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ERN-RND | European Reference Network on Rare Neurological Diseases

ERN-RND | European Reference Network on Rare Neurological Diseases

for rare or low prevalence complex diseases

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Author: ERN-RND

22 February 2020 | Rare diseases and European Reference Networks

22 February 2020 | Rare diseases and European Reference Networks

Continue reading “22 February 2020 | Rare diseases and European Reference Networks”

Posted on February 22, 2020June 5, 2024Categories Past Events, Past Events 2020

20 February 2020: EURO-NMD webinar “mitochondrial donation”

20 February 2020: EURO-NMD webinar “mitochondrial donation”

Continue reading “20 February 2020: EURO-NMD webinar “mitochondrial donation””

Posted on February 20, 2020June 5, 2024Categories Past Events, Past Events 2020

18 February 2020 | ERN-RND webinar “mitochondrial disorder with chorea”

18 February 2020 | ERN-RND webinar “mitochondrial disorder with chorea”

Continue reading “18 February 2020 | ERN-RND webinar “mitochondrial disorder with chorea””

Posted on February 18, 2020June 5, 2024Categories Past Events, Past Events 2020

EJP RD calls for funding – ERNs only

EJP RD calls for funding – ERNs only

Continue reading “EJP RD calls for funding – ERNs only”

Posted on February 5, 2020August 13, 2024Categories News 2020

30 January 2020 | ERN-RND ePAG meeting

30 January 2020 | ERN-RND ePAG meeting
Posted on January 30, 2020June 5, 2024Categories Past Events, Past Events 2020

28 January 2020 | ERN-RND webinar “introduction to leukodystrophies”

28 January 2020 | ERN-RND webinar “introduction to leukodystrophies”

Continue reading “28 January 2020 | ERN-RND webinar “introduction to leukodystrophies””

Posted on January 28, 2020June 5, 2024Categories Past Events, Past Events 2020

21 January 2020 | ERN-RND webinar “immune-mediated choreas”

21 January 2020 | ERN-RND webinar “immune-mediated choreas”

Continue reading “21 January 2020 | ERN-RND webinar “immune-mediated choreas””

Posted on January 21, 2020June 5, 2024Categories Past Events, Past Events 2020

Successful ERN-RND Registry Application!

Successful ERN-RND Registry Application!

Continue reading “Successful ERN-RND Registry Application!”

Posted on January 20, 2020August 13, 2024Categories News 2020

14 January 2020 | ERN-RND webinar “inherited ataxias”

14 January 2020 | ERN-RND webinar “inherited ataxias”

Continue reading “14 January 2020 | ERN-RND webinar “inherited ataxias””

Posted on January 14, 2020June 5, 2024Categories Past Events, Past Events 2020

New #RareDiseaseDay 2020 poster available!

New #RareDiseaseDay 2020 poster available!

Continue reading “New #RareDiseaseDay 2020 poster available!”

Posted on January 8, 2020August 13, 2024Categories News 2020

ERN-RND welcomes new affiliated partners

ERN-RND welcomes new affiliated partners

Continue reading “ERN-RND welcomes new affiliated partners”

Posted on December 18, 2019August 13, 2024Categories News 2019

17 December | ERN-RND webinar “non-progressive congenital ataxia”

17 December | ERN-RND webinar “non-progressive congenital ataxia”

Continue reading “17 December | ERN-RND webinar “non-progressive congenital ataxia””

Posted on December 17, 2019June 5, 2024Categories Past Events, Past Events 2019

New EJP RD call: Networking Support Scheme is open!

New EJP RD call: Networking Support Scheme is open!

Continue reading “New EJP RD call: Networking Support Scheme is open!”

Posted on December 17, 2019August 13, 2024Categories News 2019

16 December | Solve-RD webinar “RD-Connect GPAP – advanced platform features”

16 December | Solve-RD webinar “RD-Connect GPAP – advanced platform features”

Continue reading “16 December | Solve-RD webinar “RD-Connect GPAP – advanced platform features””

Posted on December 16, 2019June 5, 2024Categories Past Events, Past Events 2019

9 December | Solve-RD webinar “RD-Connect GPAP – basic analysis”

9 December | Solve-RD webinar “RD-Connect GPAP – basic analysis”

Continue reading “9 December | Solve-RD webinar “RD-Connect GPAP – basic analysis””

Posted on December 9, 2019June 5, 2024Categories Past Events, Past Events 2019

6 December | Journée Nationale Maladie de Huntington

6 December | Journée Nationale Maladie de Huntington

Continue reading “6 December | Journée Nationale Maladie de Huntington”

Posted on December 6, 2019June 5, 2024Categories Past Events, Past Events 2019

“ERNs in a crucial phase of enlargement”

“ERNs in a crucial phase of enlargement”

Continue reading ““ERNs in a crucial phase of enlargement””

Posted on December 6, 2019August 13, 2024Categories News 2019

ERN Newsletter is out!

ERN Newsletter is out!

Continue reading “ERN Newsletter is out!”

Posted on December 5, 2019August 13, 2024Categories News 2019

Euro-ataxia publishes patient charter

Euro-ataxia publishes patient charter

Continue reading “Euro-ataxia publishes patient charter”

Posted on December 4, 2019August 13, 2024Categories News 2019

3 December | ERN-RND webinar “Neuroacanthocytosis syndromes, a rare chorea”

3 December | ERN-RND webinar “Neuroacanthocytosis syndromes, a rare chorea”

Continue reading “3 December | ERN-RND webinar “Neuroacanthocytosis syndromes, a rare chorea””

Posted on December 3, 2019June 5, 2024Categories Past Events, Past Events 2019

27-29 November | Annual Meeting DASNE

27-29 November | Annual Meeting DASNE

Continue reading “27-29 November | Annual Meeting DASNE”

Posted on November 29, 2019September 6, 2024Categories Past Events, Past Events 2019

EAN 2020 abstract submission is open!

EAN 2020 abstract submission is open!

Continue reading “EAN 2020 abstract submission is open!”

Posted on November 29, 2019August 13, 2024Categories News 2019

26 November | 5th BRAIN-TEAM patient organisations day

26 November | 5th BRAIN-TEAM patient organisations day

Continue reading “26 November | 5th BRAIN-TEAM patient organisations day”

Posted on November 26, 2019June 5, 2024Categories Past Events, Past Events 2019

#BrainLifeGoals photo competition, submit a photograph!

#BrainLifeGoals photo competition, submit a photograph!

Continue reading “#BrainLifeGoals photo competition, submit a photograph!”

Posted on November 22, 2019August 13, 2024Categories News 2019

European Conference on Rare Diseases & Orphan Products 2020, submit your poster abstract!

European Conference on Rare Diseases & Orphan Products 2020, submit your poster abstract!

Continue reading “European Conference on Rare Diseases & Orphan Products 2020, submit your poster abstract!”

Posted on November 22, 2019August 13, 2024Categories News 2019

100 days to go until Rare Disease Day 2020!

100 days to go until Rare Disease Day 2020!

Continue reading “100 days to go until Rare Disease Day 2020!”

Posted on November 21, 2019August 13, 2024Categories News 2019

SCA Global Conference registration + poster abstract submissions open!

SCA Global Conference registration + poster abstract submissions open!

Continue reading “SCA Global Conference registration + poster abstract submissions open!”

Posted on November 21, 2019August 13, 2024Categories News 2019

14-16 November | International Ataxia Research Conference (IARC) 2019

14-16 November | International Ataxia Research Conference (IARC) 2019

Continue reading “14-16 November | International Ataxia Research Conference (IARC) 2019”

Posted on November 17, 2019June 5, 2024Categories Past Events, Past Events 2019

5 November | ERN-RND webinar “Clinical Features of Ataxia”

5 November | ERN-RND webinar “Clinical Features of Ataxia”

Continue reading “5 November | ERN-RND webinar “Clinical Features of Ataxia””

Posted on November 5, 2019June 5, 2024Categories Past Events, Past Events 2019

29-30 October | Organising & maximizing rare disease biological sample data in biobanks

29-30 October | Organising & maximizing rare disease biological sample data in biobanks

Continue reading “29-30 October | Organising & maximizing rare disease biological sample data in biobanks”

Posted on October 30, 2019June 5, 2024Categories Past Events, Past Events 2019

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Webinar Schedule

Latest News

  • Meet us at EAN2025

    June 11, 2025
    Are you at this year’s EAN Congress in Helsinki? Then come and visit us at our booth (N21) in the …read more »
  • Review on DBS for Dystonia

    June 11, 2025
    Despite considerable achievements in genetics in dystonias, their response to possible treatment such as Deep Brain Stimulation (DBS) remains to …read more »
  • John Gerbild elected as Board Director for EURORDIS

    May 19, 2025
    We are happy to announce that our patient advocate John Gerbild (representative for: Ataxia/HSP) is now a newly elected Board …read more »

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ERN-RND

@ern-rnd.bsky.social

145 Followers 84 Following 119 Posts

European Reference Network for Rare Neurological Diseases (ERN-RND) to improve diagnosis, care & treatment of RND patients.
Free webinars: https://www.ern-rnd.eu/education-training/webinars/

  • Get to this post

    ERN-RND @ern-rnd.bsky.social 6 days

    Bye bye #EAN2025: meeting members and partners, introducing pur new postgraduate curriculum (hosted on eanCampus), talking about future projects, planning new cooperations - we had a great time in Helsinki and are looking forward to the #EAN2026 In Geneva! #EAN2026
  • Get to this post

    ERN-RND @ern-rnd.bsky.social 7 days

    EAN2025 - #PublicBrainHealthDay #BrainHealthMission

    I"f you could change ONE THING in the health care system for rare neurological diseases - what do you think is needed most and why?"

    This is what our coordinator Holm Graessner would change first:

    #ToBeContinued - more to come soon! #ToBeContinued
  • Get to this post

    Parkinson's Europe @parkinsonseurope.bsky.social 1 week

    We're loving #EAN2025! Come to our booth in the Neurohood area - N18 - and say hello, and pick up some Parkinson's Passports (in six languages!). ❤️ 🌷

    #Parkinsons #Parkinson ‪@ean.org‬
  • Get to this post

    ERN-RND @ern-rnd.bsky.social 1 week

    #EAN2025 Come and learn more about our new online medical education programme - we are in the Neurohood, N21
  • Get to this post

    ERN-RND @ern-rnd.bsky.social 1 week

    #Today: Learn more about ERNs and current practices on genetic therapies in Europe at 17.25 CEST in the Scientific Theatre - the talk will be held by Kleopas Kleopa and will include practices from ERN-RND and EURO-NMD European Reference Network for Rare Neuromuscular Diseases
  • Get to this post

    ERN-RND @ern-rnd.bsky.social 1 week

    #EAN2025: Meet the ERNs at the the EAN Congress. Come and find us and EURO-NMD European Reference Network for Rare Neuromuscular Diseases at the booth N21 in the Neurohood!
  • Get to this post

    ERN-RND @ern-rnd.bsky.social 1 week

    Our member Lucia Laugwitz received the Memorial Fellowship of EKFS on her reasearch on #MLD - congrats Lucia!
    Learn more on Lucia's research in our video interview on newborn screening for Metaleukodystrophy here: youtu.be/pd7m1OleYMA

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ERN-RND European Reference Network for Rare Neurological Diseases

Our mission

ERN-RND aims to support rare neurological patients in Europe in getting a timely and appropriate diagnosis, treatment and care.

ERNs

ERN-RND is one of the 24 European Reference Networks (ERNs) approved by the ERN Board of Member States. For more information about the ERNs and the EU Health strategy, please visit https://ec.europa.eu/health/ern_en

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