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ERN-RND | European Reference Network on Rare Neurological Diseases

ERN-RND | European Reference Network on Rare Neurological Diseases

for rare or low prevalence complex diseases

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Category: Past Events

6 October 2020 | ERN-RND webinar “Treatment of spasticity in HSP and leukodystrophies”

6 October 2020 | ERN-RND webinar “Treatment of spasticity in HSP and leukodystrophies”

Continue reading “6 October 2020 | ERN-RND webinar “Treatment of spasticity in HSP and leukodystrophies””

Posted on October 6, 2020June 5, 2024Categories Past Events, Past Events 2020

September 2020 | Dystonia Awareness Month

September 2020 | Dystonia Awareness Month

Continue reading “September 2020 | Dystonia Awareness Month”

Posted on September 30, 2020June 5, 2024Categories Past Events, Past Events 2020

29 September 2020 | ERN-RND webinar “How can we develop and implement evidence based rehabilitation in rare disorders?”

29 September 2020 | ERN-RND webinar “How can we develop and implement evidence based rehabilitation in rare disorders?”

Continue reading “29 September 2020 | ERN-RND webinar “How can we develop and implement evidence based rehabilitation in rare disorders?””

Posted on September 29, 2020June 5, 2024Categories Past Events, Past Events 2020

25 September | International Ataxia Awareness Day (IAAW)

25 September | International Ataxia Awareness Day (IAAW)
Posted on September 25, 2020June 5, 2024Categories Past Events, Past Events 2020

17 September 2020 | EURO-NMD webinar “the basics of genetic approaches for NMDs – using DMD as a paradigm”

17 September 2020 | EURO-NMD webinar “the basics of genetic approaches for NMDs – using DMD as a paradigm”

Continue reading “17 September 2020 | EURO-NMD webinar “the basics of genetic approaches for NMDs – using DMD as a paradigm””

Posted on September 17, 2020June 5, 2024Categories Past Events, Past Events 2020

12-16 September 2020 | MDS Virtual Congress

12-16 September 2020 | MDS Virtual Congress

Continue reading “12-16 September 2020 | MDS Virtual Congress”

Posted on September 16, 2020June 5, 2024Categories Past Events, Past Events 2020

15 September 2020 | ERN-RND webinar “A challenge in neurogenetics: Huntington disease in kids”

15 September 2020 | ERN-RND webinar “A challenge in neurogenetics: Huntington disease in kids”

Continue reading “15 September 2020 | ERN-RND webinar “A challenge in neurogenetics: Huntington disease in kids””

Posted on September 15, 2020June 5, 2024Categories Past Events, Past Events 2020

11 September 2020 | EHDN’s Bridging Event 2020

11 September 2020 | EHDN’s Bridging Event 2020

Continue reading “11 September 2020 | EHDN’s Bridging Event 2020”

Posted on September 11, 2020June 5, 2024Categories Past Events, Past Events 2020

10 September 2020 | ERN-RND webinar “How to assess and manage spastic gait in rare diseases?”

10 September 2020 | ERN-RND webinar “How to assess and manage spastic gait in rare diseases?”

Continue reading “10 September 2020 | ERN-RND webinar “How to assess and manage spastic gait in rare diseases?””

Posted on September 10, 2020June 5, 2024Categories Past Events, Past Events 2020

8 September 2020 | 4th EAN Task Force for Rare Neurological Diseases Teaching Course

8 September 2020 | 4th EAN Task Force for Rare Neurological Diseases Teaching Course

Continue reading “8 September 2020 | 4th EAN Task Force for Rare Neurological Diseases Teaching Course”

Posted on September 8, 2020June 5, 2024Categories Past Events, Past Events 2020

8 September 2020 | ERN-RND webinar “Semantic variant of primary progressive aphasia”

8 September 2020 | ERN-RND webinar “Semantic variant of primary progressive aphasia”

Continue reading “8 September 2020 | ERN-RND webinar “Semantic variant of primary progressive aphasia””

Posted on September 8, 2020June 5, 2024Categories Past Events, Past Events 2020

1 December 2020 | ERN-RND webinar “Functional movement disorders: a diagnostic guide”

1 December 2020 | ERN-RND webinar “Functional movement disorders: a diagnostic guide”

Continue reading “1 December 2020 | ERN-RND webinar “Functional movement disorders: a diagnostic guide””

Posted on September 1, 2020June 5, 2024Categories Past Events, Past Events 2020

22 July 2020 | World Brain Day

22 July 2020 | World Brain Day

Continue reading “22 July 2020 | World Brain Day”

Posted on July 22, 2020June 5, 2024Categories Past Events, Past Events 2020

11-15 July 2020 | (Virtual) 12th FENS Forum of Neuroscience

11-15 July 2020 | (Virtual) 12th FENS Forum of Neuroscience

Continue reading “11-15 July 2020 | (Virtual) 12th FENS Forum of Neuroscience”

Posted on July 15, 2020June 5, 2024Categories Past Events, Past Events 2020

14 July 2020 | ERN-RND webinar “Gait rehabilitation in people with Hereditary Spastic Paraplegia & Respiratory physiotherapy in parkinson’s plus syndromes”

14 July 2020 | ERN-RND webinar “Gait rehabilitation in people with Hereditary Spastic Paraplegia & Respiratory physiotherapy in parkinson’s plus syndromes”

Continue reading “14 July 2020 | ERN-RND webinar “Gait rehabilitation in people with Hereditary Spastic Paraplegia & Respiratory physiotherapy in parkinson’s plus syndromes””

Posted on July 14, 2020June 5, 2024Categories Past Events, Past Events 2020

9 July 2020 | ERN-RND webinar “Environmental modifiers in Hereditary Spastic Paraplegia”

9 July 2020 | ERN-RND webinar “Environmental modifiers in Hereditary Spastic Paraplegia”

Continue reading “9 July 2020 | ERN-RND webinar “Environmental modifiers in Hereditary Spastic Paraplegia””

Posted on July 9, 2020June 5, 2024Categories Past Events, Past Events 2020

30 June 2020 | ERN-RND webinar “RCT on intrathecal baclofen for dystonia”

30 June 2020 | ERN-RND webinar “RCT on intrathecal baclofen for dystonia”

Continue reading “30 June 2020 | ERN-RND webinar “RCT on intrathecal baclofen for dystonia””

Posted on June 30, 2020June 5, 2024Categories Past Events, Past Events 2020

30 June 2020 | EFNA webinar “Where’s Neurology? Influencing Covid Recovery Planning, Programmes and Policies”

30 June 2020 | EFNA webinar “Where’s Neurology? Influencing Covid Recovery Planning, Programmes and Policies”

Continue reading “30 June 2020 | EFNA webinar “Where’s Neurology? Influencing Covid Recovery Planning, Programmes and Policies””

Posted on June 30, 2020June 5, 2024Categories Past Events, Past Events 2020

18 June 2020 | ERN-RND webinar “Goal setting and outcome measures of interventions in pediatric rehabilitation”

18 June 2020 | ERN-RND webinar “Goal setting and outcome measures of interventions in pediatric rehabilitation”

Continue reading “18 June 2020 | ERN-RND webinar “Goal setting and outcome measures of interventions in pediatric rehabilitation””

Posted on June 18, 2020June 5, 2024Categories Past Events, Past Events 2020

18 June 2020 | Webinar “A data strategy for the European Reference Networks”

18 June 2020 | Webinar “A data strategy for the European Reference Networks”

Continue reading “18 June 2020 | Webinar “A data strategy for the European Reference Networks””

Posted on June 18, 2020June 5, 2024Categories Past Events, Past Events 2020

15-16-17 June 2020 | ERN-RND (virtual) Annual Meeting

15-16-17 June 2020 | ERN-RND (virtual) Annual Meeting

Continue reading “15-16-17 June 2020 | ERN-RND (virtual) Annual Meeting”

Posted on June 17, 2020June 5, 2024Categories Past Events, Past Events 2020

16 June 2020 | Webinar “Advancing the rare disease research agenda”

16 June 2020 | Webinar “Advancing the rare disease research agenda”

Continue reading “16 June 2020 | Webinar “Advancing the rare disease research agenda””

Posted on June 16, 2020June 5, 2024Categories Past Events, Past Events 2020

6-9 June 2020 | ESHG 2020.2 – Live in your living room

6-9 June 2020 | ESHG 2020.2 – Live in your living room

Continue reading “6-9 June 2020 | ESHG 2020.2 – Live in your living room”

Posted on June 9, 2020June 5, 2024Categories Past Events, Past Events 2020

9 June 2020 | Webinar “The impact of COVID 19 for people living with a Rare Disease” by EC & EURORDIS

9 June 2020 | Webinar “The impact of COVID 19 for people living with a Rare Disease” by EC & EURORDIS

Continue reading “9 June 2020 | Webinar “The impact of COVID 19 for people living with a Rare Disease” by EC & EURORDIS”

Posted on June 9, 2020June 5, 2024Categories Past Events, Past Events 2020

23-26 May 2020 | 6th (Virtual) Congress of the European Academy of Neurology

23-26 May 2020 | 6th (Virtual) Congress of the European Academy of Neurology

Continue reading “23-26 May 2020 | 6th (Virtual) Congress of the European Academy of Neurology”

Posted on May 26, 2020June 5, 2024Categories Past Events, Past Events 2020

26 May 2020 | ERN-RND webinar “Primary progressive aphasia subtyping in clinical practice”

26 May 2020 | ERN-RND webinar “Primary progressive aphasia subtyping in clinical practice”

Continue reading “26 May 2020 | ERN-RND webinar “Primary progressive aphasia subtyping in clinical practice””

Posted on May 26, 2020June 5, 2024Categories Past Events, Past Events 2020

14-15 May 2020 | 10th European Conference on Rare Diseases & Orphan Products (ECRD2020)

14-15 May 2020 | 10th European Conference on Rare Diseases & Orphan Products (ECRD2020)

Continue reading “14-15 May 2020 | 10th European Conference on Rare Diseases & Orphan Products (ECRD2020)”

Posted on May 16, 2020June 5, 2024Categories Past Events, Past Events 2020

12 May 2020 | ERN-RND webinar “paroxysmal dyskinesias: update on clinical and genetic aspects”

12 May 2020 | ERN-RND webinar “paroxysmal dyskinesias: update on clinical and genetic aspects”

Continue reading “12 May 2020 | ERN-RND webinar “paroxysmal dyskinesias: update on clinical and genetic aspects””

Posted on May 12, 2020June 5, 2024Categories Past Events, Past Events 2020

27-29 April 2020 | ‘Training on strategies to foster solutions of undiagnosed rare disease cases’

27-29 April 2020 | ‘Training on strategies to foster solutions of undiagnosed rare disease cases’

Continue reading “27-29 April 2020 | ‘Training on strategies to foster solutions of undiagnosed rare disease cases’”

Posted on April 29, 2020June 5, 2024Categories Past Events, Past Events 2020

29 April | Share4Rare webinar: “State of the Art of Rare Disease Activities in Europe”

29 April | Share4Rare webinar: “State of the Art of Rare Disease Activities in Europe”

Continue reading “29 April | Share4Rare webinar: “State of the Art of Rare Disease Activities in Europe””

Posted on April 29, 2020June 5, 2024Categories Past Events, Past Events 2020

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Webinar Schedule

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ERN-RND

@ern-rnd.bsky.social

172 Followers 90 Following 219 Posts

European Reference Network for Rare Neurological Diseases (ERN-RND) to improve diagnosis, care & treatment of RND patients.
Free webinars: https://www.ern-rnd.eu/education-training/online-medical-education-for-rare-neurological-diseases/

  • Get to this post

    ERN-RND @ern-rnd.bsky.social 6 days

    💻 Upcoming #webinar on “Social and Lifestyle Issues Related to Ataxias and HSP”
    📅 13th January, 3:00 CET
    🗣️ Lotte van de Venis, Radboud University Medical Center, Nijmegen and Lori Renna Linton, Euro-HSP

    Sign up 👉https://t1p.de/5nefhttps://t1p.de/5nef2tps://bsky.app/hashtag/webinar">#webinar and
  • Get to this post

    ERN-RND @ern-rnd.bsky.social 2 weeks

    ⚠️Updated time! No#webinarM CET
    💻 Upcoming #webinar on “The Importance of Genetic Counselling in the Diagnostic of Rare Neurological Disorders”
    📅 9th December
    🗣️ Maria Judit Molnar, Semmelweis University, Buhttps://t1p.de/d825h up 👉https://t1p.de/d825h
    Joint with the and
  • Get to this post

    ERN-RND @ern-rnd.bsky.social 2 weeks

    It's today! Join the live stream here: www.brains4brain.eu/eu-activitie...
  • Get to this post

    European Paediatric Neurology Society (EPNS) @epnsnews.bsky.social 2 weeks

    Meet our EPNS Fellows!

    Dr Marie Rohlenová from Czech Rep went to the Raymond Poincaré hospital in Garches, France in 2025

    To read more about Marie's fellowship experience visit - www.epns.info/epns-fellows...

    To join the EPNS visit - www.epns.info/become.../ne...
  • Get to this post

    European Paediatric Neurology Society (EPNS) @epnsnews.bsky.social 2 weeks

    FREE EPNS WEBINAR: CLIMATE CHANGE

    Open to all.
    Wed 18 Feb 2026 5PMCET
    Paediatric Neurology in the Anthropocene: Clinical perspectives in a changing climate

    Register us02web.zoom.us/webinar/register/WN_R7B23GXoRpGwwDBtwYXvig#/registration

    www.epns.info/epns-climate-change-webinar/
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    European Paediatric Neurology Society (EPNS) @epnsnews.bsky.social 3 weeks

    STILL TIME TO REGISTER - Next FREE EPNS Educational Webinar! Wednesday, 10 December 2025, 17:00 CET

    Topic: Approach of an Acute Motor Disorder

    Register at -https://us02web.zoom.us/webinar/register/WN_Do6A224CREOj3_YsZu2QSg
  • Get to this post

    European Paediatric Neurology Society (EPNS) @epnsnews.bsky.social 3 weeks

    Young EPNS (YEPNS) December Highlights in pediatric neurology: Diagnosis of multiple sclerosis!

    #yepns #epns #pediatricneurology #pediatricneurologyliterature #ms #multiplesclerosis

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ERN-RND European Reference Network for Rare Neurological Diseases

Our mission

ERN-RND aims to support rare neurological patients in Europe in getting a timely and appropriate diagnosis, treatment and care.

ERNs

ERN-RND is one of the 24 European Reference Networks (ERNs) approved by the ERN Board of Member States. For more information about the ERNs and the EU Health strategy, please visit https://ec.europa.eu/health/ern_en

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