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ERN-RND | European Reference Network on Rare Neurological Diseases

ERN-RND | European Reference Network on Rare Neurological Diseases

for rare or low prevalence complex diseases

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    • … for rare neurological diseases
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Author: ERN-RND

20 November, 14h | CPMS Webinar

20 November, 14h | CPMS Webinar

Name: CPMS for new users: Authorisation – Authentication – First login
Date: 20 November, 14h
Join the webinar here

Posted on November 20, 2018June 5, 2024Categories Past Events, Past Events 2018

Executive Summary – 9th European Conference on Rare Diseases and Orphan Products

Executive Summary – 9th European Conference on Rare Diseases and Orphan Products

Continue reading “Executive Summary – 9th European Conference on Rare Diseases and Orphan Products”

Posted on November 19, 2018August 13, 2024Categories News 2018

ERN-RND Fellowship experience in Tübingen, Germany

ERN-RND Fellowship experience in Tübingen, Germany

Continue reading “ERN-RND Fellowship experience in Tübingen, Germany”

Posted on November 14, 2018August 13, 2024Categories News 2018

ERN-RND has affirmed the value of the Ataxia-UK guideline “Management of the ataxias towards best clinical practice” (Ataxia UK, 3rd edition, July 2016)

ERN-RND has affirmed the value of the Ataxia-UK guideline “Management of the ataxias towards best clinical practice” (Ataxia UK, 3rd edition, July 2016)

Continue reading “ERN-RND has affirmed the value of the Ataxia-UK guideline “Management of the ataxias towards best clinical practice” (Ataxia UK, 3rd edition, July 2016)”

Posted on November 7, 2018August 13, 2024Categories News 2018

ERN-RND Fellowship

ERN-RND Fellowship

Continue reading “ERN-RND Fellowship”

Posted on July 18, 2018August 13, 2024Categories News 2018

ERN-RND Annual Meeting 2018

ERN-RND Annual Meeting 2018

Continue reading “ERN-RND Annual Meeting 2018”

Posted on July 3, 2018August 13, 2024Categories News 2018

Solve-RD project

Solve-RD project

Continue reading “Solve-RD project”

Posted on June 28, 2018February 3, 2025Categories News 2018

25 June | 5th ERN Coordinators Group Meeting

25 June | 5th ERN Coordinators Group Meeting
Posted on June 25, 2018June 5, 2024Categories Past Events, Past Events 2018

19 – 21 June | 6th Conference of Undiagnosed Diseases Network International

19 – 21 June | 6th Conference of Undiagnosed Diseases Network International

Continue reading “19 – 21 June | 6th Conference of Undiagnosed Diseases Network International”

Posted on June 21, 2018June 5, 2024Categories Past Events, Past Events 2018

16 – 19 June | 4th Congress of the European Academy of Neurology

16 – 19 June | 4th Congress of the European Academy of Neurology

Continue reading “16 – 19 June | 4th Congress of the European Academy of Neurology”

Posted on June 19, 2018June 5, 2024Categories Past Events, Past Events 2018

7 – 8 June | ERN-RND Annual Meeting 2018

7 – 8 June | ERN-RND Annual Meeting 2018

Continue reading “7 – 8 June | ERN-RND Annual Meeting 2018”

Posted on June 8, 2018February 3, 2025Categories Past Events, Past Events 2018

MoU signed between ERN-RND & MDS-ES

MoU signed between ERN-RND & MDS-ES

Continue reading “MoU signed between ERN-RND & MDS-ES”

Posted on May 15, 2018August 13, 2024Categories News 2018

@ERN_RND is on Twitter!

@ERN_RND is on Twitter!

Continue reading “@ERN_RND is on Twitter!”

Posted on May 14, 2018August 13, 2024Categories News 2018

1st ERN-RND Winter School

1st ERN-RND Winter School

Continue reading “1st ERN-RND Winter School”

Posted on October 27, 2017February 3, 2025Categories News 2017

Posts pagination

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Webinar Schedule

Latest News

  • ePAG visit at Children’s Hospital Sant Joan de Déu, Barcelona

    July 7, 2025
    Having a rare disease means spending a lot of time around doctors and hospitals. Places, that even adults will not …read more »
  • Meet us at EAN2025

    June 11, 2025
    Are you at this year’s EAN Congress in Helsinki? Then come and visit us at our booth (N21) in the …read more »
  • Review on DBS for Dystonia

    June 11, 2025
    Despite considerable achievements in genetics in dystonias, their response to possible treatment such as Deep Brain Stimulation (DBS) remains to …read more »

Find us on Bluesky

ERN-RND

@ern-rnd.bsky.social

154 Followers 87 Following 147 Posts

European Reference Network for Rare Neurological Diseases (ERN-RND) to improve diagnosis, care & treatment of RND patients.
Free webinars: https://www.ern-rnd.eu/education-training/online-medical-education-for-rare-neurological-diseases/

  • Get to this post

    ERN-RND @ern-rnd.bsky.social 6 days

    💻U#webinar#webinar on “Patient Journeys: Reliable Comprehensive Documents which Summarise a Rare Disease”
    📅23rd September, 3 CEST
    🗣️P. Mihaylova & M. Kearney, Tallaght University Hospital
    Sighttps://t1p.de/3r6k3de/3r6k3
    Joint w/ the European Reference Network for Rare Neuromuscular Diseases and
  • Get to this post

    ERN-RND @ern-rnd.bsky.social 1 week

    Participate in the #EU4Health #Survey on current and future health priorities till September 30! The #Survey is inviting interested stakeholders to share their views on future priorities, orientations and needs for the future of the EU4Health programme.
    hadea.ec.europa.eu/news/targete...
  • Get to this post

    ERN-RND @ern-rnd.bsky.social 2 weeks

    What's the status on European #healthcare for rare neurological diseases in #ERNs?

    Join our Symposium on October 28 online (free of charge): tinyurl.com/yc3yts72

    Find the programme here: www.ern-rnd.eu/wp-content/u...
  • Get to this post

    ERN-RND @ern-rnd.bsky.social 2 weeks

    Join our free symposium on European Healthcare for RND patients!
  • Get to this post

    European Paediatric Neurology Society (EPNS) @epnsnews.bsky.social 2 weeks

    Stay ahead in #PaediatricNeurology by reading the #EPNS2025 Abstract Book to get quick insights into the latest research, treatments, and breakthroughs:
    epns-congress.com/wp-content/u...
  • Get to this post

    ERN-RND @ern-rnd.bsky.social 2 weeks

    💻U#webinar#webinar on “Neurological and Non-Neurological Aspects in Palliative Care of FTD and PPA Patients”
    📅16th September, 3:00 CEST
    🗣️Renate Wahl, University Hospital Aachen, Germany
    Sighttps://t1p.de/j8mlcde/j8mlc
    Joint w/ the European Reference Network for Rare Neuromuscular Diseases and
  • Get to this post

    European Paediatric Neurology Society (EPNS) @epnsnews.bsky.social 2 weeks

    Next FREE YEPNS Case Discussion!

    Join us for an interactive journey through three compelling paediatric neurology cases—from clarity to enigma.

    Register at: us02web.zoom.us/webinar/regi...

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ERN-RND European Reference Network for Rare Neurological Diseases

Our mission

ERN-RND aims to support rare neurological patients in Europe in getting a timely and appropriate diagnosis, treatment and care.

ERNs

ERN-RND is one of the 24 European Reference Networks (ERNs) approved by the ERN Board of Member States. For more information about the ERNs and the EU Health strategy, please visit https://ec.europa.eu/health/ern_en

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