiseaseDay

Living with ataxia and advocating around the world #RareDiseaseDay

Continue reading “Living with ataxia and advocating around the world #RareDiseaseDay”

Posted on February 28, 2019August 13, 2024Categories News 2019

Working in the BRAIN-TEAM: raising awareness of rare diseases daily #RareDiseaseDay

Continue reading “Working in the BRAIN-TEAM: raising awareness of rare diseases daily #RareDiseaseDay”

Posted on February 27, 2019November 3, 2024Categories News 2019

Being diagnosed at the centre of rare diseases in Tübingen (ZSE) #RareDiseaseDay

Being diagnosed at the centre of rare diseases in Tübingen (ZSE) #RareDiseaseDay

Continue reading “Being diagnosed at the centre of rare diseases in Tübingen (ZSE) #RareDiseaseDay”

Posted on February 26, 2019August 13, 2024Categories News 2019

Pediatric ataxias – the daily work of a clinician in Italy #RareDiseaseDay

Pediatric ataxias – the daily work of a clinician in Italy #RareDiseaseDay

Continue reading “Pediatric ataxias – the daily work of a clinician in Italy #RareDiseaseDay”

Posted on February 20, 2019August 13, 2024Categories News 2019

ERN-RND member Pr Boespflug-Tanguy & team find new Leukodystrophies gene and potential treatment

ERN-RND member Pr Boespflug-Tanguy & team find new Leukodystrophies gene and potential treatment

Continue reading “ERN-RND member Pr Boespflug-Tanguy & team find new Leukodystrophies gene and potential treatment”

Posted on February 12, 2019August 13, 2024Categories News 2019

ERN-RND short fellowship experience in Tübingen, Germany

ERN-RND short fellowship experience in Tübingen, Germany

Continue reading “ERN-RND short fellowship experience in Tübingen, Germany”

Posted on February 11, 2019August 13, 2024Categories News 2019

Full report – 4th European Reference Networks Conference

Full report – 4th European Reference Networks Conference

Continue reading “Full report – 4th European Reference Networks Conference”

Posted on January 8, 2019August 13, 2024Categories News 2019

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Webinar Schedule

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ERN-RND

@ern-rnd.bsky.social

184 Followers 92 Following 257 Posts

European Reference Network for Rare Neurological Diseases (ERN-RND) to improve diagnosis, care & treatment of RND patients.
Free webinars: https://www.ern-rnd.eu/education-training/online-medical-education-for-rare-neurological-diseases/

Last updated 10 minutes ago

  • View post by ERN-RND on Bluesky

    ERN-RND @ern-rnd.bsky.social 5 days

    Yesterday our ePAGs visited our expert center Motol University Hospital in Prague. Our hosts Martin Vyhnalek and Julie Novakova introduced us to the team at Motol as well as patients and patients representatives they work with.
    💬 1
  • View post by ERN-RND on Bluesky

    ERN-RND @ern-rnd.bsky.social 4 weeks

    Our coordinator Holm Graessner will introduce our new Postgraduate Curriculum at this year’s EAN Congress. Join us on Sunday, June 28 at 10:35 CEST (Scientific Theatre)!

    Holm Graessner:
    Advancing Care for Patients with Rare Neurological Diseases – the Development of a Postgraduate Curriculum
    ❤️ 1
  • View post by ERN-RND on Bluesky

    ERN-RND @ern-rnd.bsky.social 4 weeks

    Get the latest news on rare neurological diseases with our monthly #newsletter: www.ern-rnd.eu?mailpoet_rou...

    Find news on #HuntingtonDisease, #FriedreichAtaxia, #CervicalDystonia, #NBIA, #HereditarySpasticParaplegia, #AtypicalParkinsonism, #Leukodystrophy and #FrontotemporalDementia
  • View post by ERN-RND on Bluesky

    ERN-RND @ern-rnd.bsky.social 1 month

    After a quick break we will continue with Nicola Whiffin and "Non-coding Variants in Rare Diseases" at 11:30 CEST.

    Join our #SpringSchool on "Next Generation Sequencing Diagnostics for Rare Neurological Diseases": us02web.zoom.us/webinar/regi...

    programme here: www.ern-rnd.eu/education-tr...
  • View post by ERN-RND on Bluesky

    ERN-RND @ern-rnd.bsky.social 1 month

    Join our free #SpringSchool now - right now on:
    Christian Gilissen with "Bioinformatic Tools for Diagnosing Rare Diseases"

    To join the talk click here: us02web.zoom.us/webinar/regi...

    Find the whole programme here: www.ern-rnd.eu/education-tr...
    ❤️ 1
  • View post by ERN-RND on Bluesky

    ERN-RND @ern-rnd.bsky.social 1 month

    Join Katja Lohmann and Ales Maver to learn about quality insurance and recommendations for NGS during our #SpringSchool on "Next Generation Sequencing Diagnostics for Rare Neurological Diseases” on May 6th at 9:00 CEST.

    Register for free: https://t1p.de/wsatw
    Programme: https://t1p.de/xp523
  • View post by ERN-RND on Bluesky

    ERN-RND @ern-rnd.bsky.social 1 month

    Less than a week to go till our #SpringSchool "Next Generation Sequencing Diagnostics for Rare Neurological Diseases” starts! Join uns online from May 5-7 and register now (free of charge): us02web.zoom.us/webinar/regi...

    Find the programme here: www.ern-rnd.eu/education-tr...
Last updated 10 minutes ago

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ERN-RND European Reference Network for Rare Neurological Diseases

Our mission

ERN-RND aims to support rare neurological patients in Europe in getting a timely and appropriate diagnosis, treatment and care.

ERNs

ERN-RND is one of the 24 European Reference Networks (ERNs) approved by the ERN Board of Member States. For more information about the ERNs and the EU Health strategy, please visit https://ec.europa.eu/health/ern_en

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