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ERN-RND | European Reference Network on Rare Neurological Diseases

ERN-RND | European Reference Network on Rare Neurological Diseases

for rare or low prevalence complex diseases

Members Area
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  • About us
    • What is an ERN
    • Cross border healthcare
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  • Expert Centres
    • … for rare neurological diseases
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  • Online case discussion with CPMS
    • What is the CPMS
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  • Disease Knowledge
    • Cerebellar Ataxia & Hereditary Spastic Paraplegias (HSPs)
    • Chorea & Huntington’s disease
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      • Module: Ataxia/HSPs
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      • EJP RD
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Author: ERN-RND

European Reference Networks are 3 years old

European Reference Networks are 3 years old

Continue reading “European Reference Networks are 3 years old”

Posted on March 13, 2020August 13, 2024Categories News 2020

3-6 March 2020 | NAF’s Ataxia Investigators meeting – CANCELLED

3-6 March 2020 | NAF’s Ataxia Investigators meeting – CANCELLED

Continue reading “3-6 March 2020 | NAF’s Ataxia Investigators meeting – CANCELLED”

Posted on March 7, 2020June 5, 2024Categories Past Events, Past Events 2020

2-3 March 2020 | ARCA Global Conference – CANCELLED

2-3 March 2020 | ARCA Global Conference – CANCELLED

Continue reading “2-3 March 2020 | ARCA Global Conference – CANCELLED”

Posted on March 3, 2020June 5, 2024Categories Past Events, Past Events 2020

3 March 2020 | ERN-RND webinar “ultrasound diagnostics for cervical dystonia”

3 March 2020 | ERN-RND webinar “ultrasound diagnostics for cervical dystonia”

Continue reading “3 March 2020 | ERN-RND webinar “ultrasound diagnostics for cervical dystonia””

Posted on March 3, 2020June 5, 2024Categories Past Events, Past Events 2020

SCA Global Conference 2020 CANCELLED

SCA Global Conference 2020 CANCELLED

Continue reading “SCA Global Conference 2020 CANCELLED”

Posted on March 3, 2020August 13, 2024Categories News 2020

New EHA video on ERN-RND

New EHA video on ERN-RND

Continue reading “New EHA video on ERN-RND”

Posted on March 2, 2020August 13, 2024Categories News 2020

ARCA Global Conference 2020 CANCELLED

ARCA Global Conference 2020 CANCELLED

Continue reading “ARCA Global Conference 2020 CANCELLED”

Posted on March 2, 2020August 13, 2024Categories News 2020

ERN-RND Patient advocates meeting report, 30 January 2020

ERN-RND Patient advocates meeting report, 30 January 2020

Continue reading “ERN-RND Patient advocates meeting report, 30 January 2020”

Posted on March 2, 2020August 13, 2024Categories News 2020

29 February 2020 | Rare Disease Day 2020

29 February 2020 | Rare Disease Day 2020

Continue reading “29 February 2020 | Rare Disease Day 2020”

Posted on February 29, 2020June 5, 2024Categories Past Events, Past Events 2020

29 February 2020 | Süddeutscher Fachtag der Seltenen Erkrankungen

29 February 2020 | Süddeutscher Fachtag der Seltenen Erkrankungen

Continue reading “29 February 2020 | Süddeutscher Fachtag der Seltenen Erkrankungen”

Posted on February 29, 2020June 5, 2024Categories Past Events, Past Events 2020

28 February 2020 | Tag der Seltenen Erkrankungen in Mainz

28 February 2020 | Tag der Seltenen Erkrankungen in Mainz

Continue reading “28 February 2020 | Tag der Seltenen Erkrankungen in Mainz”

Posted on February 28, 2020June 5, 2024Categories Past Events, Past Events 2020

ERN-RND Survey: “Research Priorities” for patients

ERN-RND Survey: “Research Priorities” for patients

Continue reading “ERN-RND Survey: “Research Priorities” for patients”

Posted on February 26, 2020August 13, 2024Categories News 2020

22 February 2020 | Rare diseases and European Reference Networks

22 February 2020 | Rare diseases and European Reference Networks

Continue reading “22 February 2020 | Rare diseases and European Reference Networks”

Posted on February 22, 2020June 5, 2024Categories Past Events, Past Events 2020

20 February 2020: EURO-NMD webinar “mitochondrial donation”

20 February 2020: EURO-NMD webinar “mitochondrial donation”

Continue reading “20 February 2020: EURO-NMD webinar “mitochondrial donation””

Posted on February 20, 2020June 5, 2024Categories Past Events, Past Events 2020

18 February 2020 | ERN-RND webinar “mitochondrial disorder with chorea”

18 February 2020 | ERN-RND webinar “mitochondrial disorder with chorea”

Continue reading “18 February 2020 | ERN-RND webinar “mitochondrial disorder with chorea””

Posted on February 18, 2020June 5, 2024Categories Past Events, Past Events 2020

EJP RD calls for funding – ERNs only

EJP RD calls for funding – ERNs only

Continue reading “EJP RD calls for funding – ERNs only”

Posted on February 5, 2020August 13, 2024Categories News 2020

30 January 2020 | ERN-RND ePAG meeting

30 January 2020 | ERN-RND ePAG meeting
Posted on January 30, 2020June 5, 2024Categories Past Events, Past Events 2020

28 January 2020 | ERN-RND webinar “introduction to leukodystrophies”

28 January 2020 | ERN-RND webinar “introduction to leukodystrophies”

Continue reading “28 January 2020 | ERN-RND webinar “introduction to leukodystrophies””

Posted on January 28, 2020June 5, 2024Categories Past Events, Past Events 2020

21 January 2020 | ERN-RND webinar “immune-mediated choreas”

21 January 2020 | ERN-RND webinar “immune-mediated choreas”

Continue reading “21 January 2020 | ERN-RND webinar “immune-mediated choreas””

Posted on January 21, 2020June 5, 2024Categories Past Events, Past Events 2020

Successful ERN-RND Registry Application!

Successful ERN-RND Registry Application!

Continue reading “Successful ERN-RND Registry Application!”

Posted on January 20, 2020August 13, 2024Categories News 2020

14 January 2020 | ERN-RND webinar “inherited ataxias”

14 January 2020 | ERN-RND webinar “inherited ataxias”

Continue reading “14 January 2020 | ERN-RND webinar “inherited ataxias””

Posted on January 14, 2020June 5, 2024Categories Past Events, Past Events 2020

New #RareDiseaseDay 2020 poster available!

New #RareDiseaseDay 2020 poster available!

Continue reading “New #RareDiseaseDay 2020 poster available!”

Posted on January 8, 2020August 13, 2024Categories News 2020

ERN-RND welcomes new affiliated partners

ERN-RND welcomes new affiliated partners

Continue reading “ERN-RND welcomes new affiliated partners”

Posted on December 18, 2019August 13, 2024Categories News 2019

17 December | ERN-RND webinar “non-progressive congenital ataxia”

17 December | ERN-RND webinar “non-progressive congenital ataxia”

Continue reading “17 December | ERN-RND webinar “non-progressive congenital ataxia””

Posted on December 17, 2019June 5, 2024Categories Past Events, Past Events 2019

New EJP RD call: Networking Support Scheme is open!

New EJP RD call: Networking Support Scheme is open!

Continue reading “New EJP RD call: Networking Support Scheme is open!”

Posted on December 17, 2019August 13, 2024Categories News 2019

16 December | Solve-RD webinar “RD-Connect GPAP – advanced platform features”

16 December | Solve-RD webinar “RD-Connect GPAP – advanced platform features”

Continue reading “16 December | Solve-RD webinar “RD-Connect GPAP – advanced platform features””

Posted on December 16, 2019June 5, 2024Categories Past Events, Past Events 2019

9 December | Solve-RD webinar “RD-Connect GPAP – basic analysis”

9 December | Solve-RD webinar “RD-Connect GPAP – basic analysis”

Continue reading “9 December | Solve-RD webinar “RD-Connect GPAP – basic analysis””

Posted on December 9, 2019June 5, 2024Categories Past Events, Past Events 2019

6 December | Journée Nationale Maladie de Huntington

6 December | Journée Nationale Maladie de Huntington

Continue reading “6 December | Journée Nationale Maladie de Huntington”

Posted on December 6, 2019June 5, 2024Categories Past Events, Past Events 2019

“ERNs in a crucial phase of enlargement”

“ERNs in a crucial phase of enlargement”

Continue reading ““ERNs in a crucial phase of enlargement””

Posted on December 6, 2019August 13, 2024Categories News 2019

ERN Newsletter is out!

ERN Newsletter is out!

Continue reading “ERN Newsletter is out!”

Posted on December 5, 2019August 13, 2024Categories News 2019

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ERN-RND

@ern-rnd.bsky.social

188 Followers 92 Following 271 Posts

European Reference Network for Rare Neurological Diseases (ERN-RND) to improve diagnosis, care & treatment of RND patients.
Free webinars: https://www.ern-rnd.eu/education-training/online-medical-education-for-rare-neurological-diseases/

  • View post by ERN-RND on Bluesky

    ERN-RND @ern-rnd.bsky.social 2 days

    On October 10 we will focus on "Registries for RND" in our Scientific +Symposium. Do you want to join us online (and free of charge)? Then register here now: us02web.zoom.us/webinar/regi...

    Programme: www.ern-rnd.eu/wp-content/u...

    #RND #RareNeurologicalDisease #registry #neurology #RareNeurology
  • View post by ERN-RND on Bluesky

    ERN-RND @ern-rnd.bsky.social 2 weeks

    ERN-RND Annual Meeting 2026 - Registration open

    on 10-11 October 2024 in Ljubljana,...
  • View post by ERN-RND on Bluesky

    ERN-RND @ern-rnd.bsky.social 2 weeks

    Learn more about registries in Rare Neurological Diseases in our Scientific #Symposium on October 10 - online and free of charge!

    For programme and registration click here: www.ern-rnd.eu/wp-content/u...

    #registry #RND #RareNeurologicalDisease
  • View post by ERN-RND on Bluesky

    ERN-RND @ern-rnd.bsky.social 4 weeks

    Stay informed on the latest developments in rare neurological diseases by subscribing to our #newsletter: www.ern-rnd.eu/mailpoet-ema...
    With updates on standards of care, clinical decision support tools, educational webinars, opportunities to participate in research and initiatives, events.
  • View post by ERN-RND on Bluesky

    ERN-RND @ern-rnd.bsky.social 4 weeks

    On #WorldBrainDay2026 we want to reflect on the remarkable progress that has been made in the field of Genetics. From small but meaningful advances to groundbreaking scientific breakthroughs, every step has brought us closer to a better future for people living with RND. youtu.be/hLP9lN4SULo?...
    ❤️ 1
  • View post by ERN-RND on Bluesky

    ERN-RND @ern-rnd.bsky.social 1 month

    Interested in Registries for Rare Neurological Diseases? Then join our Scientific #Symposium on October 10 - online and free of charge!

    To see the programme and to register click here: www.ern-rnd.eu/wp-content/u...

    #registry #RND #RareNeurologicalDisease #RareNeurology #ERNs
    🔄 1
  • View post by ERN-RND on Bluesky

    ERN-RND @ern-rnd.bsky.social 1 month

    Become an expert in Ataxias and HSPs with our UEMS certified postgraduate curriculum in the competency "Rare Neurological Diseases." Hosted at eanCampus

    Interested? Visit our website for more information: lnkd.in/eKdY5jpf

    #Ataxia #HSP #webinar #RND
    🔄 1

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ERN-RND European Reference Network for Rare Neurological Diseases

Our mission

ERN-RND aims to support rare neurological patients in Europe in getting a timely and appropriate diagnosis, treatment and care.

ERNs

ERN-RND is one of the 24 European Reference Networks (ERNs) approved by the ERN Board of Member States. For more information about the ERNs and the EU Health strategy, please visit https://ec.europa.eu/health/ern_en

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