Skip to content
  • Facebook
  • LinkedIn
  • Bluesky
  • YouTube
ERN-RND | European Reference Network on Rare Neurological Diseases

ERN-RND | European Reference Network on Rare Neurological Diseases

for rare or low prevalence complex diseases

Members Area
  • Home
  • About us
    • What is an ERN
    • Cross border healthcare
    • What is ERN-RND
    • Objectives of ERN-RND
    • Diseases Groups Covered
    • ERN-RND coordinators
    • ERN-RND coordination office
    • ERN-RND board
    • Patient advocates
    • Work Packages
    • Monitoring
    • Publications Acknowledging ERN-RND
  • Expert Centres
    • … for rare neurological diseases
    • Full members and affiliated partners
    • How to contact expert centres
    • Supporting partners
    • Map of expert centers
    • Overview ERNs
  • Online case discussion with CPMS
    • What is the CPMS
    • Who can use it
    • How to use it
    • MLD Treatment eligibility panel
    • Neuroradiology Expert Advice Panel
    • Multidisciplinary Board for DBS in Dystonia
    • CPMS Helpdesk
    • Videos
    • Downloads
    • Websites
  • Disease Knowledge
    • Cerebellar Ataxia & Hereditary Spastic Paraplegias (HSPs)
    • Chorea & Huntington’s disease
    • Dystonias, NBIA and Paroxysmal Disorders
    • Frontotemporal dementia
    • Leukoencephalopathies
    • Atypical Parkinsonism: MSA, PSP & Genetic Parkinson’s Disease
    • ERN-RND Patient Journeys
  • Education & Training
    • Online Medical Education
    • Upcoming Webinars
    • Training Resources
    • Webinars from Partners
    • Winter School
  • ERN-RND Registry
    • ERN-RND registry objectives
    • Disease Groups covered
    • Data Submission
      • Data Analysis
    • Data Access
    • Contact
  • Collab­ora­tions
    • Projects
    • Partner organisations
    • Past projects
      • EJP RD
        • EJP RD in a nutshell
        • What is EJP RD?
        • EJP RD mission & goals
        • EJP RD & ERNs
      • Solve-RD
        • What is Solve-RD?
        • Main Objectives
        • Implementation Steps
        • Analysis
      • Value of Treatment (VoT) project
        • VoT project coordinator
        • Objectives of the VoT project
        • ERN-RND in VoT2
        • Academic partners in VoT2
        • Further reading
  • News & Events
    • News
    • Events
    • Newsletter
    • Meet the members
  • Contact us
  • Facebook
  • LinkedIn
  • Bluesky
  • YouTube

Category: Past Events

23 April 2020 | EURO-NMD webinar “exercise & NMD”

23 April 2020 | EURO-NMD webinar “exercise & NMD”

Continue reading “23 April 2020 | EURO-NMD webinar “exercise & NMD””

Posted on April 23, 2020June 5, 2024Categories Past Events, Past Events 2020

21 April 2020 | ERN-RND webinar “hypomyelination”

21 April 2020 | ERN-RND webinar “hypomyelination”

Continue reading “21 April 2020 | ERN-RND webinar “hypomyelination””

Posted on April 21, 2020June 5, 2024Categories Past Events, Past Events 2020

14 April 2020 | ERN-RND webinar “recognizing atypical parkinsonism”

14 April 2020 | ERN-RND webinar “recognizing atypical parkinsonism”

Continue reading “14 April 2020 | ERN-RND webinar “recognizing atypical parkinsonism””

Posted on April 14, 2020June 5, 2024Categories Past Events, Past Events 2020

6-7 April 2020 | SCA Global Conference CANCELLED

6-7 April 2020 | SCA Global Conference CANCELLED

Continue reading “6-7 April 2020 | SCA Global Conference CANCELLED”

Posted on April 7, 2020June 5, 2024Categories Past Events, Past Events 2020

6 April 2020 | EHA & ERN-RND webinar: “Huntington’s disease and the Covid-19 pandemic – a difficult combination”

6 April 2020 | EHA & ERN-RND webinar: “Huntington’s disease and the Covid-19 pandemic – a difficult combination”

Continue reading “6 April 2020 | EHA & ERN-RND webinar: “Huntington’s disease and the Covid-19 pandemic – a difficult combination””

Posted on April 6, 2020June 5, 2024Categories Past Events, Past Events 2020

28-29 March 2020 | European Conference on the Diffusion of Genomic Medicine CANCELLED

28-29 March 2020 | European Conference on the Diffusion of Genomic Medicine CANCELLED

Continue reading “28-29 March 2020 | European Conference on the Diffusion of Genomic Medicine CANCELLED”

Posted on March 29, 2020June 5, 2024Categories Past Events, Past Events 2020

25-27 March 2020 | 10th International Meeting on Neuroacanthocytosis Syndromes

25-27 March 2020 | 10th International Meeting on Neuroacanthocytosis Syndromes

Continue reading “25-27 March 2020 | 10th International Meeting on Neuroacanthocytosis Syndromes”

Posted on March 27, 2020June 5, 2024Categories Past Events, Past Events 2020

21 April 2020 | ERN-RND webinar “hypomyelination” (paediatric focus)

21 April 2020 | ERN-RND webinar “hypomyelination” (paediatric focus)

Continue reading “21 April 2020 | ERN-RND webinar “hypomyelination” (paediatric focus)”

Posted on March 25, 2020June 5, 2024Categories Past Events, Past Events 2020

16-22 March 2020 | Brain Awareness Week

16-22 March 2020 | Brain Awareness Week

Continue reading “16-22 March 2020 | Brain Awareness Week”

Posted on March 22, 2020June 5, 2024Categories Past Events, Past Events 2020

17 March 2020 | ERN-RND webinar “X-linked adrenoleukodystrophy” (adult/paediatric focus)

17 March 2020 | ERN-RND webinar “X-linked adrenoleukodystrophy” (adult/paediatric focus)

Continue reading “17 March 2020 | ERN-RND webinar “X-linked adrenoleukodystrophy” (adult/paediatric focus)”

Posted on March 17, 2020June 5, 2024Categories Past Events, Past Events 2020

11-14 March 2020 | RE(ACT) Congress & IRDiRC Conference

11-14 March 2020 | RE(ACT) Congress & IRDiRC Conference

Continue reading “11-14 March 2020 | RE(ACT) Congress & IRDiRC Conference”

Posted on March 14, 2020June 5, 2024Categories Past Events, Past Events 2020

3-6 March 2020 | NAF’s Ataxia Investigators meeting – CANCELLED

3-6 March 2020 | NAF’s Ataxia Investigators meeting – CANCELLED

Continue reading “3-6 March 2020 | NAF’s Ataxia Investigators meeting – CANCELLED”

Posted on March 7, 2020June 5, 2024Categories Past Events, Past Events 2020

2-3 March 2020 | ARCA Global Conference – CANCELLED

2-3 March 2020 | ARCA Global Conference – CANCELLED

Continue reading “2-3 March 2020 | ARCA Global Conference – CANCELLED”

Posted on March 3, 2020June 5, 2024Categories Past Events, Past Events 2020

3 March 2020 | ERN-RND webinar “ultrasound diagnostics for cervical dystonia”

3 March 2020 | ERN-RND webinar “ultrasound diagnostics for cervical dystonia”

Continue reading “3 March 2020 | ERN-RND webinar “ultrasound diagnostics for cervical dystonia””

Posted on March 3, 2020June 5, 2024Categories Past Events, Past Events 2020

29 February 2020 | Rare Disease Day 2020

29 February 2020 | Rare Disease Day 2020

Continue reading “29 February 2020 | Rare Disease Day 2020”

Posted on February 29, 2020June 5, 2024Categories Past Events, Past Events 2020

29 February 2020 | Süddeutscher Fachtag der Seltenen Erkrankungen

29 February 2020 | Süddeutscher Fachtag der Seltenen Erkrankungen

Continue reading “29 February 2020 | Süddeutscher Fachtag der Seltenen Erkrankungen”

Posted on February 29, 2020June 5, 2024Categories Past Events, Past Events 2020

28 February 2020 | Tag der Seltenen Erkrankungen in Mainz

28 February 2020 | Tag der Seltenen Erkrankungen in Mainz

Continue reading “28 February 2020 | Tag der Seltenen Erkrankungen in Mainz”

Posted on February 28, 2020June 5, 2024Categories Past Events, Past Events 2020

22 February 2020 | Rare diseases and European Reference Networks

22 February 2020 | Rare diseases and European Reference Networks

Continue reading “22 February 2020 | Rare diseases and European Reference Networks”

Posted on February 22, 2020June 5, 2024Categories Past Events, Past Events 2020

20 February 2020: EURO-NMD webinar “mitochondrial donation”

20 February 2020: EURO-NMD webinar “mitochondrial donation”

Continue reading “20 February 2020: EURO-NMD webinar “mitochondrial donation””

Posted on February 20, 2020June 5, 2024Categories Past Events, Past Events 2020

18 February 2020 | ERN-RND webinar “mitochondrial disorder with chorea”

18 February 2020 | ERN-RND webinar “mitochondrial disorder with chorea”

Continue reading “18 February 2020 | ERN-RND webinar “mitochondrial disorder with chorea””

Posted on February 18, 2020June 5, 2024Categories Past Events, Past Events 2020

30 January 2020 | ERN-RND ePAG meeting

30 January 2020 | ERN-RND ePAG meeting
Posted on January 30, 2020June 5, 2024Categories Past Events, Past Events 2020

28 January 2020 | ERN-RND webinar “introduction to leukodystrophies”

28 January 2020 | ERN-RND webinar “introduction to leukodystrophies”

Continue reading “28 January 2020 | ERN-RND webinar “introduction to leukodystrophies””

Posted on January 28, 2020June 5, 2024Categories Past Events, Past Events 2020

21 January 2020 | ERN-RND webinar “immune-mediated choreas”

21 January 2020 | ERN-RND webinar “immune-mediated choreas”

Continue reading “21 January 2020 | ERN-RND webinar “immune-mediated choreas””

Posted on January 21, 2020June 5, 2024Categories Past Events, Past Events 2020

14 January 2020 | ERN-RND webinar “inherited ataxias”

14 January 2020 | ERN-RND webinar “inherited ataxias”

Continue reading “14 January 2020 | ERN-RND webinar “inherited ataxias””

Posted on January 14, 2020June 5, 2024Categories Past Events, Past Events 2020

17 December | ERN-RND webinar “non-progressive congenital ataxia”

17 December | ERN-RND webinar “non-progressive congenital ataxia”

Continue reading “17 December | ERN-RND webinar “non-progressive congenital ataxia””

Posted on December 17, 2019June 5, 2024Categories Past Events, Past Events 2019

16 December | Solve-RD webinar “RD-Connect GPAP – advanced platform features”

16 December | Solve-RD webinar “RD-Connect GPAP – advanced platform features”

Continue reading “16 December | Solve-RD webinar “RD-Connect GPAP – advanced platform features””

Posted on December 16, 2019June 5, 2024Categories Past Events, Past Events 2019

9 December | Solve-RD webinar “RD-Connect GPAP – basic analysis”

9 December | Solve-RD webinar “RD-Connect GPAP – basic analysis”

Continue reading “9 December | Solve-RD webinar “RD-Connect GPAP – basic analysis””

Posted on December 9, 2019June 5, 2024Categories Past Events, Past Events 2019

6 December | Journée Nationale Maladie de Huntington

6 December | Journée Nationale Maladie de Huntington

Continue reading “6 December | Journée Nationale Maladie de Huntington”

Posted on December 6, 2019June 5, 2024Categories Past Events, Past Events 2019

3 December | ERN-RND webinar “Neuroacanthocytosis syndromes, a rare chorea”

3 December | ERN-RND webinar “Neuroacanthocytosis syndromes, a rare chorea”

Continue reading “3 December | ERN-RND webinar “Neuroacanthocytosis syndromes, a rare chorea””

Posted on December 3, 2019June 5, 2024Categories Past Events, Past Events 2019

27-29 November | Annual Meeting DASNE

27-29 November | Annual Meeting DASNE

Continue reading “27-29 November | Annual Meeting DASNE”

Posted on November 29, 2019September 6, 2024Categories Past Events, Past Events 2019

Posts pagination

Previous page Page 1 … Page 5 Page 6 Page 7 Page 8 Next page

Webinar Schedule

Find us on Bluesky

ERN-RND

@ern-rnd.bsky.social

172 Followers 90 Following 219 Posts

European Reference Network for Rare Neurological Diseases (ERN-RND) to improve diagnosis, care & treatment of RND patients.
Free webinars: https://www.ern-rnd.eu/education-training/online-medical-education-for-rare-neurological-diseases/

  • Get to this post

    ERN-RND @ern-rnd.bsky.social 6 days

    💻 Upcoming #webinar on “Social and Lifestyle Issues Related to Ataxias and HSP”
    📅 13th January, 3:00 CET
    🗣️ Lotte van de Venis, Radboud University Medical Center, Nijmegen and Lori Renna Linton, Euro-HSP

    Sign up 👉https://t1p.de/5nefhttps://t1p.de/5nef2tps://bsky.app/hashtag/webinar">#webinar and
  • Get to this post

    ERN-RND @ern-rnd.bsky.social 2 weeks

    ⚠️Updated time! No#webinarM CET
    💻 Upcoming #webinar on “The Importance of Genetic Counselling in the Diagnostic of Rare Neurological Disorders”
    📅 9th December
    🗣️ Maria Judit Molnar, Semmelweis University, Buhttps://t1p.de/d825h up 👉https://t1p.de/d825h
    Joint with the and
  • Get to this post

    ERN-RND @ern-rnd.bsky.social 2 weeks

    It's today! Join the live stream here: www.brains4brain.eu/eu-activitie...
  • Get to this post

    European Paediatric Neurology Society (EPNS) @epnsnews.bsky.social 2 weeks

    Meet our EPNS Fellows!

    Dr Marie Rohlenová from Czech Rep went to the Raymond Poincaré hospital in Garches, France in 2025

    To read more about Marie's fellowship experience visit - www.epns.info/epns-fellows...

    To join the EPNS visit - www.epns.info/become.../ne...
  • Get to this post

    European Paediatric Neurology Society (EPNS) @epnsnews.bsky.social 2 weeks

    FREE EPNS WEBINAR: CLIMATE CHANGE

    Open to all.
    Wed 18 Feb 2026 5PMCET
    Paediatric Neurology in the Anthropocene: Clinical perspectives in a changing climate

    Register us02web.zoom.us/webinar/register/WN_R7B23GXoRpGwwDBtwYXvig#/registration

    www.epns.info/epns-climate-change-webinar/
  • Get to this post

    European Paediatric Neurology Society (EPNS) @epnsnews.bsky.social 3 weeks

    STILL TIME TO REGISTER - Next FREE EPNS Educational Webinar! Wednesday, 10 December 2025, 17:00 CET

    Topic: Approach of an Acute Motor Disorder

    Register at -https://us02web.zoom.us/webinar/register/WN_Do6A224CREOj3_YsZu2QSg
  • Get to this post

    European Paediatric Neurology Society (EPNS) @epnsnews.bsky.social 3 weeks

    Young EPNS (YEPNS) December Highlights in pediatric neurology: Diagnosis of multiple sclerosis!

    #yepns #epns #pediatricneurology #pediatricneurologyliterature #ms #multiplesclerosis

Find us on Facebook

ERN-RND European Reference Network for Rare Neurological Diseases

Our mission

ERN-RND aims to support rare neurological patients in Europe in getting a timely and appropriate diagnosis, treatment and care.

ERNs

ERN-RND is one of the 24 European Reference Networks (ERNs) approved by the ERN Board of Member States. For more information about the ERNs and the EU Health strategy, please visit https://ec.europa.eu/health/ern_en

  • Facebook
  • LinkedIn
  • Bluesky
  • YouTube

Sitemap | Disclaimer and Data Protection

We serve cookies on this site to analyse traffic, remember your preferences, and optimise your experience.