9-11 September 2021 | EHDN plenary meeting Continue reading “9-11 September 2021 | EHDN plenary meeting”
4 September 2021 | Dystonia Europe Annual Conference – Dystonia Day Continue reading “4 September 2021 | Dystonia Europe Annual Conference – Dystonia Day”
6 July 2021 | ERN-RND webinar “Speech as a biomarker in ataxia: What can it tell us and how should we use it?” Continue reading “6 July 2021 | ERN-RND webinar “Speech as a biomarker in ataxia: What can it tell us and how should we use it?””
30 June – 2 July 2021 | ERN-RND Annual Meeting Continue reading “30 June – 2 July 2021 | ERN-RND Annual Meeting”
15 June 2021 | ERN-RND webinar “Update Metachromatic Leukodystrophy” Continue reading “15 June 2021 | ERN-RND webinar “Update Metachromatic Leukodystrophy””
8 June 2021 | ERN-RND webinar “MRI pattern recognition in leukodystrophies” Continue reading “8 June 2021 | ERN-RND webinar “MRI pattern recognition in leukodystrophies””
8 June 2021 | Value of Treatment 2 Synthesis Meeting Continue reading “8 June 2021 | Value of Treatment 2 Synthesis Meeting”
27-28 May 2021 | ERICA kick-off meeting & first General Assembly Continue reading “27-28 May 2021 | ERICA kick-off meeting & first General Assembly”
18 May 2021 | ERN-RND webinar “Benign hereditary choreas” (paediatric focus) Continue reading “18 May 2021 | ERN-RND webinar “Benign hereditary choreas” (paediatric focus)”
7 May 2021 | ERN-RND webinar “Presenting the new CPMS functionalities and the principle of e-consultations” Continue reading “7 May 2021 | ERN-RND webinar “Presenting the new CPMS functionalities and the principle of e-consultations””
4 May 2021 | ERN-RND webinar “Better Conversations -Communication Partner Training for language led dementias” Continue reading “4 May 2021 | ERN-RND webinar “Better Conversations -Communication Partner Training for language led dementias””
20 April 2021 | ERN-RND webinar “Approach to the patient with non-HD chorea” Continue reading “20 April 2021 | ERN-RND webinar “Approach to the patient with non-HD chorea””
12-15 April 2021 | International BNA2021 Festival of Neuroscience Continue reading “12-15 April 2021 | International BNA2021 Festival of Neuroscience”
13 April 2021 | ERN-RND webinar “MR Biomarkers in Spinocerebellar Ataxias” Continue reading “13 April 2021 | ERN-RND webinar “MR Biomarkers in Spinocerebellar Ataxias””
26 March 2021 | EHA webinar “GENERATION HD1 – what happened and what does it mean?” Continue reading “26 March 2021 | EHA webinar “GENERATION HD1 – what happened and what does it mean?””
23 March 2021 | ERN-RND webinar “Challenges in Frontotemporal Dementia: clinical, genetic and pathological heterogeneity” Continue reading “23 March 2021 | ERN-RND webinar “Challenges in Frontotemporal Dementia: clinical, genetic and pathological heterogeneity””
23 March 2021 | 6ème Journée Nationale BRAIN-TEAM Continue reading “23 March 2021 | 6ème Journée Nationale BRAIN-TEAM”
13-14 March 2021 | HDYO’s International Young Adult Virtual Congress Continue reading “13-14 March 2021 | HDYO’s International Young Adult Virtual Congress”
1-2 March 2021 | 1st International Conference on Rare Diseases “Building a Pathway from Diagnosis to Access” Continue reading “1-2 March 2021 | 1st International Conference on Rare Diseases “Building a Pathway from Diagnosis to Access””
24 February 2021 | EURORDIS Black Pearl Awards Continue reading “24 February 2021 | EURORDIS Black Pearl Awards”
26 February 2021 | Tag der Seltenen Erkrankungen in Mainz Continue reading “26 February 2021 | Tag der Seltenen Erkrankungen in Mainz”
23 February 2021 | ERN-RND webinar “Improving care for rare disease patients in Europe – Rare Disease Day 2021” Continue reading “23 February 2021 | ERN-RND webinar “Improving care for rare disease patients in Europe – Rare Disease Day 2021””
23 February 2021 | Rare 2030 Final Policy Conference Continue reading “23 February 2021 | Rare 2030 Final Policy Conference”
15 February 2021 | Online workshop “Good practice nelle Reti di Riferimento Europee” Continue reading “15 February 2021 | Online workshop “Good practice nelle Reti di Riferimento Europee””
9 February 2021 | ERN-RND webinar “Rare Disease Natural History Studies: Experience from the GNAO1 Natural History study in a pre and postpandemic world” Continue reading “9 February 2021 | ERN-RND webinar “Rare Disease Natural History Studies: Experience from the GNAO1 Natural History study in a pre and postpandemic world””
2 February 2021 | ERN-RND webinar “Genetic dystonia and treatment” Continue reading “2 February 2021 | ERN-RND webinar “Genetic dystonia and treatment””
2 February 2021 | EJP RD webinar on Joint Transnational Call 2021 on “Social Sciences and Humanities Research to Improve Health Care Implementation and Everyday Life of People Living with a Rare Disease” Continue reading “2 February 2021 | EJP RD webinar on Joint Transnational Call 2021 on “Social Sciences and Humanities Research to Improve Health Care Implementation and Everyday Life of People Living with a Rare Disease””