Meet the members

Mary Kearney, Friedreich’s Ataxia Research Alliance Ireland (FARA), Patient Advocate

Robert Rusina, Thomayer Teaching Hospital and Charles University in Prague, Czech Republic

Nataliya Grigorova, Bulgarian Huntington Association, ERN-RND ePAGs group coordinator

Johannes Levin, Department of Neurology, Ludwig-Maximilians-University Munich, Germany

Bart van de Warrenburg, Radboud university medical center, Nijmegen, the Netherlands

Astri Arnesen, President of the European Huntington Association

Juan Darío Ortigoza-Escobar, Hospital Sant Joan de Déu, Barcelona, Spain

Annemieke Buizer, Emma Children’s Hospital/Amsterdam University Medical Centers, the Netherlands

Nicole Wolf, Emma Children’s Hospital/Amsterdam University Medical Centers, the Netherlands

Fran Borovečki, University Hospital Center Zagreb, Zagreb, Croatia

Sylvia Boesch, University Hospital Innsbruck, Austria

Bélen Perez Dueñas, Hospital Vall d’Hebrón, Barcelona, Spain

Jorik Nonnekes, Radboud University Medical Centre, the Netherlands

Samuel Gröschel, University Children's Hospital, Tübingen, Germany

Yaroslau Compta, Hospital Clínic de Barcelona, Spain

SOPHIE BERNICHTEIN, BRAIN-TEAM, FRANCE

Ginevra Zanni, Bambino Gesù Children’s Hospital, Rome, Italy

Lena Zeltner, University Hospital Tübingen, Germany

Cathalijne van Doorne, ataxia patient advocate

Monika Benson, Dystonia Europe

You are an ERN-RND full member or affiliated partner and would like to participate? Please contact us.