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ERN-RND | European Reference Network on Rare Neurological Diseases

ERN-RND | European Reference Network on Rare Neurological Diseases

for rare or low prevalence complex diseases

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Category: Past Events

21 April 2020 | ERN-RND webinar “hypomyelination”

21 April 2020 | ERN-RND webinar “hypomyelination”

Continue reading “21 April 2020 | ERN-RND webinar “hypomyelination””

Posted on April 21, 2020June 5, 2024Categories Past Events, Past Events 2020

14 April 2020 | ERN-RND webinar “recognizing atypical parkinsonism”

14 April 2020 | ERN-RND webinar “recognizing atypical parkinsonism”

Continue reading “14 April 2020 | ERN-RND webinar “recognizing atypical parkinsonism””

Posted on April 14, 2020June 5, 2024Categories Past Events, Past Events 2020

6-7 April 2020 | SCA Global Conference CANCELLED

6-7 April 2020 | SCA Global Conference CANCELLED

Continue reading “6-7 April 2020 | SCA Global Conference CANCELLED”

Posted on April 7, 2020June 5, 2024Categories Past Events, Past Events 2020

6 April 2020 | EHA & ERN-RND webinar: “Huntington’s disease and the Covid-19 pandemic – a difficult combination”

6 April 2020 | EHA & ERN-RND webinar: “Huntington’s disease and the Covid-19 pandemic – a difficult combination”

Continue reading “6 April 2020 | EHA & ERN-RND webinar: “Huntington’s disease and the Covid-19 pandemic – a difficult combination””

Posted on April 6, 2020June 5, 2024Categories Past Events, Past Events 2020

28-29 March 2020 | European Conference on the Diffusion of Genomic Medicine CANCELLED

28-29 March 2020 | European Conference on the Diffusion of Genomic Medicine CANCELLED

Continue reading “28-29 March 2020 | European Conference on the Diffusion of Genomic Medicine CANCELLED”

Posted on March 29, 2020June 5, 2024Categories Past Events, Past Events 2020

25-27 March 2020 | 10th International Meeting on Neuroacanthocytosis Syndromes

25-27 March 2020 | 10th International Meeting on Neuroacanthocytosis Syndromes

Continue reading “25-27 March 2020 | 10th International Meeting on Neuroacanthocytosis Syndromes”

Posted on March 27, 2020June 5, 2024Categories Past Events, Past Events 2020

21 April 2020 | ERN-RND webinar “hypomyelination” (paediatric focus)

21 April 2020 | ERN-RND webinar “hypomyelination” (paediatric focus)

Continue reading “21 April 2020 | ERN-RND webinar “hypomyelination” (paediatric focus)”

Posted on March 25, 2020June 5, 2024Categories Past Events, Past Events 2020

16-22 March 2020 | Brain Awareness Week

16-22 March 2020 | Brain Awareness Week

Continue reading “16-22 March 2020 | Brain Awareness Week”

Posted on March 22, 2020June 5, 2024Categories Past Events, Past Events 2020

17 March 2020 | ERN-RND webinar “X-linked adrenoleukodystrophy” (adult/paediatric focus)

17 March 2020 | ERN-RND webinar “X-linked adrenoleukodystrophy” (adult/paediatric focus)

Continue reading “17 March 2020 | ERN-RND webinar “X-linked adrenoleukodystrophy” (adult/paediatric focus)”

Posted on March 17, 2020June 5, 2024Categories Past Events, Past Events 2020

11-14 March 2020 | RE(ACT) Congress & IRDiRC Conference

11-14 March 2020 | RE(ACT) Congress & IRDiRC Conference

Continue reading “11-14 March 2020 | RE(ACT) Congress & IRDiRC Conference”

Posted on March 14, 2020June 5, 2024Categories Past Events, Past Events 2020

3-6 March 2020 | NAF’s Ataxia Investigators meeting – CANCELLED

3-6 March 2020 | NAF’s Ataxia Investigators meeting – CANCELLED

Continue reading “3-6 March 2020 | NAF’s Ataxia Investigators meeting – CANCELLED”

Posted on March 7, 2020June 5, 2024Categories Past Events, Past Events 2020

2-3 March 2020 | ARCA Global Conference – CANCELLED

2-3 March 2020 | ARCA Global Conference – CANCELLED

Continue reading “2-3 March 2020 | ARCA Global Conference – CANCELLED”

Posted on March 3, 2020June 5, 2024Categories Past Events, Past Events 2020

3 March 2020 | ERN-RND webinar “ultrasound diagnostics for cervical dystonia”

3 March 2020 | ERN-RND webinar “ultrasound diagnostics for cervical dystonia”

Continue reading “3 March 2020 | ERN-RND webinar “ultrasound diagnostics for cervical dystonia””

Posted on March 3, 2020June 5, 2024Categories Past Events, Past Events 2020

29 February 2020 | Rare Disease Day 2020

29 February 2020 | Rare Disease Day 2020

Continue reading “29 February 2020 | Rare Disease Day 2020”

Posted on February 29, 2020June 5, 2024Categories Past Events, Past Events 2020

29 February 2020 | Süddeutscher Fachtag der Seltenen Erkrankungen

29 February 2020 | Süddeutscher Fachtag der Seltenen Erkrankungen

Continue reading “29 February 2020 | Süddeutscher Fachtag der Seltenen Erkrankungen”

Posted on February 29, 2020June 5, 2024Categories Past Events, Past Events 2020

28 February 2020 | Tag der Seltenen Erkrankungen in Mainz

28 February 2020 | Tag der Seltenen Erkrankungen in Mainz

Continue reading “28 February 2020 | Tag der Seltenen Erkrankungen in Mainz”

Posted on February 28, 2020June 5, 2024Categories Past Events, Past Events 2020

22 February 2020 | Rare diseases and European Reference Networks

22 February 2020 | Rare diseases and European Reference Networks

Continue reading “22 February 2020 | Rare diseases and European Reference Networks”

Posted on February 22, 2020June 5, 2024Categories Past Events, Past Events 2020

20 February 2020: EURO-NMD webinar “mitochondrial donation”

20 February 2020: EURO-NMD webinar “mitochondrial donation”

Continue reading “20 February 2020: EURO-NMD webinar “mitochondrial donation””

Posted on February 20, 2020June 5, 2024Categories Past Events, Past Events 2020

18 February 2020 | ERN-RND webinar “mitochondrial disorder with chorea”

18 February 2020 | ERN-RND webinar “mitochondrial disorder with chorea”

Continue reading “18 February 2020 | ERN-RND webinar “mitochondrial disorder with chorea””

Posted on February 18, 2020June 5, 2024Categories Past Events, Past Events 2020

30 January 2020 | ERN-RND ePAG meeting

30 January 2020 | ERN-RND ePAG meeting
Posted on January 30, 2020June 5, 2024Categories Past Events, Past Events 2020

28 January 2020 | ERN-RND webinar “introduction to leukodystrophies”

28 January 2020 | ERN-RND webinar “introduction to leukodystrophies”

Continue reading “28 January 2020 | ERN-RND webinar “introduction to leukodystrophies””

Posted on January 28, 2020June 5, 2024Categories Past Events, Past Events 2020

21 January 2020 | ERN-RND webinar “immune-mediated choreas”

21 January 2020 | ERN-RND webinar “immune-mediated choreas”

Continue reading “21 January 2020 | ERN-RND webinar “immune-mediated choreas””

Posted on January 21, 2020June 5, 2024Categories Past Events, Past Events 2020

14 January 2020 | ERN-RND webinar “inherited ataxias”

14 January 2020 | ERN-RND webinar “inherited ataxias”

Continue reading “14 January 2020 | ERN-RND webinar “inherited ataxias””

Posted on January 14, 2020June 5, 2024Categories Past Events, Past Events 2020

17 December | ERN-RND webinar “non-progressive congenital ataxia”

17 December | ERN-RND webinar “non-progressive congenital ataxia”

Continue reading “17 December | ERN-RND webinar “non-progressive congenital ataxia””

Posted on December 17, 2019June 5, 2024Categories Past Events, Past Events 2019

16 December | Solve-RD webinar “RD-Connect GPAP – advanced platform features”

16 December | Solve-RD webinar “RD-Connect GPAP – advanced platform features”

Continue reading “16 December | Solve-RD webinar “RD-Connect GPAP – advanced platform features””

Posted on December 16, 2019June 5, 2024Categories Past Events, Past Events 2019

9 December | Solve-RD webinar “RD-Connect GPAP – basic analysis”

9 December | Solve-RD webinar “RD-Connect GPAP – basic analysis”

Continue reading “9 December | Solve-RD webinar “RD-Connect GPAP – basic analysis””

Posted on December 9, 2019June 5, 2024Categories Past Events, Past Events 2019

6 December | Journée Nationale Maladie de Huntington

6 December | Journée Nationale Maladie de Huntington

Continue reading “6 December | Journée Nationale Maladie de Huntington”

Posted on December 6, 2019June 5, 2024Categories Past Events, Past Events 2019

3 December | ERN-RND webinar “Neuroacanthocytosis syndromes, a rare chorea”

3 December | ERN-RND webinar “Neuroacanthocytosis syndromes, a rare chorea”

Continue reading “3 December | ERN-RND webinar “Neuroacanthocytosis syndromes, a rare chorea””

Posted on December 3, 2019June 5, 2024Categories Past Events, Past Events 2019

27-29 November | Annual Meeting DASNE

27-29 November | Annual Meeting DASNE

Continue reading “27-29 November | Annual Meeting DASNE”

Posted on November 29, 2019September 6, 2024Categories Past Events, Past Events 2019

26 November | 5th BRAIN-TEAM patient organisations day

26 November | 5th BRAIN-TEAM patient organisations day

Continue reading “26 November | 5th BRAIN-TEAM patient organisations day”

Posted on November 26, 2019June 5, 2024Categories Past Events, Past Events 2019

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Webinar Schedule

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ERN-RND

@ern-rnd.bsky.social

168 Followers 90 Following 192 Posts

European Reference Network for Rare Neurological Diseases (ERN-RND) to improve diagnosis, care & treatment of RND patients.
Free webinars: https://www.ern-rnd.eu/education-training/online-medical-education-for-rare-neurological-diseases/

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    ERN-RND @ern-rnd.bsky.social 2 days

    💻#webinar on “Guidelines on the Assessment and Treatment of Neurogenic Urinary and Sexual Symptoms”
    📅25th November, 3 CET
    🗣️A. Fanciulli and P. Guaraldi, Medical University Innsbruck and Azienda USL di Bologna
    Sign up 👉 https://t1p.de/9chttps://t1p.de/9cxi7app/hashtag/webinar">#webinart with the and
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    ERN-RND @ern-rnd.bsky.social 2 days

    💻 Upcoming #webinar on “Recent Advances in Episodic Ataxias”
    📅 18th November, 3:00 CET
    🗣️ E. Indelicato and D. Pellerin, Medical University Innsbruck, Austria, and Miller School of Medicine, Miami, USA
    Sign up 👉 https://t1p.de/6uunhttps://t1p.de/6uunpps://bsky.app/hashtag/webinar">#webinar and
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    ERN-RND @ern-rnd.bsky.social 3 days

    Welcome everyone to Day 2 of our Annual Meeting 2025! We just started into our Disease Group meetings of today.
  • Get to this post

    ERN-RND @ern-rnd.bsky.social 4 days

    #QuizNight: A great evening full of laughter, learning, and connection!
    How much do you know about ERN-RND?
    Do you know how many data sets were submitted to the ERN-RND registry in 2024?
  • Get to this post

    ERN-RND @ern-rnd.bsky.social 4 days

    Patient advocate workshop guided by one key question: what needs our attention most in the RND community? Mental health support? Lack of knowledge and awareness? Tailored transitioning care in adolescence?
    Many inspiring ideas and discussions! We’re excited to see how they’ll shape future projects!
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    ERN-RND @ern-rnd.bsky.social 4 days

    Our Annual Meeting kicked off today with a productive Board Meeting, where we reviewed our achievements from the past 12 months, shared experiences, and discussed exciting new project ideas for the year ahead.
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    ERN-RND @ern-rnd.bsky.social 1 week

    Join Till Voigtländer for "Overview and First Results of the JARDIN Project " at our Symposium "European Healthcare for RND Patients", Oct 28 12:00https://f.mtr.cool/mpyqdaaqli.mtr.cool/https://f.mtr.cool/qxrjzcwauh.mtr.cool/qxrjzcwauh
    Abstract: f.mtr.cool/gyblgukxvx

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ERN-RND European Reference Network for Rare Neurological Diseases

Our mission

ERN-RND aims to support rare neurological patients in Europe in getting a timely and appropriate diagnosis, treatment and care.

ERNs

ERN-RND is one of the 24 European Reference Networks (ERNs) approved by the ERN Board of Member States. For more information about the ERNs and the EU Health strategy, please visit https://ec.europa.eu/health/ern_en

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