Past Events – Page 5 – ERN-RND | European Reference Network on Rare Neurological Diseases

3 November 2020 | ERN-RND webinar “Non-invasive stimulation for ataxias”

Continue reading “3 November 2020 | ERN-RND webinar “Non-invasive stimulation for ataxias””

29 October 2020 | EURO-NMD webinar “Personalized care for patients with ALS: ALS Home monitoring & coaching”

Continue reading “29 October 2020 | EURO-NMD webinar “Personalized care for patients with ALS: ALS Home monitoring & coaching””

19-21 October 2020 | SCA & ARCA Global Conference

Continue reading “19-21 October 2020 | SCA & ARCA Global Conference”

13 October 2020 | ERN-RND webinar “diagnostic algorithm for childhood onset chorea”

Continue reading “13 October 2020 | ERN-RND webinar “diagnostic algorithm for childhood onset chorea””

12 October 2020 | EJP RD Selection of Topics for Research Training Workshops call DEADLINE

Continue reading “12 October 2020 | EJP RD Selection of Topics for Research Training Workshops call DEADLINE”

7-10 0ctober 2020 | 11th World Congress of Neurorehabilitation

Continue reading “7-10 0ctober 2020 | 11th World Congress of Neurorehabilitation”

6 October 2020 | ERN-RND webinar “Treatment of spasticity in HSP and leukodystrophies”

Continue reading “6 October 2020 | ERN-RND webinar “Treatment of spasticity in HSP and leukodystrophies””

September 2020 | Dystonia Awareness Month

Continue reading “September 2020 | Dystonia Awareness Month”

29 September 2020 | ERN-RND webinar “How can we develop and implement evidence based rehabilitation in rare disorders?”

Continue reading “29 September 2020 | ERN-RND webinar “How can we develop and implement evidence based rehabilitation in rare disorders?””

25 September | International Ataxia Awareness Day (IAAW)

17 September 2020 | EURO-NMD webinar “the basics of genetic approaches for NMDs – using DMD as a paradigm”

Continue reading “17 September 2020 | EURO-NMD webinar “the basics of genetic approaches for NMDs – using DMD as a paradigm””

12-16 September 2020 | MDS Virtual Congress

Continue reading “12-16 September 2020 | MDS Virtual Congress”

15 September 2020 | ERN-RND webinar “A challenge in neurogenetics: Huntington disease in kids”

Continue reading “15 September 2020 | ERN-RND webinar “A challenge in neurogenetics: Huntington disease in kids””

11 September 2020 | EHDN’s Bridging Event 2020

Continue reading “11 September 2020 | EHDN’s Bridging Event 2020”

10 September 2020 | ERN-RND webinar “How to assess and manage spastic gait in rare diseases?”

Continue reading “10 September 2020 | ERN-RND webinar “How to assess and manage spastic gait in rare diseases?””

8 September 2020 | ERN-RND webinar “Semantic variant of primary progressive aphasia”

Continue reading “8 September 2020 | ERN-RND webinar “Semantic variant of primary progressive aphasia””

8 September 2020 | 4th EAN Task Force for Rare Neurological Diseases Teaching Course

Continue reading “8 September 2020 | 4th EAN Task Force for Rare Neurological Diseases Teaching Course”

1 December 2020 | ERN-RND webinar “Functional movement disorders: a diagnostic guide”

Continue reading “1 December 2020 | ERN-RND webinar “Functional movement disorders: a diagnostic guide””

22 July 2020 | World Brain Day

Continue reading “22 July 2020 | World Brain Day”

11-15 July 2020 | (Virtual) 12th FENS Forum of Neuroscience

Continue reading “11-15 July 2020 | (Virtual) 12th FENS Forum of Neuroscience”

14 July 2020 | ERN-RND webinar “Gait rehabilitation in people with Hereditary Spastic Paraplegia & Respiratory physiotherapy in parkinson’s plus syndromes”

Continue reading “14 July 2020 | ERN-RND webinar “Gait rehabilitation in people with Hereditary Spastic Paraplegia & Respiratory physiotherapy in parkinson’s plus syndromes””

9 July 2020 | ERN-RND webinar “Environmental modifiers in Hereditary Spastic Paraplegia”

Continue reading “9 July 2020 | ERN-RND webinar “Environmental modifiers in Hereditary Spastic Paraplegia””

30 June 2020 | ERN-RND webinar “RCT on intrathecal baclofen for dystonia”

Continue reading “30 June 2020 | ERN-RND webinar “RCT on intrathecal baclofen for dystonia””

30 June 2020 | EFNA webinar “Where’s Neurology? Influencing Covid Recovery Planning, Programmes and Policies”

Continue reading “30 June 2020 | EFNA webinar “Where’s Neurology? Influencing Covid Recovery Planning, Programmes and Policies””

18 June 2020 | ERN-RND webinar “Goal setting and outcome measures of interventions in pediatric rehabilitation”

Continue reading “18 June 2020 | ERN-RND webinar “Goal setting and outcome measures of interventions in pediatric rehabilitation””

18 June 2020 | Webinar “A data strategy for the European Reference Networks”

Continue reading “18 June 2020 | Webinar “A data strategy for the European Reference Networks””

15-16-17 June 2020 | ERN-RND (virtual) Annual Meeting

Continue reading “15-16-17 June 2020 | ERN-RND (virtual) Annual Meeting”

16 June 2020 | Webinar “Advancing the rare disease research agenda”

Continue reading “16 June 2020 | Webinar “Advancing the rare disease research agenda””

6-9 June 2020 | ESHG 2020.2 – Live in your living room

Continue reading “6-9 June 2020 | ESHG 2020.2 – Live in your living room”

9 June 2020 | Webinar “The impact of COVID 19 for people living with a Rare Disease” by EC & EURORDIS

Continue reading “9 June 2020 | Webinar “The impact of COVID 19 for people living with a Rare Disease” by EC & EURORDIS”

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ERN-RND @ern-rnd.bsky.social 5 days

What's new in the field of Rare Neurological Diseases? Our monthly #newsletter keeps you up to date with all important news, free webinars, participation calls, funding opportunities and events. www.ern-rnd.eu/mailpoet-ema...

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ERN-RND @ern-rnd.bsky.social 1 week

Yesterday our ePAGs visited our expert center Motol University Hospital in Prague. Our hosts Martin Vyhnalek and Julie Novakova introduced us to the team at Motol as well as patients and patients representatives they work with.

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ERN-RND @ern-rnd.bsky.social 1 month

Our coordinator Holm Graessner will introduce our new Postgraduate Curriculum at this year’s EAN Congress. Join us on Sunday, June 28 at 10:35 CEST (Scientific Theatre)!

Holm Graessner:
Advancing Care for Patients with Rare Neurological Diseases – the Development of a Postgraduate Curriculum

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ERN-RND @ern-rnd.bsky.social 1 month

Get the latest news on rare neurological diseases with our monthly #newsletter: www.ern-rnd.eu?mailpoet_rou...

Find news on #HuntingtonDisease, #FriedreichAtaxia, #CervicalDystonia, #NBIA, #HereditarySpasticParaplegia, #AtypicalParkinsonism, #Leukodystrophy and #FrontotemporalDementia
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ERN-RND @ern-rnd.bsky.social 1 month

After a quick break we will continue with Nicola Whiffin and "Non-coding Variants in Rare Diseases" at 11:30 CEST.

Join our #SpringSchool on "Next Generation Sequencing Diagnostics for Rare Neurological Diseases": us02web.zoom.us/webinar/regi...

programme here: www.ern-rnd.eu/education-tr...
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ERN-RND @ern-rnd.bsky.social 1 month

Join our free #SpringSchool now - right now on:
Christian Gilissen with "Bioinformatic Tools for Diagnosing Rare Diseases"

To join the talk click here: us02web.zoom.us/webinar/regi...

Find the whole programme here: www.ern-rnd.eu/education-tr...

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ERN-RND @ern-rnd.bsky.social 2 months

Join Katja Lohmann and Ales Maver to learn about quality insurance and recommendations for NGS during our #SpringSchool on "Next Generation Sequencing Diagnostics for Rare Neurological Diseases” on May 6th at 9:00 CEST.

Register for free: https://t1p.de/wsatw
Programme: https://t1p.de/xp523