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ERN-RND | European Reference Network on Rare Neurological Diseases

ERN-RND | European Reference Network on Rare Neurological Diseases

for rare or low prevalence complex diseases

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Author: ERN-RND

Executive Summary – 9th European Conference on Rare Diseases and Orphan Products

Executive Summary – 9th European Conference on Rare Diseases and Orphan Products

Continue reading “Executive Summary – 9th European Conference on Rare Diseases and Orphan Products”

Posted on November 19, 2018August 13, 2024Categories News 2018

ERN-RND Fellowship experience in Tübingen, Germany

ERN-RND Fellowship experience in Tübingen, Germany

Continue reading “ERN-RND Fellowship experience in Tübingen, Germany”

Posted on November 14, 2018August 13, 2024Categories News 2018

ERN-RND has affirmed the value of the Ataxia-UK guideline “Management of the ataxias towards best clinical practice” (Ataxia UK, 3rd edition, July 2016)

ERN-RND has affirmed the value of the Ataxia-UK guideline “Management of the ataxias towards best clinical practice” (Ataxia UK, 3rd edition, July 2016)

Continue reading “ERN-RND has affirmed the value of the Ataxia-UK guideline “Management of the ataxias towards best clinical practice” (Ataxia UK, 3rd edition, July 2016)”

Posted on November 7, 2018August 13, 2024Categories News 2018

ERN-RND Fellowship

ERN-RND Fellowship

Continue reading “ERN-RND Fellowship”

Posted on July 18, 2018August 13, 2024Categories News 2018

ERN-RND Annual Meeting 2018

ERN-RND Annual Meeting 2018

Continue reading “ERN-RND Annual Meeting 2018”

Posted on July 3, 2018August 13, 2024Categories News 2018

Solve-RD project

Solve-RD project

Continue reading “Solve-RD project”

Posted on June 28, 2018February 3, 2025Categories News 2018

25 June | 5th ERN Coordinators Group Meeting

25 June | 5th ERN Coordinators Group Meeting
Posted on June 25, 2018June 5, 2024Categories Past Events, Past Events 2018

19 – 21 June | 6th Conference of Undiagnosed Diseases Network International

19 – 21 June | 6th Conference of Undiagnosed Diseases Network International

Continue reading “19 – 21 June | 6th Conference of Undiagnosed Diseases Network International”

Posted on June 21, 2018June 5, 2024Categories Past Events, Past Events 2018

16 – 19 June | 4th Congress of the European Academy of Neurology

16 – 19 June | 4th Congress of the European Academy of Neurology

Continue reading “16 – 19 June | 4th Congress of the European Academy of Neurology”

Posted on June 19, 2018June 5, 2024Categories Past Events, Past Events 2018

7 – 8 June | ERN-RND Annual Meeting 2018

7 – 8 June | ERN-RND Annual Meeting 2018

Continue reading “7 – 8 June | ERN-RND Annual Meeting 2018”

Posted on June 8, 2018February 3, 2025Categories Past Events, Past Events 2018

MoU signed between ERN-RND & MDS-ES

MoU signed between ERN-RND & MDS-ES

Continue reading “MoU signed between ERN-RND & MDS-ES”

Posted on May 15, 2018August 13, 2024Categories News 2018

@ERN_RND is on Twitter!

@ERN_RND is on Twitter!

Continue reading “@ERN_RND is on Twitter!”

Posted on May 14, 2018August 13, 2024Categories News 2018

1st ERN-RND Winter School

1st ERN-RND Winter School

Continue reading “1st ERN-RND Winter School”

Posted on October 27, 2017February 3, 2025Categories News 2017

Posts pagination

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Webinar Schedule

Latest News

  • Meet us at EAN2025

    June 11, 2025
    Are you at this year’s EAN Congress in Helsinki? Then come and visit us at our booth (N21) in the …read more »
  • Review on DBS for Dystonia

    June 11, 2025
    Despite considerable achievements in genetics in dystonias, their response to possible treatment such as Deep Brain Stimulation (DBS) remains to …read more »
  • John Gerbild elected as Board Director for EURORDIS

    May 19, 2025
    We are happy to announce that our patient advocate John Gerbild (representative for: Ataxia/HSP) is now a newly elected Board …read more »

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ERN-RND

@ern-rnd.bsky.social

143 Followers 84 Following 119 Posts

European Reference Network for Rare Neurological Diseases (ERN-RND) to improve diagnosis, care & treatment of RND patients.
Free webinars: https://www.ern-rnd.eu/education-training/webinars/

  • Get to this post

    ERN-RND @ern-rnd.bsky.social 5 days

    Bye bye #EAN2025: meeting members and partners, introducing pur new postgraduate curriculum (hosted on eanCampus), talking about future projects, planning new cooperations - we had a great time in Helsinki and are looking forward to the #EAN2026 In Geneva! #EAN2026
  • Get to this post

    ERN-RND @ern-rnd.bsky.social 6 days

    EAN2025 - #PublicBrainHealthDay #BrainHealthMission

    I"f you could change ONE THING in the health care system for rare neurological diseases - what do you think is needed most and why?"

    This is what our coordinator Holm Graessner would change first:

    #ToBeContinued - more to come soon! #ToBeContinued
  • Get to this post

    Parkinson's Europe @parkinsonseurope.bsky.social 6 days

    We're loving #EAN2025! Come to our booth in the Neurohood area - N18 - and say hello, and pick up some Parkinson's Passports (in six languages!). ❤️ 🌷

    #Parkinsons #Parkinson ‪@ean.org‬
  • Get to this post

    ERN-RND @ern-rnd.bsky.social 6 days

    #EAN2025 Come and learn more about our new online medical education programme - we are in the Neurohood, N21
  • Get to this post

    ERN-RND @ern-rnd.bsky.social 6 days

    #Today: Learn more about ERNs and current practices on genetic therapies in Europe at 17.25 CEST in the Scientific Theatre - the talk will be held by Kleopas Kleopa and will include practices from ERN-RND and EURO-NMD European Reference Network for Rare Neuromuscular Diseases
  • Get to this post

    ERN-RND @ern-rnd.bsky.social 1 week

    #EAN2025: Meet the ERNs at the the EAN Congress. Come and find us and EURO-NMD European Reference Network for Rare Neuromuscular Diseases at the booth N21 in the Neurohood!
  • Get to this post

    ERN-RND @ern-rnd.bsky.social 1 week

    Our member Lucia Laugwitz received the Memorial Fellowship of EKFS on her reasearch on #MLD - congrats Lucia!
    Learn more on Lucia's research in our video interview on newborn screening for Metaleukodystrophy here: youtu.be/pd7m1OleYMA

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ERN-RND European Reference Network for Rare Neurological Diseases

Our mission

ERN-RND aims to support rare neurological patients in Europe in getting a timely and appropriate diagnosis, treatment and care.

ERNs

ERN-RND is one of the 24 European Reference Networks (ERNs) approved by the ERN Board of Member States. For more information about the ERNs and the EU Health strategy, please visit https://ec.europa.eu/health/ern_en

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