Category: News

Continue reading “May is Huntington’s Disease Awareness Month”

Continue reading “ERN-RND May 2020 Newsletter”

Continue reading “Research article: “Cerebrospinal Fluid YKL-40 and Chitotriosidase Levels in Frontotemporal Dementia Vary by Clinical, Genetic and Pathological Subtype””

Continue reading “Research article: “Teaching Video NeuroImages: Palatal tremor associated with SPG7 variants””

Continue reading “ERN Newsletter – April 2020”

Continue reading “Rare Barometer survey on rare disease patients’ experience of COVID-19”

Continue reading “Research article: “Longitudinal dynamics of mutant huntingtin and neurofilament light in Huntington’s disease: the prospective HD-CSF study””

Continue reading “Research article: “Driving Performance in Patients With Idiopathic Cervical Dystonia; A Driving Simulator Pilot Study””

Continue reading “EAN Movement Disorders Scientific Panel recommendations for COVID-19 pandemic”

Continue reading “Dystonia, patient advocacy and the future by Monika Benson”

Continue reading “Recording of webinar on Huntington’s disease & COVID-19 available”

Continue reading “Guidelines on EU Emergency Assistance in Cross-border Cooperation in Healthcare”

Continue reading “Solve-RD brokerage call open”

Continue reading “COVID-19: EURORDIS urges immediate action and proposes concrete solutions for rare disease patients”

Continue reading “Webinar on 6 April: “Huntington’s Disease & COVID-19 pandemic – a difficult combination””

Continue reading “European Commission launches COVID-19 Clinical Management Support System”

Continue reading “EAN Congress 2020 moves online”

Continue reading “ECRD 2020 moves online”

Continue reading “EFNA launches survey on stigma & neurological conditions”

Continue reading “It’s #BrainAwarenessWeek 2020”

Continue reading “European Reference Networks are 3 years old”

Continue reading “SCA Global Conference 2020 CANCELLED”

Continue reading “New EHA video on ERN-RND”

Continue reading “ARCA Global Conference 2020 CANCELLED”

Continue reading “ERN-RND Patient advocates meeting report, 30 January 2020”

Continue reading “ERN-RND Survey: “Research Priorities” for patients”

Continue reading “EJP RD calls for funding – ERNs only”

Continue reading “Successful ERN-RND Registry Application!”

Continue reading “New #RareDiseaseDay 2020 poster available!”

Continue reading “ERN-RND welcomes new affiliated partners”